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  • Altitude

    Hi all: I am wondering if this happens to anyone else, or if possible I am crazy. I know I have had horrible flares whenever I fly out west and I am wondering about altitude changes in my bladder. (I spent one whole Vegas trip in the hotel room with a hot pack)
    I flew to Denver via Dallas last Monday. I wasn't flaring or anything when we left Boston but Monday ended up being a five percocet day. I did get better, but never great, as we drove around Colorado,Nebraska, South Dakota, Montana and Wyoming. I even was able to have a drink in Saloon 10 in Deadwood, without immediately regretting it, so I know once I am used to the altitude I gradually get better. The Eastern Seaboard is mostly at sea level and I can fly back and forth to Orlando on without problems. I can even have something tropical when I board a Cruise ship in Florida.
    I asked my NP about this and she said she had never heard of any altitude adjustment problems before. I am curious to know if it is the altitude with regard to the flight time or if it is the altitude fluctuations in the areas we are visiting. Vegas is like a 5 or 6 hour flight, whereas Florida is 3 to 3 1/2. I don't know what the altitude in Vegas is. This probably has more to do with altitude fluctuations rather than altitude itself as I know many of you live in the high altitude regions with no greater symptoms than anyone else. I got back home yesterday and everything is back to normal. It's just weird. I was hoping you guys might have some insights, I would hate to think that I won't be able to handle the western trips anymore.
    Thanks for any insights you can offer.
    I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.

    DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.


    I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.

  • #2
    Where I live the altitude is something like 400 feet. When we went on vacation to Nebraska we drove. One night we stopped in Wyoming where the altitude is something like 7,000 feet and we decided that since we'd been sitting in the car all day, we'd walk the two blocks from out motel to the restaurant for dinner. We were both totally out of breath and aching all over by the time we got there. Going back wasn't as bad since it was slightly down hill. When we got to our destination at 4,000 feet, we had to take it a little easier, but we did okay.

    When we got home, we talked to our doctor and he said we needed to make big altitude changes a little slower. If we had planned five or six days for the trip, with full day stops, it would have been better for us.

    Interestingly, when my father was alive and visited in Oregon, he felt like there was pressure on his chest from the low altitude and it took him several days to acclimate.

    Donna
    Stay safe


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    • #3
      I don't know if altitude causes problems with our bladders. What I have heard is, if you don't take it easy and drink lots of water the first couple of days at very high altitudes, you can come down with altitude sickness. I understand that it is very painful and you feel very ill.
      Sharon

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      Where I can be found most days.



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      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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      • #4
        Originally posted by ICNDonna View Post
        when my father was alive and visited in Oregon, he felt like there was pressure on his chest from the low altitude and it took him several days to acclimate.
        The town I live near is at 1800', but I spend a lot of time in the mountains (6000 - 7000' range). My home is at about 3000'. When we go to visit my MIL on the coastal plains the pressure on my chest drives me nuts. I've always blamed it on the humidity, -it never crossed my mind that the low elevation might have something to do with that feeling of heaviness I experience there.

        Changes in elevation don't seem to affect me IC-wise though.

        Vicki
        "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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        • #5
          Re: Altitude

          I am staying at 4,980 ft altitude. I already established all my other inflammatory areas are worse. Now my IC is extremely painful even thou I am on elmiron

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