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IC/airplanes/FAA rules/JILL HELP!!!!!

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  • IC/airplanes/FAA rules/JILL HELP!!!!!

    An IC friend of mine (I HOPE SHE POSTS ON THIS ONE [img]wink.gif[/img] ) just got home from vacation. When her plane landed at metro they had to sit on the runway for an hour. Welp, she's got IC right? She even has the ICA "I Can't Wait" card, right?
    She had to get up and use the bathroom while being threatened by an attendant that she could be arrested when the exited the plane. Sorry but the is bull s**t!!!!!! What if she had Krohn's disease or diverticulosis (sp on that one <img src="graemlins/eek.gif" border="0" alt="[eek]" /> )
    What if she had prostate cancer? What if, what if, what if???? She's got a husband that was able to pull her away from the attendent so the arguement ended. I'D HAVE BEEN ARRESTED CUZ MY HUSBAND WOULD NOT HAVE BEEN ABLE TO PULL ME AWAY.

    She e-mailed me about this yesterday and I've been soooooooooooooooooooo angry since I got the e-mail that I can't believe it!!!!!!!!! Does ANYONE, ANYBODY know what handicap hardship should be shared with these attendants to help us when we are stranded in a case like that? I can not for a second believe that we are expected to soil ourselves when it's the airline fault that we are setting idle for that amount of time, especially at detroit metro airport which is famous for hold ups like these.

    I'm angry, I'm p*ssed off AND I'm still without my voice from surgery last week so I can't get on the phone and scream and hollar and yell to try to find out what we can do to protect ourselves in situations like this. A couple years ago metro had a plane on the landing strip for HOURS and it ended up being settled in court with payments made to the people who were stuck on that plane. Well, I'm sorry but NO money would EVERY be enough money for me to be told I could NOT use a restroom [img]mad.gif[/img] [img]mad.gif[/img]

    Maybe I should have put this on the vent board???
    Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

  • #2
    I want an "I can't wait card". I have to fly to Orlando in January with 4 male co-workers for a seminar, a 4 hour and 20 minute flight. If something like this were to happen around my co-workers I would be mortified. They know that something is broken with my bladder but if I had urine running down my legs on the airplane, I highly doubt they would be much comfort. I want a card! Where do I get one?

    The more I write the more angry I become so, I am going to shut-up right now. Live just one day in our shoes, just one day and then tell me that I can't use the restroom. I think I would have been arrested.

    I want the card!!!!

    Lisa <img src="graemlins/cussing.gif" border="0" alt="[cussing]" /> <img src="graemlins/banghead.gif" border="0" alt="[banghead]" />
    "The supreme happiness of life is the conviction that we are loved." Victor Hugo


    • #3
      I have Crohn's disease and IC. I can, and usually do, have diarrhea several times a day. At this time I am too ill to travel. Crohn's message board users have complained of the same problem. They fear the humiliation of going in their pants. Peeing in a diaper isn't pleasant, but just imagine diarrhea, with the odor involved. Since 9/11, the airlines have no mercy on us. Crohnies fly with great anxiety. They have more to worry about than healthy travelers. My daughter was on a flight, where a flyer needed to use the rest room. she begged the flight attendant, to permit her to relieve herself. The attendant screamed " What part of sit down don't you understand?" I don't know what happened to that poor woman, but I sure can understand her pain.


      • #4
        Darlene~my step-daugher has Crohn's and I know what she goes thru. I know that she has the same anxieties that I have. We ARE NOT close but we have had occasions where we have allowed ourselves the enjoyment and freedom to share and I am amazed at how alike our stories are.

        My husband has diverticulosis and we did have to go thru the embarrassment of him not making it to a bathroom on time. The humilation is unexplainable. And, it's something that doesn't go away. Ever. And, it was only him and I so I can't imagine what it would be like if it happened in public.

        What have you learned Darlene from you support group? Has anyone found anything of value we can use? I know that I've asked for seating as close to the bathroom as possible and the request always goes over the head of the person I'm talking to. It's funny that people refuse to help but now with the e-tickets, if you fly northwestern you can go on line the day before your flight and see if there are empty seats on the plane, you can move yourself closer to the bathroom. I don't know about other airlines. when you book for your tickets, they fill from the back of the airplane to the front. I was amazed and how much closer I was able to move our seats [img]mad.gif[/img]

        Lisa~you can get the card from the I'm checking out cuz I'm getting madder too [img]mad.gif[/img]
        Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


        • #5
          All I can say is....let 'em try to stop me. Seriously. I would gladly face arrest to be able to relieve myself when in pain with a full bladder or spasming IBS colon. I suspect this is going to have to happen...someone getting arrested for demanding bathroom privledges for a medical condition and then an airline getting sued by the person. In the mean time, my heart aches for the people like us who have to worry about and deal with this kind of situation.

          Melanie J. [img]frown.gif[/img]
          "The sun shines not on us, but in us." John Muir

          Living a happy life in spite of IC!


