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Panicking- vacation one week away

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  • Panicking- vacation one week away

    This whole thing sounded great a couple of months ago, but right now I am in a panic. I can't manage a whole day of activity right now, the pelvic pain is just too much and I can't walk when it starts. I don't want to drag down my hubby and the kids, so I don't want to say anything. Does anyone know if there are areas at Disney that you can lay down and rest? I need to get a map with all the bathrooms and memorize it too, and I'm getting nervous about being able to stay on the diet.

    I was really looking forward to this, now I just want to go back to bed with my heating pad.
    One day at a time

  • #2
    If you rent an wheelchair, you'll get head-of-the-line privilages. No waiting in line. When we went I was in a wheelchair and we all had a great time. (Except for the time my son let go of the chair to see if I'd end up in the lake. I didn't. )

    Wasting all your energy on dreadful thoughts of "what if everything bad happens" isn't the right path to take. The train of thought that will move you in the right direction is "what if everything GOOD happens"!

    Pack early, rest as much as you can, and start looking forward to having a wonderful trip with your family!

    "The beauty of the human mind over the body is that if you can't run, you can walk; if you can't walk, you can crawl; if you can't crawl - stay still and imagine getting there. ~ Johnnetta B. Cole ~"


    • #3
      The wheelchair is an excellent idea. You don't necessarily need to ride in it full time, but when you need to sit, you can just climb aboard and ride. You'll have a great time!

      Sending an encouraging hug,
      Stay safe

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      • #4
        wheelchair excellent Idea, I use one when ever I go to something that would require me to be very active. I suspect Disney's website would be able to help you with the map. Good luck and have fun. Don't worry about it. Do what you need to do to make it enjoyable and that will help to make it enjoyable for your kids and husband.
        Faith, Hope, and Love,

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        • #5
          Cricket: I love your attitude, could you bottle that and send it in the mail to me!!!!

          Okay, so last night I talked to my hubby about the chair, and he was like me, a little shocked at the thought. Until 2 years ago I coached a senior girls high school basketball team, and would be on the go, in the gym, and never thought about it. So, its just one of those moments where denial stops working so good, and you go, UGH, I have IC and can't walk all day anymore.

          So, we went over all the good points of having a wheelchair, front of line, less pain, don't need to show my washroom card, and a place to store all the packs we'll be carrying. (My kids are such goofs, they think they'll get to take rides in it when I am on my feet, actually, they are my salvation, their attitudes are amazing). grouphug

          And I made an appointment with my doc to get some special meds if I overdo it (don't know what the heck those would be but hopefully he does).

          And now I am excited again, 5 more sleeps!!

          I have to be honest, I vacilate really badly between acceptance and denial, and I am a 5 star denial expert (part of my coaching make up, we can win if we just play harder!!!).

          Thank you so much for coming to my rescue, I don't know what I would do without my ICN friends! (Well, I know for a fact I would never ever have thought of the wheelchair!)

          You guys are the best,
          One day at a time


          • #6

            It's so good to *see* you smiling again!

            "...we can win if we just play harder". That's true, but you know that there's also lots of strategy involved. IC will try every way it can to block you, so keep looking for ways to get around it. You're a winner in my book!! kissing

            Have fun! MAKE it a great time!! hi

            With Love,
            "The beauty of the human mind over the body is that if you can't run, you can walk; if you can't walk, you can crawl; if you can't crawl - stay still and imagine getting there. ~ Johnnetta B. Cole ~"


            • #7
              Pain meds would be smart to bring along. It's amazing how I can keep going if I medicate myself.
              Enjoy the trip. A vacation usually makes that flair disappear.



              • #8
                Way to go Cath, have a great trip, and lots of fun. Kick IC out of the ball park while you are on vacation, GO CATH GO! hugs and have a great trip, love Iris jester jester wink
                Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


                • #9
                  Hi Cath...I think the wheelchair is an awesome idea, even if it means coming to grips with the fact that IC has taken part of our lives from us.I hope you have a wonderful time, and most of all enjoy your kids!!! grouphug
                  Wishing you the best, today, tomorrow, and always! Sheri G


                  • #10
                    Cath! If you don't have one already ask your doc for a handicapped/disabled permit to use on your car when you are there. My doc has written one out for me and it was a lifesaver! The bathrooms are plentiful, but the biggest problem I have is the parking lot can park right up front, and also be admitted to the parks in a special waiting for that first bathrrom break.

                    Last spring I went for a couple of days with my mom and sis in law......I didn't have the disabled parking card....... boohoohoo....everthing was wonderful except the parking lot! You are welcome to email me privately......and maybe we can talk on the phone before you will have a WONDERFUL TIME!!!!!! XOXOXOXOXOXOXOXOX The Disney IC Princess is just me

                    Julie B
                    Julie Beyer, MA, RDN
                    IC Dietitian, Patient Advocate, Speaker, & Author

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                    • #11
                      Cath have a wonderful time. If you go to Unvierisal Studios make sure everyone wears a bathing suit, you will get wet alot there. I wish I was going. I love Disney world and I always had to go to the bathroom lol. everytime we got there and proably a couple hrs later again and before we left bathroom again. Last time we were there was about 3 years ago and Caelin was 9 months and Shannon was 3 or 4 my neices. Would love to go with my whole family again. Dad won a trip in 93 from a radio station.

                      Bestie_ When you go to Orlando, let me come with you please. Need to pamper myself and go to the spa too.
                      Hang in there , There is hope.
                      There is hope. Prayer works.

                      Love, Debbie


                      • #12
                        Hey Cath,

                        How was your trip? We leave Christmas Day to go to Disney with my whole family (10 of us). I'm a little cautious. Did your doctor give you pain meds? What did he give you. I go to mine on the 8th for my month checkup after hydro. Just wondering what helped you.



                        • #13
                          Hi Clambaby,
                          My trip was wonderful. There are lots of washrooms, I found them on the park map as soon as we got there and then it was less stress. I found the walking the hardest on my bladder so we took lots of the disney transportation, instead of walking from one end of the park to the other. I needed pain meds thru the day and at night, but I had a wonderful time. I flared for a few days after we got back, but all is fine now and it was definitely worth it.

                          I took my normal pain meds, I take demerol 50 mg, and sometimes took 100 mg.

                          One day at a time