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Just got a call from Leslie(dancemomof2)and they have safely docked at Port Canaveral. I am waiting for a phone call to go pick them up from the port.
Hugs,
Barb
Hugs,
Barb
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(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
[SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
:angel: IC Angel Volunteer Coordinator :angel:
:) Contact me via PM or e-mail if you would like to help
I have learned all about life in 3 words: It goes on! :D--Robert Frost
PCOS 7/85
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
Kidney stones--too many to count
Factor V Leiden mutation 10/02
IC 6/03 :evilsmile
Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
"Spirit is an invisible force made visible in all of life"--Maya Angelou
"Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE] -
:woohoo: :woohoo: :woohoo:Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated. -
Just picked up Leslie and Rick from their cruise. They had a wonderful time and I got to see thr first round of pictures from Carnival and the camera phone. I can't wait to see the rest!!! They were awesome. I was hoping to go with them this time but with the new job I couldn't get the time off to go. Next year, I am all over it!! Leslie got me the coolest T-shirt too, absolutely beautiful. Anyway, they are headed out now to drive back to West Virginia. It was great fun finally getting to meet and hang out too.
Hugs,
Barb
(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
[SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
:angel: IC Angel Volunteer Coordinator :angel:
:) Contact me via PM or e-mail if you would like to help
I have learned all about life in 3 words: It goes on! :D--Robert Frost
PCOS 7/85
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
Kidney stones--too many to count
Factor V Leiden mutation 10/02
IC 6/03 :evilsmile
Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
"Spirit is an invisible force made visible in all of life"--Maya Angelou
"Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]Comment
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Awww... that is SO awesome. I am so glad that they had the opportunity to do this and that YOU will have the opportunity next year
You and Leslie deserve it!!!
Also, we kinda dropped the IC Road Trip idea ... remember the big RV with a sign on it saying "Honk if you've gotta pee... ask us about IC"
Maybe that should be brought up again... LOL!!!!!
****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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Hi Babs,
Thanks for letting us know..
I am so happy you were able to meet Leslie and Rick..
I love going on our cruise a couple a year ago and I am looking forward to
going on one next year !!
DebbieThinking positive has got me through to another day!!Comment
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Jen,
Oh yeah, our Road Rules IC trip--that still needs to happen. I have been thinking--who can drive the a mega RV? I think that would be our only issue---except wait--we could find some hunky rent a driver. When we first came up with this idea the ear worm every time I thought about it was the song from Smokey and the Bandit-"East bound and down, loaded up and truckin, we're gonna do what they say can't be done. We've got a long way to go and a short time to get there...."The funny thing is we've both moved east! We need a new theme song LOL
Hee-hee,
Barb
(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
[SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
:angel: IC Angel Volunteer Coordinator :angel:
:) Contact me via PM or e-mail if you would like to help
I have learned all about life in 3 words: It goes on! :D--Robert Frost
PCOS 7/85
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
Kidney stones--too many to count
Factor V Leiden mutation 10/02
IC 6/03 :evilsmile
Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
"Spirit is an invisible force made visible in all of life"--Maya Angelou
"Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]Comment
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I love the smokey and bandit song. Now I am humming this in my head lol
I am so glad they had such a great time on their trip. Well deserved I am sure. And I am also glad you guys got to meet. It is amazing what friends you can meet on this site and just how much they mean to one another...God grant me the serinity to withstand the days ahead!!!
My myspace link...
www.myspace.com/patricia_luvs_matt
Patricia 
In Memory of My Father (Lawerence) 1/25/2007
Procedures:
Interstim Sept 2001
1st InterStim Removal May 2005
2nd Interstim Implanted May 2005
2nd InterStim Removed March 2007
Hysterectomy 1999
Tubes Tied 1997
C-Section 1996
Me and my kids
Taylor (my daughter) Me and my daughter My son Cody and TaylorComment
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Leslie is mailing me our t-shirts.. I talked to her earlier today, and then we talked for a little over an hour this evening.. she was telling me how much fun she had.
Wonder if Jill could book a cruise just for ic patients at a discount price.. of course our significant others can go, unless you don't want to be bothered with them lol'The will of God will never take you where the Grace of God will not protect you.'Comment
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Barb, I'm so happy that you finally got to meet Leslie and Rick. Sounds like the three of you had a BLAST together! Sure wish I could have been around to meet everyone, too!!! How thoughtful of Leslie to get you a t-shirt!
*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.Comment
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Thanks so much Barb for everything you did with us, even though it was a couple short visits. I loved dinner at Grills, thaks for telling us about it. I just wish we both felt like gettign hammered together that night. That is our plan next year. OH and for you to book the adjoining room also, so we can flare together and watch chick flick while Rick gambles. I wore my matchingt-shirt home today, gee had I stayed an extra day we could have been the IC bobsie twins. You are now more then just a friend to me, I feel like I found my long lost ic sister. Thanks so much for being the responsible contact from the ship to my family back home and friends. That was sweet of you.Comment
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Anytime my dear, anytime. I feel the same way. Poor Rick, he is now the only man I can pick on in my life, God help him! At least he has a great sense of humor. Since you know I will be requesting time off for the cruise next year this year, we better warn the poor man that two of us may be wild! At least he can parasail(those harnesses would kill the bladders)and we can hop in for the snorkeling and jet-ski fun. I feel so much closer now, it is like having a sister I never had. Grills was a hoot, huh? The band was awesome(they covered 80's hard rock). The food has always rocked and I'm glad you guys like it. We'll hit it next year on Cruisin' Part II.
Love,
Barb
(Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)
[SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
:angel: IC Angel Volunteer Coordinator :angel:
:) Contact me via PM or e-mail if you would like to help
I have learned all about life in 3 words: It goes on! :D--Robert Frost
PCOS 7/85
RSD 7/94 :headbang:
Endometriosis 9/98 :toilet:
Antiphospholipid antibody syndrome 9/99
Kidney stones--too many to count
Factor V Leiden mutation 10/02
IC 6/03 :evilsmile
Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
"Spirit is an invisible force made visible in all of life"--Maya Angelou
"Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]Comment
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I wanna come tooooooooooo (she says with her best whiney voice)! Barb, you know when you call you can always pick on Tom...he doesn't get enough of it from me! LOL
Leslie, I'm glad you guys had a great time....sounds like a lot of fun!*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.Comment
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