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  • She makes me so proud!

    This is actually a story about my daughter, but I thought it would bring a smile to your faces! My oldest daughter is 7 years old. While she has ADHD, she has been doing wonderful lately on meds and with lots of help and support at school and at home. Last year my younger sister donated her long hair to a charity here in the U.S. that makes wigs for underprivledged kids with hair loss related to illness or accidents. Brianna was only 6, but she really wanted to donate her hair too. Well, it took a year, but today she was finally able to get her hair cut. The braid is over 1 foot long and is going out in the mail on Monday. I wanted to share her story and pictures here, because I thought it was important for me to let others know how greateful I am that my children are growing up learning to care about others and wanting to do something, no matter how big or small, to help other kids.
    Thanks!
    Click below to see before and after pics!
    http://i49.photobucket.com/albums/f2...nnabefore1.jpg

    http://i49.photobucket.com/albums/f2...annaafter1.jpg
    Rachel
    DX's:
    IC; PFD; possible Fibromyalgia; IBS;

    Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

    I've Tried:
    three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
    Currently using:
    Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
    Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
    I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!


  • #2
    You should be very proud of her - what a special child and what an amazing thing to do for kids in need. Congratulations to you for raising such a caring child.

    Comment


    • #3
      Sounds like you're doing an excellent job of raising her with good values. Good for both you!
      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
      Wishing you happiness and good health, and all the best out of life.

      Peace, Carolyn
      ___________________________________________________

      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


      On the Beach with IC

      Comment


      • #4
        You have every reason to be proud! What a beautiful and selfless act of kindness and generosity! It sounds like you have done a wonderful job of teaching them to think of others. Kudos to your wonderful daughters and Kudos to you too for raising them the way you have!

        Comment


        • #5
          Well, I am still trying to get my 2 year old to share her toys, but that will come in time! LOL! I can't take too much credit, she is by nature a very caring kid, being able to focus just makes it easier for her to come up with ideas and see things other kids deal with. She likes those shows on Maury, etc. with the kids who are being teased or kids who are sick. I want to her to realize that even if someone looks different that are still very much like her. She knows first hand what it like to be teased and it can be rough. I think being around a sick Mom all the time has helped her be alot more patient and kind.
          And she is so cute too!
          Rachel
          DX's:
          IC; PFD; possible Fibromyalgia; IBS;

          Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

          I've Tried:
          three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
          Currently using:
          Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
          Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
          I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

          Comment


          • #6
            she is just beautiful.. That is wonderful she wanted to do this..

            My daughter wants to do this, could you pm me with all the info?
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment


            • #7
              She's beautiful inside and out!
              http://www.TheCraftyEwe.etsy.com

              Comment


              • #8
                It sounds like she also has a wonderful mother. You both deserve to be proud.


                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

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                • #9
                  What a sweet and precious little girl I know you just have to be so proud of her kind little heart Her mommie is doing a great job raising a compassionate little one
                  Miss Bessie

                  Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                  Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                  Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

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                  • #10
                    Rachel,

                    Your daughter is a very sweet and giving girl.. I dont know of anything else she could have done that wouldnt have came straight from the heart as that.. I know this benefits alot of cancer paitients that have lost thier hair due to chemo...
                    Your daughter is a true inspiration
                    Hugs
                    Ronda

                    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                    Link to Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Diet Reference Sheet:
                    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                    Meds I have Tried:
                    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                    Lexapro< Bad reaction to this med!
                    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                    Dx With IC in Nov 2006 with Hydro/Cysto
                    Hydro/Cysto Caused Bladder to Rupture.

                    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment


                    • #11
                      Aaawe what a sweety pie!
                      current meds:
                      cytotec 200mcg twice daily
                      toprol
                      allegra

                      ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

                      dx: hashimoto's thyroiditis 1998
                      dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
                      dx: endometriosis 2003
                      dx: innapropriate sinus tacchicardia 2005

                      meds tried but failed:
                      elavil (6months)- severe tachycardia
                      elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
                      a bunch of others



                      Me and my best friend's baby (also my Godson!)

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                      • #12
                        *Applause...Applause* for Brianna.
                        Sharon

                        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                        Where I can be found most days.



                        Link to the ICN Patient Handbook:
                        http://www.ic-network.com/handbook/

                        Link to the IC Diet:
                        http://www.ic-network.com/diet/


                        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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