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  • #1

    When you are in a flare.....

    I would like to take a poll of sorts....is there a phrase or something you use to explain things without the explanation????? I think this would help us all...what about co-workers?

    [This message has been edited by Julie B (edited 03-22-2001).]
    Julie Beyer, MA, RDN
    IC Dietitian, Patient Advocate, Speaker, & Author


    Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

    Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

    You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

    ........ ........


    Other IC Diet Resources:

    IC Diet Webinar
    IC Diet Website
    For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
    Free IC Diet Booklet: What Can I Eat?
    Confident Choices IC Diet Blog
    IC Diet Newsletter

    *Let's Connect!*

    Tags: None
  • #2
    When I'm going for a hydro, I simply say I'm going in for my regular tune-up. My family knows what that means.

    If I don't feel well, I simply say I'm feeling rotten. My close friends know and understand and I guess sometimes I don't feel like trying to educate others. With co-workers, I think it depends on whether or not they are friends. I formed some very close friendships when I was working and those friends were interested so I did clue them about IC.

    Sometimes it can be very difficult.

    Hugs,
    Donna
    Stay safe


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    • #3
      Donna Hello, I understand about telling people about another hydro. I've had people say I just thought you had that done about a year ago or now why are you having this. I have explained over and over to close kin and they still don't get it. Now I'm sure everyone thinks will now you should not be hurting anymore. Not---. They cannot conceive the idea that this never goes away just sometimes there is painfree days. I had my Hydro over 2 weeks ago and am still not doing well. My uro ordered me yesterday antibotics and somemore B&O suppositories. I just can not believe how all these years nothing had taken the pain away like this. I am still am in total bed rest and heating pad. I know that it always takes me about 4 weeks to start feeling any results. I am just so tired of all this. Thanks for listening. I have been too sick to even get on this site very much. Hugs
      redstonebef

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      • #4
        repost
        Julie Beyer, MA, RDN
        IC Dietitian, Patient Advocate, Speaker, & Author


        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

        Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

        You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

        ........ ........


        Other IC Diet Resources:

        IC Diet Webinar
        IC Diet Website
        For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
        Free IC Diet Booklet: What Can I Eat?
        Confident Choices IC Diet Blog
        IC Diet Newsletter

        *Let's Connect!*

        Comment

        • #5
          Good Question! I usually say I'm having a bad bladder day. My co-workers know, because I won't be at my desk for very long and if they know a serious deadline is near and I'm not at my desk--they know I'm not goofin' off. They'll also know I'm having a bad day, if I cut somebody off in the hallway to use the bathroom!
          My family usually know when I say 'today is not a good day'.

          y.

          PS: I've had to call in late to work because of Urg.Freq. and even IBS-d. Yeesh! But they've been pretty good about it. There's pretty much only one way into Salem, and that's over a very traffic-laden bridge.
          Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn

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