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Lindsey is Back

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  • Lindsey is Back

    I piggybacked this on the end of another thread, but just wanted to let you know Lindsey is home(on the couch watching PBS by choice) and doing ok. We are having readjustment issues(as I expected to after all the stuff the poor little kumquat has been through)but every butterfly kiss and hug she asks for reminds me how blessed I am to be a Mommy, especially hers. Here are some other things that remind me how grateful I am that God has blessed me to raise another life:

    1. Kissing boo-boos and just that making things better
    2. Cuddling together and having her look at me in the eyes(huge with autism)and say "I love you Mama, you are the best"
    3. The 9 millionth time she asks me for a hug.
    4. When she asked me, "Am I living in Florida with you forever?"

    Just a few thoughts, may sound chessy, but the cheesy things become so important when they are taken away and you realize you may not bet get them back.

    Thanks again to all of your support prayers and love.

    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

  • #2
    I'm so proud of you for having the strength and courage to do this right. You deserve every hug and every I-love-you you are getting!

    And one from me too,
    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3
      I am so glad she is home. I am glad you had it in you to keep fighting after he kept knocking you back. Congrats to you and Lindsey.
      'The will of God will never take you where the Grace of God will not protect you.'


      • #4


        • #5
          You know how happy I am for you both!! She's lucky to have you as her mommy!

          *IC-- Summer 2004; PFD--October 2005
          *Fibro--Fall 2000; CFS-- Fall 2000
          *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

          Total Abdominal Hysterectomy--adenomyosis--9\08

          04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


          • #6
            Welcome home little Kumquat! It's the cheesy things that you and your mommy will remember most... be cheesy every chance you get!!!

            Congrats Barb, having had "the fight" with my own ex and not seeing my babies for over 2 years, I know the pain and frustration you've had to deal with. It's over now, and the minor (or major) re-adjustment issues are just that... they too will pass.

            Good luck to both of you, and with the new job also! (Ok, so I'm a bit behind...)



            • #7
              I'm so happy for you and Lindsey. I can't even imagine how hard it was for you to be without her.
              All of us mommies love those cheesy little moments, that's what we live for! Enjoy every minute of it!

              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
              I have tried every oral medication as well as rescue instills and DMSO.

              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
              Also proud mom to the best Bullmastiff on earth, Claus


              • #8
                That is so wonderful, Barb!!!! I wish you both a wonderful, happy, love-filled life...but I know you'll have this since you have each other.

                And those thoughts--they aren't cheesey--they are what makes motherhood so amazing.

                Hugs to you and your little angel!
                Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


                • #9
                  barb...i am sooooooooo happy for the both of you. you're a trooper and a wonderful woman and i'm just so happy for ya!

                  (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

                  Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

                  I'd like to be on House, MD as a medical mystery.

                  Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

                  Connor & Mommy by the tree:

                  Connor with happy!

                  I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

                  Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

                  I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!


                  • #10
                    Such a blessing to have her home where she belongs

                    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

                    Link to Patient Handbook:

                    Diet Reference Sheet:

                    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                    Meds I have Tried:
                    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                    Lexapro< Bad reaction to this med!
                    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                    Dx With IC in Nov 2006 with Hydro/Cysto
                    Hydro/Cysto Caused Bladder to Rupture.

                    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

                    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


                    • #11
                      I'm so thrilled that she's where she belongs. PTL!


                      • #12
                        Yay!!!!:woohoo: :woohoo:
                        Tons of support,

                        IC angel helping families in need for the holidays. [email protected]


                        • #13
                          That is just wonderful to hear.
                          I wish you and Lindsay all the blessings in the world.


                          • #14
                            I am so proud that she is with you. I don't blame you for wanting to treasure all of the little special moments. They grow up fast and trust me you will always have those special little memories of them growing up. Keep up the good work. You are a great little mommie
                            Miss Bessie

                            Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                            Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                            Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life


                            • #15
                              Barb and Lindsey,

                              I am so happy that you are finally together again. It warms my heart to know that there are two VERY Happy people in Florida right now. I'm sure you are both on your way to bed. I hope you both have sweet dreams and wake up to a bright sunshiny day tomorrow.

                              Love and Hugs Always,

                              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                              I also have some journals of my journeys, past and some present at:

                              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.