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Doing Great!

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  • Doing Great!

    I have been off the boards now for about 2 1/2 weeks. I made the choice to detox you might say and get off the meds the doctors had me on. I had got to a really bad place where I didn't or couldn't function normally. I am pleased to say I am feeling better than I have in two years. I was officially was dx'd in early 2004 and gradually was put on more meds over time and with each new med I started getting worse. I looked back and realized that I felt better with minimal discomfort before all the meds. I have now been having sweet tea (being from the south that is something I really enjoy) and even had a little spagetti sauce (about a tablespoon) and no flare. I am now actually planning events and looking forward to them. I can say going through the detox was no fun, but I made it on my own and I am happy that I did it.

    The only thing I take is my hormone, and an occasional lortab for the pelvic pain. I am gaining my weight back, up to 107, hopefully I will get back to my normal weight of 115 soon. I was looking so unhealthy.

    So anyway, again thanks for all the support I have got here in the past and hope I am on my way to getting my life back.

    I spoke with my URO and told her what I was going to do and give it two months to see what happens and she supported my decision. I hope now I will only have to go in twice a year for my hydro, I will continue to do those, because right now after having mine at the end of May I go about two to three hours between having to go the bathroom. Yea!!!

  • #2
    I hope you continue to do well. I definitely understood about RX. I was on a medication that was doing a number on me but yet I wasn't able to get out of the house without it.

    When my doctor put me on pain medicine due to other illness I was able to get off of this awful medicine I was taken. I am doing better.

    I am happy that detox worked for you and again I hope it continues to do so.

    Take care, Trishann


    • #3
      I'm so glad you're doing well. Thank you for sharing your good news.

      Stay safe

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      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        That's wonderful! I hope you continue to keep up the success! I felt much worse when I was on a combination of different medications. When I weaned myself off of them to conceive I felt wonderful (overall, IC was still a pain) but my energy rose and my depression lessened. Amazing isn't it? Good luck!
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


        • #5
          wow, that's so great. i hope we ALL get to this point!
          (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

          Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

          I'd like to be on House, MD as a medical mystery.

          Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

          Connor & Mommy by the tree:

          Connor with happy!

          I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

          Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

          I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!


          • #6
            That's good news. I hope you continue to feel better and better.

            Shopping??? Did someone mention shopping? I'll get my hat... ;-)

            Where I can be found most days.

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            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.