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Ok, I'm sure this has been talked about before but when do you tell someone you're interested in about the condition? I've been spending some time with this guy, and I'd like to share more about what's going on in my life at the moment, but I don't want to scare him away. He's also really into hiking and camping and actually asked me to come camping with him and a few friends. I'd like to go, but am thinking I'd probably better decline until my bladder calms down a little. I'm gone hiking before without problems but I'm having a really bad week this week. Don't really want to be running into the woods to pee every hour while I'm up in the mountains. Thoughts?
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That's not easy to answer. When you feel comfortable telling him is probably a good time to let him know. It's okay to decline if you don't think you're up to camping --- and you could just tell him you're not feeling well. It has to be your decision.
Once he knows, it just might be easier for both of you.
Warm hugs,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Thanks Donna! I'm going to see if I feel any better tomorrow but I may be better off canceling at this point. I cheated on my diet over the weekend and am really paying for it. I thought I'd maybe have a day or two of feeling bad, but now it's halfway through the week. Newly diagnosed and still figuring out how my body reacts to everything. It can be frustrating at times...Comment
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Maybe it's just me, but camping just sounds like a nightmare for anyone with IC! If you end up going, he's going to find out whether you want him to or not because likely you'll be stressed, which may cause more frequency, etc. I would decline, and if you're feeling like it's too soon, don't say anything yet. I think Donna's got it right.----------------------
-Amanda
34 years old, bladder symptoms all my life
diagnosed with PFD and VV October 2009; IC May 2010
Current meds:
Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
Other past treatments:
IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
Tried and didn't work:
Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupunctureComment
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Yeah, I told him I wasn't feeling well and it was probably a bad weekend for me. I actually went camping for 3 nights about a month ago with no problems. When I stick to the diet and treat myself right my frequency goes down to almost normal and I don't always have to get up in the night. This week has just been awful though, almost as bad as when it first started. Hopefully a few more days of taking it easy and I'll be back to normal again. I've learned my lesson though, no more sneaking coffee and alcohol into my diet... geez...Comment
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i also wonder when i should tell someone. i feel like telling everybody because it's what's on my mind. i worry that it might scare some people away, but i guess that just weeds out the bad seeds early. maybe by being upfront about it i'll waste less time with people that are not invested in me.lucky to live in hawaii but having a hard time and have a lot of questions.
vesicare
detrol la
pyridium
ditropan
buspirone
?(new medications)
chinese herbs: golden form with rehmannia
triggers: alcohol, coffee, soda, chocolate, citrus, sex, spicy food, soy, running/jumping, pms, birth control pills, stress, and lack of zzz.Comment
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I struggle with this problem, too. I'm 24 and single, but I do wonder when I'd need to tell a guy, and how awful it would be if someone went out with me until I told them, then left, OR dated me for a while and then left because it'd be too 'difficult' to deal with or whatever. I've heard some bad stories. I realize that the guys who'd leave are probably guys I'd better off without anyways, and good riddance to bad rubbish and all that, but it'd still be a major bruise to the self-esteem. Doesn't exactly make a gal want to jump back into the dating pool.Comment
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I just got the notification that someone responded to this old thread and wanted to respond with some encouragement.
I actually recently got married, and not to the guy who this post is about. My husband is a wonderful person and the fact that I have a chronic illness did not scare him away whatsoever. I ended up telling him sooner than I thought I would. We had been seeing each other for perhaps 3 weeks at the most. I knew it was the right time to tell him when I felt I couldn't go further in the relationship until everything was in the open. Give it time. The right person will not care, truly! Hope everything works out for you!Comment
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Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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