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  • Thank God It's FRIDAY!!

    I am absolutely wiped out and I have only been to work 2 days this week (yesterday and today). I think I was definitely right to ease back into it after surgery by going back for just a short week this week...there is no way I could have dealt with a full week yet! Phew!!!

    I even left a bit early today; the boss is out of town, I finished my experimental stuff early, and then, instead of starting something else or doing a literature search, I just decided to leave at 3:30 and come home and lie down. My incision area feels sore... not like infection, just like the muscles in there are sore and still trying to get used to the fact that there is a hunk of metal in me.

    But you all will NEVER GUESS what came in the mail all of a sudden (in addition to my Medtronic medical alert card -- two weeks to the DAY of my surgery, I might add, just like my Medtronic rep said).

    A get-well card, signed by my fellow lab workers. I do not know what possessed them, since I have been BACK TO WORK already... but at least they did something. Late, but still a nice thought (even if my boss's secretary probably bought the card and made them all sign it )....
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    I am with you that's it's Friday... let's all give a big sigh of relief! *sigh* And I am soooooooooooooooo happy to hear they sent you a card! That is great to hear, and yeah, better late than never eh? Keep it a frame it, lol.
    Hugs,
    Tracey
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!



    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:
    http://www.ic-network.com/diet/2009icdietlist.pdf



    Dx's:
    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Others:
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS

    Comment


    • #3
      I vote for framing it, also. Glad you are home and resting. I hope you aren't going to do anything too strenuous this weekend.

      TGIF!!!!!!!!!!
      Sharon

      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

      Where I can be found most days.



      Link to the ICN Patient Handbook:
      http://www.ic-network.com/handbook/

      Link to the IC Diet:
      http://www.ic-network.com/diet/


      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #4
        Hi,

        I am new to the board. I am glad it is Friday also. I had my Hydro Tuesday and confirmed IC. I have been in pain all week. I don't like taking the percets because they depress me. I will meet with my doctor on the 12th of March for a plan. I have started the IC Diet, but it seems overwhelming right now.

        To SharonA, I lived in Memphis for most of my life. (30 years). My moms and oldest son still lives there...
        Meds on now:

        dextro 10mg

        5000mg Vitamin D- when tested, I was sooo low.
        Compound Hormones- Had hysterectomy when 24, ovaries out 37

        At night:


        4mg Zanaflex- Fibro & PFD
        plendil- Raynalds

        I have Fibro, IC, IBS, PFD, Raynauds.

        Tried:

        Past Meds
        Lexpro- changed to Cymbalta for better pain relief –off both
        Ultram – three times a day. Helped , I was tired of always being so tired.
        Elmiron-took for a year-
        Topamax-Did not need anymore since on dextro.
        Atarax- did not need anymore

        Pictures: Hubby & Me, Ozzy, My three Sons!!
        What a proud Mother I am!!



        .

        Comment


        • #5
          I also lived in Jamestown, NC after I left Memphis for 2 years. Been in KY the last 5 years...
          Meds on now:

          dextro 10mg

          5000mg Vitamin D- when tested, I was sooo low.
          Compound Hormones- Had hysterectomy when 24, ovaries out 37

          At night:


          4mg Zanaflex- Fibro & PFD
          plendil- Raynalds

          I have Fibro, IC, IBS, PFD, Raynauds.

          Tried:

          Past Meds
          Lexpro- changed to Cymbalta for better pain relief –off both
          Ultram – three times a day. Helped , I was tired of always being so tired.
          Elmiron-took for a year-
          Topamax-Did not need anymore since on dextro.
          Atarax- did not need anymore

          Pictures: Hubby & Me, Ozzy, My three Sons!!
          What a proud Mother I am!!



          .

          Comment


          • #6
            Jen

            Dear Jen,

            It's always nice to know that our co-workers thought of us during our surgeries and recoveries, even if it was late....

            I do hope now that it's Friday and the workweek is behind you that you will get some much needed rest! You can tell Paddington that he needs to take extra special care of you this weekend.

            I'm thinking of you always Jen!

            Kara
            Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

            "One hour at a time, this was NOT my American Dream but it has to work out somehow."

            I also have some journals of my journeys, past and some present at:
            http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

            Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

            Comment


            • #7
              I'm so glad you got that card. I have to wonder whose desk was hiding it for the days before it got mailed.

              And we used to call Friday "Poet's" day, which stands for p on everything, tomorrow's Saturday!

              Happy POETS day!

              Hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                LOL... Donna, that is hilarious... I am going to have to remember that one!!!! I love it.

                Kara, Paddington is cuddling on Mama's lap right now. Throughout this whole thing with the InterStim, he has completely been his Mama's cat -- he's completely quit sitting on my hubby and is always on my lap or laying next to me on the bed! He's definitely a good nurse.

                ngazerro, I used to live in Memphis too... but we moved to NC almost 2 years ago now so that I could take a job here.
                ****
                Jen

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  glad it is the end of the week for you too..

                  Donna LOVE IT thanks for sharing.
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment


                  • #10
                    Sarojini, thank you for the welcome. I really liked NC when we lived there. We lived close to Greensboro, in Jamestown. I liked it a lot better than KY. The only thing I did not like it was far from my family.
                    Meds on now:

                    dextro 10mg

                    5000mg Vitamin D- when tested, I was sooo low.
                    Compound Hormones- Had hysterectomy when 24, ovaries out 37

                    At night:


                    4mg Zanaflex- Fibro & PFD
                    plendil- Raynalds

                    I have Fibro, IC, IBS, PFD, Raynauds.

                    Tried:

                    Past Meds
                    Lexpro- changed to Cymbalta for better pain relief –off both
                    Ultram – three times a day. Helped , I was tired of always being so tired.
                    Elmiron-took for a year-
                    Topamax-Did not need anymore since on dextro.
                    Atarax- did not need anymore

                    Pictures: Hubby & Me, Ozzy, My three Sons!!
                    What a proud Mother I am!!



                    .

                    Comment

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