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Seeing New Granddaughter and Relatives

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  • Seeing New Granddaughter and Relatives

    I'm a bit nervous of seeing my new granddaughter and relatives. Because in between symptoms, (no ,I never had long remissions) I look ok from the outside. I decided to be frank and tell them if I have to lie down and not keep up with their pace. Difficult when IC is invisible from the outside unless flaring badly etc. No one would ask someone with a hurt leg to do much. I guess it is my responsibility to speak up. My step mom whom I love dearly loves to talk and talk and talk and I will be with her a lot. I can't very well say to her that all her talking is both making me nervous and exhausting me. I guess I can say that I need to take a rest, if sitting up that I need to close my eyes and rest. Sometimes she follows me from room to room. Does anyone have suggestions?
    Thanks for any help you can give me.
    Gentle healing hugs,
    If you keep a green bough in your heart
    the singing bird will come.

  • #2
    I've gone and stayed with friends or family quite a few times and when I can't take it anymore I simply say "my body has had as much as it can handle and I have to lay down". I always make sure to tell them NOT to hold dinner (or what ever meal) up for me. That eases up alot of guilt.......and, I don't mind eating a warm dinner so it all works out.

    I know what you are talking about others not understanding because you "look fine" I spend a hundered bucks every 8 weeks to have my hair done and I am hardly ever well enough to go out so when I do, others refuse to believe how sick I am. But, I spend it for me and I will continue to because I know that I'm worth it and it makes ME feel better emotionally and that's what counts.

    PLEASE go see your new granddaughter. To her, you will be whole and perfect and that's what counts, not what other people think.

    tons and tons of hugs~
    Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


    • #3
      Oh definitely go see your new granddaughter, it will make you feel better just to see her. I had my grandaughter here with me this year, my son is divorced and shares custody of my granddaughter, I am still nervous of flying long distances with IC, so he decided to bring her to me. He was worried about if it would be tiring for me as she is a toddler and into everything, to be honest, I was a little nervous as I can tire easily and I did not know if I would have a flare at the time she was here, but we went for it, and I am so glad, it was one of the best times in my life and as soon as she put her arms out and came running into the kitchen and yelling hey nana, I melted. I would go and hope that you can, in a nice way let your family and relatives know you need rest times and enjoy that baby, keep us posted, hugs Iris hi grouphug
      Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


      • #4
        I will definately see my new granddaughter. My other one, (both born this year) is closer by. I will follow the suggestion of saying I need to lie down when I've had enough. Actually I do nap almost every day once or more if I can.
        Babies are little sweethearts........Thank you everyone. And Teri, keep getting your hair done because it makes you feel good
        Hugs to all,
        Songbird grouphug
        If you keep a green bough in your heart
        the singing bird will come.


        • #5
          Yes and go see that little grandaugther of yours and let them know when you are tired and go lay down.That is what I do when I am home. I tell Dad I am going to bed for a nap and to take my messages for me if anyone calls. by 7pm I had enough and have to go in bed to watch tv and rest. I like to lay on my side and it always help. I always liked to lay on my side, right side. My late grandmother also liked to lay on her right side too. You take loads of picture of those babies. let us know how you do.
          Hang in there , There is hope.
          There is hope. Prayer works.

          Love, Debbie


          • #6
            Thanks Deb and all,
            Your post helps relieve anxiety I had about seeing the baby because of this darn unpredictable disease. I will be sure to take care of myself
            Songbird grouphug
            If you keep a green bough in your heart
            the singing bird will come.