Greetings all!
I am newly diagnosed (late Sept '17). I've been married for 10 years, 9 of which have been marked by painful sex which doctors thought were UTIs for years (UTIs have since been ruled out due to negative cultures and antibiotics having no effect). When I flare, it is only (and I mean only) after sex and not at all otherwise - I get a burning urgency pain that comes on several hours after sex and lasts for 4 days, and is worst early in the morning.
One Urogynecologist I saw recently prescribed me hydroxyzine, nortryptyline, alprazolem, elmiron in addition to recommending regular instillations and Prelief. Now, I started on the hydroxyzine - 10mg almost knocked me out, and even the 5mg made me feel like a zombie. I am sensitive to meds as is and my severe IBS-D makes it difficult to tolerate most meds. Being that I only flare after sex, all of the medications and instillations seem excessive to me (and would likely do more harm than good with my sensitivity to meds and IBS-D)
A previous urogynecologist I saw did feel that meds/instillations were excessive in my case, and said that pyridium with sex should do the trick. I also have valium suppositories which have been minimally helpful. Does anyone else have any experience with this/flare only after sex? Has pyridium been helpful? Any advice would be greatly appreciated - Thanks!
I am newly diagnosed (late Sept '17). I've been married for 10 years, 9 of which have been marked by painful sex which doctors thought were UTIs for years (UTIs have since been ruled out due to negative cultures and antibiotics having no effect). When I flare, it is only (and I mean only) after sex and not at all otherwise - I get a burning urgency pain that comes on several hours after sex and lasts for 4 days, and is worst early in the morning.
One Urogynecologist I saw recently prescribed me hydroxyzine, nortryptyline, alprazolem, elmiron in addition to recommending regular instillations and Prelief. Now, I started on the hydroxyzine - 10mg almost knocked me out, and even the 5mg made me feel like a zombie. I am sensitive to meds as is and my severe IBS-D makes it difficult to tolerate most meds. Being that I only flare after sex, all of the medications and instillations seem excessive to me (and would likely do more harm than good with my sensitivity to meds and IBS-D)
A previous urogynecologist I saw did feel that meds/instillations were excessive in my case, and said that pyridium with sex should do the trick. I also have valium suppositories which have been minimally helpful. Does anyone else have any experience with this/flare only after sex? Has pyridium been helpful? Any advice would be greatly appreciated - Thanks!
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