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IC Consumes My Life

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  • IC Consumes My Life

    Good Morning all you strong warriors.
    I'm new at this so please bear with me as I try to figure posting out so If I do this wrong..whoops..
    I'll save the pain post for later as I want to discuss a comment on the emotional side of this illness.

    I got a comment from a loved one the other day that was on the lines of stating that this illness consumes my life and that they hated that for me. At first I found that a bit hard to chew but reality is, how could it not?
    I have to worry about everything I put into my mouth and if it is going to hurt me in some way or be free of all my restrictions. (i.e. IC and GF Diet.) It was also mentioned that it affects most of what I think about or even get excited about at times.
    Sure, I may get real excited when it comes to finding a new recipe that resembles something that I once used to be able to eat vs. someone else being excited that their new sports team just won a game. For me this is a big deal. A win even! Something that taste delicious and that can go into the "book" of safe eats.
    Sure, I spend a lot of time researching new recipes.
    Sure, I spend most of my time hurting, exhausted and thinking of how not to disturb my bladder into needing to pee AGAIN but still managing to put on a smile.
    Sure, I get lonely and think no one around understands and probably thinks I'm just whining or complaining and I wonder if I am getting on their nerves bringing up my pain again..
    I know this is a bit all over the place, I guess my question is, how do you not let this consume your life? Do you think about your IC constantly/frequently?


    P.S. Also Halloween is coming up! What is some of you guys favorite Halloween treats!

  • #2
    Re: IC Consumes My Life

    to the IC Network. Are you fairly new to IC? I do remember that when I first had symptoms and it was overwhelming --- that was 43 years ago!

    The good thing is that once I became accustomed to the diet, it became easier --- I've been dealing with an IC diet for so many years that I don't usually have to consult the list when planning meals any more --- unless it's something totally new for me. I'm diabetic along with IC, which adds some diet restrictions. I do still read labels when grocery shopping. It helps if I plan meals ahead of time. With only a few differences, my family eats the same foods as I do --- and so far no complaints. What I have found is that if I stick with my diet I feel good most of the time.

    It also helps me if I think about the things I CAN have when meal planning. I do quite a bit of baking and always have cookies and biscotti on hand, which also helps.

    In our area, there is a huge Halloween carnival at our fire station. I usually volunteer for a couple of hours and it's fun watching the kids play the games.

    Once I got my IC symptoms under control, it no longer is as life-consuming as it was at first.

    Sending gentle hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Re: IC Consumes My Life

      Yes, only about a year-year 1/2 roughly. I think that is my issue is that I haven't yet got mine under control but that when I do it will get easier. Being gluten free and following the IC diet is challenging at times and can get pretty limited but that is why I am always on the hunt for that next best recipe!
      Oh a carnival! How fun!

      Thank you for responding.

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      • #4
        Re: IC Consumes My Life

        yes, IC consumes my life too. I watch everything I eat, but it doesn't seem to help much I'm thinking (atleast in my case). In and out of pain all the time. And something about bladder pain sucks, you can't just live with it. I can't get it out of my mind.

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        • #5
          Re: IC Consumes My Life

          First off, Thank you for responding. Second, I am sorry that you are going through a rough time too and I hope that things will get better for you. I know that this can be very discouraging and I can totally relate.
          I believe diet has helped me in some cases but that I haven't found all of my trigger foods yet so I'm still having to weed through items..I'm probably going to start a food/pain journal soon and see where that leads me. Not excited about it but I am going to at least try. <3

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