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  • Naps!

    I am grateful for naps!!

    Ever since my cysto/hydro on Thursday I have just been totally wiped out. In addition to bladder pain, my muscles have been sore all over... the nurse who called me last night from the surgical service said it was probably from the anesthesia. Even the muscles in my chest & lungs hurt... I think that was from being on the ventilator during surgery. In addition I've had frequent headaches and I can't tell if THAT was the anesthesia too, or because I started my Elmiron yesterday. Today, finally, the headaches seem to have gone away.

    I went out on a quick errand to Walgreens and the grocery store with my husband today because I was feeling a bit better... and got so exhausted that I flopped into the recliner when I got home and fell asleep within 3 minutes of doing so.

    The nap did me a lot of good! 'Course, it helped that when I woke I discovered that my husband had covered me in my favorite blankie/pillow and that he already had dinner going

    I love naps...


    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    that was very thoughtful of your husband i'm glad you are feeling some better today. You are a lucky lady to have your husband to take care of that is so sweet. Hope dinner was good.
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.

    I have IC, but IC doesn't have me anymore!


    • #3
      Jen~that is so sweet that it's got me've got a real gem wink
      Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


      • #4
        Oh Jen, what a sweetie you have in your hubby, way to go. Enjoy your naps, hugs Iris. hi
        Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


        • #5
          What a sweetheart your husband is, I have one like that too, it sure makes handling IC easier.

          One day at a time