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Flying Tips for IC

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  • Flying Tips for IC

    As a regular flyer and sufferer of severe IC, I thought I'd share some handy tips for flying with IC.

    1. Prepare for and allow time for bathroom breaks. Most IC patients know how often they need to use the restroom, so plan ahead before your trip and allot the time for these extra stops, whether it be on the drive to the airport or in the airport itself.
    -- Many airports have maps available, so mapping out where bathrooms are should be pretty easy.
    This will help save time and stress!
    2. Wear comfortable clothes! Travel with IC is hard enough, and clothing can be a trigger for a flare.
    3. If possible, arrange for an aisle seat near a restroom ahead of time with your airline. If scheduling online, look for a box to check that indicate that you have a disability and that you need to pre-board because of special seating due to an “invisible” disability.
    -- I recommend you also call the airline directly to ensure your needs are met! There may be
    provisions or 'fine-print' not disclosed during the online booking process.
    -- Many airlines have specific rules about mandatory 'stay seated' periods, but if you are upfront
    and communicate well ahead, you may be able to receive accommodations despite these rules.
    4. If flying international, also ask about special meal options and explain your limitations ahead of time!
    5. Collect documentation
    -- Doctor's note explaining your condition
    -- Reading material from the ICA of IC Network
    6. Consider bringing Restroom Access Cards (Can be purchased from the ICNetwork Shop) or wearing a Medical Alert bracelet so you can potentially skip lines to get to the restroom asap! This is particularly helpful during high travel seasons when lines will be long everywhere.
    7. Don't forget to stay hydrated! It's tempting to limit liquid intake during travel to make things more convenient, but it can cause flares for many, including myself. While limiting liquid intake slightly isn't necessarily a bad idea, be careful. You'd be surprised how much it slips your mind to keep drinking during the hustle and bustle of air travel and airport navigation.
    8. When you arrive at the airport, notify your gate agent. Depending on the airline, you can be guaranteed early boarding in order to ensure a seat near a restroom
    -- Even if you've called ahead, it's a good idea to also speak with your gate agents!
    9. If you feel comfortable, when you board the flight, introduce yourself and inform your flight attendants of your condition.
    --Again, some of the airline's requirements regarding mandatory 'remain seated' periods can be
    worked around if flight attendants are aware. It's not a guarantee, but communication is key!
    10. Consider bringing a pillow to sit on to minimize vibrations during turbulence, if this is a trigger for you.
    11. Bring 'on-hand' medications you may need during the flight to relieve any potential unavoidable symptoms you experience during the flight
    -- Don't put them in a carry-on. I recommend you have them on a small pill box/pouch on your
    person for quick access!
    12. And remember, do your best to enjoy your travel, however complicated IC may make it! With planning and being proactive, travel can still be fun and adventurous, even with IC!
    Diagnosed with severe IC and Endometriosis in 2016
    Medications: Elmiron, Elavil, Myrbetriq, Uribel, Valium, Baclofen, Percocet
    Surgeries: Laparoscopy, Hydrodistention (2)
    Procedures: Regular bladder instillations
    Therapies: Pelvic Floor Physical Therapy 2x/week, homeopathic home-care, yoga and massage

    Helpful Links:

    Patient Help: http://www.ic-network.com/patientlinks.html
    IC Diet: http://www.ic-network.com/patient-re...-introduction/

  • #2
    Re: Flying Tips for IC

    Thank you. The only thing I think of to add is to be sure to have some IC safe snacks in your purse.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: Flying Tips for IC

      For security I often go through the handicapped/flight crew line.

      I just get in the line, it is shorter, if questioned why I explain, I can not stand In a line more than 20 mins without having to leave to use the restroom which is true for me.

      They have no provision for getting out of line to use restroom and then getting back into line, where you were.

      They don't usually even question this.
      My are with you all. May you all find a way to peace and joy in your lives.

      Comment


      • #4
        Re: Flying Tips for IC

        Donna, good one! I forgot to add that.
        Mothergoose, I am always TSA pre check due to my job, so I've never had an issue either, but what you do is absolutely an option as well!
        Diagnosed with severe IC and Endometriosis in 2016
        Medications: Elmiron, Elavil, Myrbetriq, Uribel, Valium, Baclofen, Percocet
        Surgeries: Laparoscopy, Hydrodistention (2)
        Procedures: Regular bladder instillations
        Therapies: Pelvic Floor Physical Therapy 2x/week, homeopathic home-care, yoga and massage

        Helpful Links:

        Patient Help: http://www.ic-network.com/patientlinks.html
        IC Diet: http://www.ic-network.com/patient-re...-introduction/

        Comment

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