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I made a car trip!!!

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  • I made a car trip!!!

    I'm still in shock! The other night Mike and I went out with some friends for what was supposed to be "one drink". Well, we ended up walking home at midnight after "several drinks", most of which were OJ and peach tree and Vanilla Vodka Cokes. I started to pee every 5 mins, but it only lasted for about 30mins.
    The next day I felt fine! Figured I'd be in flare city from all the no-nos, plus with weaning myself down from the meds I haven't been feeling all that great anyways So, then we went and ate a huge dinner and chocolate cake at grandmas. Then we get home and Mike says "lets go out to eat with some friends". They wanted to go about an hour car ride away! I haven't made a car ride for more than 15mins with anyone but Mike or my mom or very best friend. Car rides kill me!!!! So, I freaked, got all nervous, went, ate another huge dinner, had a daquari, and still made the car ride home with no stops!!!!!!! There were a few times on the way home that I was really uneasy and thought we were going to have to make a pit stop on the highway, but I calmed myself down, ate a mint (LifeSavers Wintogreen Mints-I eat a bag a day, they really calm down my stomache) and I was fine!
    I hope that someday we will all have this experience all the time. I just keep telling myself that it takes these little baby steps to prove that I can get better.

  • #2
    :woohoo: :woohoo: That is so great! I bet you felt completely free for a change and out of the "cage". :woohoo:


    • #3
      That's awesome Leah!!!!:woohoo: :woohoo: That gives me hope. My family lives about an hour and a half away in Baltimore and I have been scared to go and see them for fear of having to stop over and over again to pee or that I won't drink water so that I won't have to pee which will cause burning and a flare.

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        Mazel Tov! :woohoo: :woohoo: :woohoo:
        Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
        Wishing you happiness and good health, and all the best out of life.

        Peace, Carolyn

        Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

        On the Beach with IC


        • #5
          yippie glad you had a great time.
          'The will of God will never take you where the Grace of God will not protect you.'


          • #6
            Oh Leah .. I bet you were so happy to feel kind of normal again..I hope you continue to improve..........

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

            Link to Patient Handbook:

            Diet Reference Sheet:

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


            • #7


              • #8
                that is just wonderful.:woohoo: :woohoo:

                I have to go to Houston (which is about 3 hours from home, of course, that depends on how many stops we make!! Hopefully not too many. ) For my Nieces graduation from University of Houston she will be the first to graduate from anything besides HS so we will be there with bells on coming mid May.


                • #9
                  That is grrrreat!!!
                  I am so happy for you .


                  • #10
                    Good for you!



                    • #11
                      :woohoo: So glad for you! I recently went to NYC, but b/c of the drive (6 hours there) I flared and had to stick to the diet the whole time I was there. But I didn't end up staying behind at the hotel ever! I understand how these things can feel like a HUGE accomplishment! I hope someday I will be able to have a "grown up" drink again! Heck, even the OJ sounds good right now! It's been 7 months since I tasted citrus!
                      IC; PFD; possible Fibromyalgia; IBS;

                      Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                      I've Tried:
                      three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                      Currently using:
                      Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                      Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                      I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!