          • #6
            Amen MelanieJ! I realize that we must all be more mindful of terrorism, but not to the point of inprisonment on an airplane. I remember being stuck on the tarmac in Detroit due to thunderstorms. This was in the summer of 2000, so terrorism hadn't become a reality yet. It was an hour and a half before we were in the air and I can't imagine not being able to use the bathroom while sitting for that long!

            Is there anything in the American's with Disabilities Act that would prevent this type of thing? If carrying a medical card or wearing a medical bracelet won't help, what good are they? I agree that people with Crohn's have a more difficult time when they are having an couldn't possibly be avoided and it's a shame. We ICers can at least where Depends if it were absolutely necessary, but anyone with a serious and chronic disease that requires the use of a bathroom should be given access to one!

            Yep, this ****** me off (no pun intended).&gt;Tina
            What you are is God's gift to you...What you make of yourself is your gift to God.


            • #7
              The only thing I can think of is writing letters to the airlines and congressmen. This kind of humiliation should not occur. I wonder if it would be possible to make arrangements for bathroom access ahead of time?

              Stay safe

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              • #8
                Tina: I don't believe IC itself is considered a disability by the American's Disability Act, not at this time anyway. If is ever made one, it would help us all by just being able to say we have a disability and have to have bathroom access as needed. Don't know if this would work in the plane issue, unless as Donna said, notice and arrangements were made ahead of time. Writing our congressmen and representatives is an excellent idea. Jo Ellen


                • #9
                  HI All,
                  I don't fly often but when I do it has been on American between Dallas and Des Moinies. I did fly in May of this year. I have never had a problem picking our seats close to the bathroom. I also had a horrilbe day flare wise and was up every 10-15 minutes on this 2 hour flight. On one of my first trips up I told the flight attendant what was going on. I didn't want them to think anything was going on. She was very understanding and said they would have been more concerned if I had been close to the front using the front bathrooms. She even came and checked on me before our decent to see if I wanted to use the bathroom one more time before I shouldn't be out of my seat for about 10 minutes or so. I know I always stress about this but have never had problems yet flying with American.

                  "Life is what happens when you are making other plans" John Lennon

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                  • #10

                    I had the same thing happen at metro a couple of years ago..on a trip to held up the plane,and I got the a similiar lecture, i showed my care to i didn't make one lick of difference. I told another friend who works for that particular airline that your friend works on, and she was surprised, somewhat, but not since all the cutoffs, are leading to extremely unprofessional behavior...I am not going to mention the know...she said she should file some type of complaint. My friend worked for that particular airline for 15 years....and has never heard of such horrible behavior.


                    • #11
                      Sorry to hear about this problem. Precisely why I have not flown anywhere since I got this disease. But I thought that IC was covered by the American Disabilities Act. I thought I learned it from the ICA but possibly I misunderstood. It should be if it isn't. IC is definitely disabling as we are all well aware!!!


                      • #12
                        I have flown several times since diagnosed with IC with good and bad stories to tell. When I was trying to get the the little room on a flight from California a few years ago and we were "too near" landing.....I told the attendent I had bleeding ulcers in my bladder........(ok so a "big" white lie)

                        Guess it grossed her out........she let me use.....OXOXO
                        Julie Beyer, MA, RDN
                        IC Dietitian, Patient Advocate, Speaker, & Author

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                        • #13

                          I remember that hold up at Detroit Metro a few years ago. The snow was so bad that people were forced to sit on planes for hours with NO restroom facilities. The restrooms on the plane weren't functional at some point or overflowing.

                          We all understand that it's important to remain in our seats for safety reasons....we realize that opening the door of a 747 on the runway and bailing out will probably get us into trouble...we know that flight personnel have many, many reasons for strict rules and firm requests.... BUT an airplane is NOT a jail cell and our basic human rights should not be violated. No one should be yelled at or humiliated for needing to use the restroom with or without IC. If a plane is stuck sitting on the runway with no where to park (which happens frequently in our lovely city of Detroit) then why shouldn't someone be allowed to use the restroom??? Would a flight attendant yell at the pilot if he/she had to take an emergency pee break?? I would think not!

                          I suspect that situations like these will result in further lawsuits against airlines. Perhaps we need a Flyer's Bill of Rights on the back of our airline tickets?

                          I'm with ya! [img]mad.gif[/img]

                          "The first time her laughter unfurled it's wings into the wind....
                          We knew that the world would never be the same."
                          ~Brian Andres

                          Baby Kaitlyn was born on 07/08/01 after a successful pregnancy with IC!


                          • #14
                            Julie, I did the same thing, only I was holding my stomach, so everyone assumed I was sick, and I just let them think it... No one wanted to get thrown up on, or clean up a mess, so they were all VERY nice! Sometimes you gotta do what you gotta do!


                            • #15
                              I am wondering that the flight attendants would think if after being told we couldn't go to the restroom, we simply stood in place and used our travel john??? When does it end? [img]mad.gif[/img] <img src="graemlins/eek.gif" border="0" alt="[eek]" />
                              Wishing you the best, today, tomorrow, and always! Sheri G