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Thankful for my fiance

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  • Thankful for my fiance

    We've been together for a long time now with a very short breakup in there somewhere, and we've been living together in our home for over 2 years. He's seen me go from the healthy, perky little RN to this homebound sick person that I've become. He's been so sweet lately with all my aches, pains, complaints and is one of the very few people in my life that knows I have severe pain and believes everything I say. He's gone to many of my doctor's appts with me and is planning on going to my Rheumatologist appt about the Lupus. He's shown up at my pain mgmt appts when I didn't even know he was going to come, just because he wanted to make sure my doctor took me seriously when I said I needed an increase in my pain med.

    He wrote a post on this board for me when I had a mental collapse over a stupid Dr. Phil show on moochers...he's just there for me.

    Today he called me 3 times to make sure I was doing ok on the prednisone and just wanted to know how I was feeling.

    I just wanted to say how lucky I am that I have him in my life. I really don't know what I'd do without him! Just when I think my life is in ruins he pulls me back to reality and lets me know that there really is hope out there for me.

    Sandy
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

  • #2
    And that is what a good partner should do!!! Kudos to Tom!!!!! (and give him big squishy hugs from me as well for being so great!)
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

    Comment


    • #3
      That's great, Sandy... you definitely deserve someone as sweet as Tom is!!!
      ****
      Jen

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        So glad you have Tom to take care of you and support you! Your post choked me up!!

        Comment


        • #5
          Sandy,

          I am so glad you have such a caring person in your life..He sounds like such a great man,
          But you deserve to be treated good.. I know my husband has been my biggest support, I dont know what I would do without him...
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            thats just wonderful
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment


            • #7
              I know how important this is when fighting this disease and the others that follows along with it. I spent yrs with a man that did not understand (did not know it what IC at the time) to my wonderful hubby now.

              I am so happy that you have a supportive and wonderful partner and I know this will continue for the both of you:woohoo:
              God grant me the serinity to withstand the days ahead!!!

              My myspace link...
              www.myspace.com/patricia_luvs_matt


              Patricia

              In Memory of My Father (Lawerence) 1/25/2007

              Procedures:
              Interstim Sept 2001
              1st InterStim Removal May 2005
              2nd Interstim Implanted May 2005
              2nd InterStim Removed March 2007
              Hysterectomy 1999
              Tubes Tied 1997
              C-Section 1996


              Me and my kids


              Taylor (my daughter) Me and my daughter My son Cody and Taylor

              Comment


              • #8
                He's so wonderful. You are very blessed in many ways. Can you imagine going through this illness alone? God blessed you for sure.

                HUGS to you both!
                http://www.TheCraftyEwe.etsy.com

                Comment


                • #9
                  Sandy, I am so happy that you have someone that really cares about you and is there in a supporting way. Sounds like a really sweet person.

                  Trishann

                  Comment

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