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  • #16
    I'll be thinking of you and hoping for the best!

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    • #17
      Wishing you all the best.

      take care
      diana
      (\__/)
      (o.O )
      (> < ) This is Bunny. He's on his way to world domination.

      Comment


      • #18
        Diagnosed w/IC 7/18/05
        Dx'd w/Endo 5/5/06
        CFS
        IBS

        Current Treatments:
        Elmiron-100mg 4x's a day
        Atarax-10mg's 2x's a day
        IC Diet
        Oxycontin 40mg-Only when i can't take it anymore!



        Laparoscopy done, Endo lasered, Let's pray it stays away!



        "If you haven't gotten all the things you want, be grateful for the things you don't have that you don't want."

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        • #19
          I am also praying for you and your family

          I think you all are such an amazing family and I pray the courts will place that precious little boy with you all where he belongs. I have a friend of mine that is going through the same thing right now. She is trying to get custody of her niece and nephew because her family member has been on drugs and is a terrible parent. I know the rollercoaster ride of emotions you all are on. It takes pretty amazing people to handle the stress and all that goes with this.
          Just know that we are all proud of you and your family and are pulling for you too.
          Miss Bessie

          Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

          Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

          Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

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          • #20
            Cindy, you know how I feel about all of this and you deserve that baby boy and he deserves to be raised by you...the one REAL mom that he has and the one person in the world that loves him unconditionally. I think you're an for doing this and you know you've always got my support and !

            Hugs, Sandy
            *IC-- Summer 2004; PFD--October 2005
            *Fibro--Fall 2000; CFS-- Fall 2000
            *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

            Total Abdominal Hysterectomy--adenomyosis--9\08

            04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

            Comment


            • #21
              Tigger gal,
              Please know I am praying for you. It takes such a special caring person to do what you are doing for that beautiful little boy!
              Rachel
              DX's:
              IC; PFD; possible Fibromyalgia; IBS;

              Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

              I've Tried:
              three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
              Currently using:
              Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
              Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
              I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

              Comment


              • #22
                ****
                Jen

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #23
                  Don't worry, you guys are always in my prayers!!!!
                  Hugs,
                  Tracey
                  How do you eat an elephant? One bite at a time...

                  Harry arrived 2/23/09!



                  *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  IC Diet Cheat Sheet:
                  http://www.ic-network.com/diet/2009icdietlist.pdf



                  Dx's:
                  IC dx'd Nov 2004
                  Lymphocytic Colitis dx'd July 2005
                  Possible IBS
                  Current IC Meds
                  Vistaril 25mg in the evening
                  Previous IC Meds taken:
                  Cystoprotek - 2 caps 2x's a day
                  Elmiron, 100mg 3x's a day
                  Ditropan, 5 mg 3x's a day
                  Others:
                  Wellbutrin 150mg 2x's a day for Anxiety/IBS
                  Pepcid 40mg a day for GERD
                  Zytrec for Nasal Allergies
                  Align Probiotic daily for IBS

                  Comment


                  • #24
                    Thanks everyone, your support and prayers mean a great deal to us. This has been a very long jounery and a tough one at that. It would be easier if it was not family, then I would not have the guilt I feel over my niece.

                    Waterflow, don't kick your self over your niece. At that time you most likley could not handle the extream stress, and emotional rollercoaster of all of what is intaled. its ok ((((hugs)))

                    Octoberfarm,
                    give your friend a hug for me.. it is so hard to put your heart aside, and think with your head when it comes down to dealing with the family member of the childs bio parent.

                    You can go thru many trials and turbolence in your life time, but nothing compares to having to go thru the heart break of choosing to destroy ones life to save the childs. Not many people can do this.
                    My doctor told me, "Cindy, you are one hell of a women to put your self in this ppostition with all that is wrong with you. It is tough on a healthy person. Not many would do this for a stranger, much less a family member."

                    Its a choice I made and one that will follow me the rest of my life.. I do not ever feel I made the wrong choice. I sometimes cry and feel so bad for my niece, at a moms point of view, but the reality of all of this, I have lost all respect for her, and do not ever wish to see her again.
                    I don't want to go to court, I know what is going to happen, I am terrified that she is going to jump me. I am going to ask to be escorted out of the building... I just wish I could have some one walk me from my car inside..

