I am So Thankful for All of You!

[littlemyrn ICN Member Find all posts View Profile Close littlemyrn]

First of all I want to say thank you to all who have given me support through my struggle with IC. I have found such comfort here. But I have made a decision to go off my meds, after going to my GP on Monday, and he wanting me to add Paxil to help gain weight and taking it and feeling worse, so neasuated that I couldn't eat, I am tapering off all my meds, and sticking to the ic diet to see what happens. I have tried every treatment known to man for IC with no success, last hydro 2 weeks ago shows no worse but not any better. I look back and before being put on all these meds I actually felt better than I do today. So wish me luck. I will always have my pyridium and lortab here in case I get in a terrible way, but I hope that I will not have to even fill my scripts.

I have just decided to take control. I will do my home instills also, but those are not entering my blood stream, so I don't think they are messing with my body.

So again, thank you all for the support and great advice. I will check in here every now and again to see how everyone is doing. I feel I have made alot of friends here. Take care and hopefully one day we will all be pain free.

Marilyn

[leelee88 Support Volunteer Find all posts View Profile Close leelee88]

((((((((((hugs)))))))) and good luck!!

[**Angie** ICN Member Find all posts View Profile Close **Angie**]

Your very brave--I wish you the best. angie

[SandyRN ICN Member Find all posts View Profile Close SandyRN]

You really are very brave. I understand about paxil making you feel worse. I took it for about 6 months and had a terrible time coming off of it. I hate to see you go...it sounds like you are leaving us, and I'm not sure why. No matter the reason, I wish you luck and hope that you do keep in touch with us, and let us know how you're doing. I hope that you feel better discontinuing all your meds (except the pyridium and lortab). I'll miss you, so please keep in touch. Know that we are here if you ever need anything, and if you do feel better, please let us know that too!

Good luck and !!!!

Sandy

[littlemyrn ICN Member Find all posts View Profile Close littlemyrn]

I just decided that I needed a break from focusing on my illness. I joined a message place, called Message Envy and went last night for the second time for reflexogy, it really helped me. I am already starting to feel better, getting all the toxins out of my body, yesterday I did pretty well only at to take 1/2 of lortab twice. My goal is to stop that also, but I am doing that slowly, so I don't have withdrawls or anything.

I was feeling so bad from all the meds, etc. and started thinking back before I was officially dx'd and I didn't feel this bad, I really believe that part was due to stress, going through a divorce, daughter quitting college, etc. But I finally am getting my stuff together, other than money being tight, and my goal is to get a job at least 30 hrs. a week this fall. I just told my GP I want my LIFE BACK and I decided that I have to make it happen. So I will continue with my messages and looking for acupunturist and back to straight tylenol and tens unit.

I will be here every now and again, but like I said, part of this a mind thing, and I believe if I am not focusing on this illness, maybe just maybe I will feel better. I had the greatest psychology teacher in college, he was dx'd with cancer and given 6 months to live, he practiced mind over body and taught us, and I am trying that also. He was still alive 6 years after the dx'd.

Thanks everyone. I love everyone here.

[humpieumpumkin IC Friend Find all posts View Profile Close humpieumpumkin]

Not to poke fun, but the IC diet is the best way to gain weight that I know of! I am so proud of you for taking a stand! Good luck and I hope this helps you!

Erika