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  • no sleep!!

    anybody else can't sleep?! hate the feeling!

  • #2
    Re: no sleep!!

    Have you tried Elavil/Endep. Guaranteed to at least get you to sleep for a while.
    UTI 3/2015
    IC ,PFD
    prescribed meds: Endep 60mg, Elmiron 400mg, BC. Enablex 7.5mg.

    Supplements: Chitomur peptide, colostrum, Echinacea, liver detox swisse, calcium citrate, glucosamine, Psyllium Husk.

    Daily diet: Breakkie- oats with chia seeds and no fat milk. Post workout-turkey breast with mixed veggies. Lunch-raw green soup with rye roll and handful of peanuts/almonds. Dinner- changes but meat and veg. Dessert-banana and sugar free custard (homemade) or banana and apple bake with almonds cinnamon and honey with a dollop of coconut cream.


    Tried: tramadol, cystoprotek, multi right, diazepam, vesicare, Ditropan, mirabegron, Flomax, lyrica, progesterone.

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    • #3
      Re: no sleep!!

      Sleep deprivation was one of the hardest parts of this condition. I wasn't able to take Elavil because I had the opposite effect of sedation and it caused insomnia in me. Hydroxyzine helped as did sleeping with a heating pad on my pelvic area, warm epsom salts baths, Ativan at times, and pelvic floor stretches before bed. Lack of sleep is no fun!

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      • #4
        Re: no sleep!!

        Thank u all so much I will look into these meds!!

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        • #5
          Re: no sleep!!

          When I can't sleep, I find that if I do something like reading or even watching a movie can help me relax. If I lay in bed trying to sleep, it has the opposite effect. I'm retired so I can sleep late --- this morning I got up at 8:15 after I watched a movie that was over a little before midnight.


          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            Re: no sleep!!

            Thanks Donna!!! 😊 I'm going to try to read a bit right now actually....I recently checked out Gone With the Wind from my local library and I'm loving it! (:

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            • #7
              Re: no sleep!!

              I take hydroxyzine at night along with Ambien, anxious to start the Elavil and hope it works as well as it did for you
              Have had symptoms since March 2010
              Have tried: Ditropan, Detrol, Aloe Vera, Uribel, Myrbetriq, Vesicare, others I can't remember
              Diagnosed Jan 2016, with cysto/hydro,(no hunners) worked great for 4 months, another hydro in July
              I just started drinking Aloe again and taking hemp oil which is getting great reviews!!
              25mg hydroxyzine before bed,
              25(was on 50) mg Elavil before bed, now on 400mg Elmiron, since about Sept.
              valium suppositories when needed
              Ambien before bed
              for a CURE,

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