                    You guys, thanks so much for listening to me, I have kept so much of this limited to just a friends for over a year, but now it has come to the point that the courts, foster care, and Jakes atty has exhausted all options to help her..
                    If any of you have any questions about what is going on, please don't hesitate to ask.. I am now willing to share what has happened, and now feel comfortable enough to do so..

                    Barb, ((((((((((((hugs, I know you do))))))))))))))))))
                    'The will of God will never take you where the Grace of God will not protect you.'

                    Comment


                    • #25
                      Tig...I agree, you are one great lady and Jake is one fortunate little lad.
                      Sharon

                      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                      Where I can be found most days.



                      Link to the ICN Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Link to the IC Diet:
                      http://www.ic-network.com/diet/


                      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      Comment


                      • #26
                        Thank you all ::bows to the ladies::
                        In the mist of all this I forgot to mention some possible good news. I was told that next Monday was president day and the foster care offices will be closed. She will not get to see him the next Monday and Court is the following Thursday. I am under the understanding that last Monday was Jakes last visit with her. The motion for permanency has been set for the 22nd, and I am praying the Jake's atty won't change his mind, foster care will not. If all stays the way it is then he won't have to go and see her again.....

                        on the down side, I called my sister, her mom and asked her if she was going to go to court, and tell her daughter that the foster care offices will be closed next Monday.. I know it is not my responsibility to "remind" her of anything, but I needed to say that... anywho... when I asked her to go (she has been to one court date in July and it took pulling teeth to get her to go) She told me she had no clue if she was, she can't make that decision right now. She don't know what the work schedule is.. (she only works 2 days a week if that, except during the holidays) I personally thing as a mother she should go, this is her daughter and her grandsons life/future... oh well... I guess I just need to get over her lack of concern.
                        Last edited by tigger_gal; 02-15-2007, 02:18 AM.
                        'The will of God will never take you where the Grace of God will not protect you.'

                        Comment


                        • #27
                          Tig...You are probably right that she has a lack of concern but, could it be that this whole situation is very painful for her and that is the reason she does not want to be there? Maybe, just a little?????? Whatever her reason, it is her loss.
                          Sharon

                          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                          Where I can be found most days.



                          Link to the ICN Patient Handbook:
                          http://www.ic-network.com/handbook/

                          Link to the IC Diet:
                          http://www.ic-network.com/diet/


                          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                          Comment


                          • #28
                            I hope so Sharon. I know she don't want her daughter at her house, and she diffently did not want Jake. I know she loves them but all we ever heard was complaint after complaint. She can't shower, shop, get gas, clean.. I manage just fine and so dose a million and one other people.. I guess I just have a lot eating at me, and desperately need to get a grip here. I have asked if she would like me to bring him over and she says no, I would love to see him, but at your house... few months back I was sick, and really needed her to come and get Jake. she thru a fit, and it came down to it I called my mom and my mom called her, she called me back and demanded to know why I wanted her to take the baby.. and heard about it for weeks after...
                            so its pretty much her nature to be like that. Lately all she has been saying is how she needs 48 hours just for herself.. she has a son who will be 17 and a boyfriend... I wish she had my life for one week.. so she will understand how "lucky" she is, health wise.
                            'The will of God will never take you where the Grace of God will not protect you.'

                            Comment


                            • #29
                              This coming from the kid perspective: I learned a long time ago that family isnt about blood relatives..its about who loves you and stands beside you. I havent talked to my real dad in ten years. (long story!). My step dad has stepped in and become my father. I call him by his name to his face (we met when I was 15) but in converstation, he is my dad. He is the one who loves me. He is the one that tells me he is proud of me. He is the one that helped me fix my car when I was a teenager. He is the one who taught me something that I still live by today "Cant never did nothing". It means that if you dont know your potential if you dont even try.

                              Sounds like you live by that also. You didnt know how this would all turn out. Yet you tried, and you WILL SUCCEED! You are a great mom to Jake. And yes..you are the one, like my step dad, who tells Jake you love him. You are the one who listenes when he is hurt. You are the one that is there for the little things day in and day out. You are his MOM. We here know that, and we arent around you every day. You are an inspiration to many of us. You go thru IC and all this court stuff. You are a hero.

                              I will keep you in my thoughts and pray that this all works out the way it should. Soon, you will be able to "officially" be able to call Jake your SON!
                              Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

                              I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

                              Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

                              I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!

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                              • #30
                                Thank you so much (((((((((((((hugs))))))))))))))
                                'The will of God will never take you where the Grace of God will not protect you.'

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