Hi everyone,
Since this seems to be the area where we can talk about sex and IC, well, here goes! I've had IC for over 10 years, and been through lots of different treatments with varying success (and failure). Anyway, sex has always hurt and I'm trying to figure out a way to help that situation.
One question: about pyrridium (sorry if I misspelled that!). I've used both kinds, the one that dyes your pee orange and the one that dyes it blue. I've ruined my share of underwear using that stuff. The orange seems to aggravate my bladder while the blue seems a bit better.
Here's my gross personal question. Since so many of you recommend it to ease sexual flares, have you been embarrassed by the ucky stains this stuff causes? On panties, sheets, people? LOL Even after I wipe, I feel like everything is orange or blue down there. I suffer from a bit of after leakage or something after I pee, and this stuff makes me feel gross. Yes, it helps the urethral pain, but the dye is so disgusting, I'm afraid a partner would be utterly turned off by seeing orange or blue leaking out of me somewhat. UGH. So, I'd like to hear more about your personal experiences with this medication. (why the heck do bladder analgesics like this have to be dyed? For pete's sake, don't we have enough problems? Like your input on this)
The other rather gross question I have is about odor. Okay, when I'm peeing every 10 minutes, even wiping well, I feel like everything smells of pee. How do you all handle this? Baby wipes or what? It makes me sick the whole thing. I don't feel confident about being with someone and smelling like pee down there from so much urinating. especially during oral sex. I am sooooooo embarrassed by the thought of doing that because I feel that it smells of pee. I don't think even doctors understand that if you pee constantly, things start to smell. I mean, I can't take a shower every 10 minutes. Am I supposed to wash in a bidet or something? This isn't always practical. And if I hurt or feel really tired out, it's all I can do to just wipe and go back to bed (I bet we all know how that feels). I know it's gross to talk about this, but I'm just trying to find an answer to feeling okay in a sexual way with another person while having this problem.
So, any feedback about the pryddium and sex and the pee smell down there and oral sex. Gosh, I wouldn't ever think I'd write stuff like this, but I think the only way we can get thru this is to communicate even if it's personal and difficult. This is a great help and a great community.
Thanks!
Since this seems to be the area where we can talk about sex and IC, well, here goes! I've had IC for over 10 years, and been through lots of different treatments with varying success (and failure). Anyway, sex has always hurt and I'm trying to figure out a way to help that situation.
One question: about pyrridium (sorry if I misspelled that!). I've used both kinds, the one that dyes your pee orange and the one that dyes it blue. I've ruined my share of underwear using that stuff. The orange seems to aggravate my bladder while the blue seems a bit better.
Here's my gross personal question. Since so many of you recommend it to ease sexual flares, have you been embarrassed by the ucky stains this stuff causes? On panties, sheets, people? LOL Even after I wipe, I feel like everything is orange or blue down there. I suffer from a bit of after leakage or something after I pee, and this stuff makes me feel gross. Yes, it helps the urethral pain, but the dye is so disgusting, I'm afraid a partner would be utterly turned off by seeing orange or blue leaking out of me somewhat. UGH. So, I'd like to hear more about your personal experiences with this medication. (why the heck do bladder analgesics like this have to be dyed? For pete's sake, don't we have enough problems? Like your input on this)
The other rather gross question I have is about odor. Okay, when I'm peeing every 10 minutes, even wiping well, I feel like everything smells of pee. How do you all handle this? Baby wipes or what? It makes me sick the whole thing. I don't feel confident about being with someone and smelling like pee down there from so much urinating. especially during oral sex. I am sooooooo embarrassed by the thought of doing that because I feel that it smells of pee. I don't think even doctors understand that if you pee constantly, things start to smell. I mean, I can't take a shower every 10 minutes. Am I supposed to wash in a bidet or something? This isn't always practical. And if I hurt or feel really tired out, it's all I can do to just wipe and go back to bed (I bet we all know how that feels). I know it's gross to talk about this, but I'm just trying to find an answer to feeling okay in a sexual way with another person while having this problem.
So, any feedback about the pryddium and sex and the pee smell down there and oral sex. Gosh, I wouldn't ever think I'd write stuff like this, but I think the only way we can get thru this is to communicate even if it's personal and difficult. This is a great help and a great community.
Thanks!
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