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  • #1

    My god mother passed away

    I just got off the phone with my Mom and she told me that my God mother, Aunt Eleanore just passed on. I believe she was 86 years old. She lived in Arozina. She was born and grew up in the roughest part of Chicago. She left Chicago 20 years ago when someone had broke into her home beat and raped her, and left her for dead. She lived a very rough life, however, she was the sweetest person I ever knew.
    I just can't believe everything going on in my life right now. With my siste calling and giving me the feel sorry for me crap and after finding out about my god mothers death, then having court tomorrow, I think I really need a break. I don't think I can handle too much more, my bladder is already hurting to the point I can't walk.
    sorry for moaning and groaning so much and taking up so much prayer request this week. THANK YOU for everything.
    'The will of God will never take you where the Grace of God will not protect you.'
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    • #2
      Oh Tigger((((((((((((hugs)))))))))))) I am so sorry.. I hope things start going better for you soon....
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #3
          I am so sorry to hear that. She sounds like she was an amazing strong woman who was such a blessing in your life. I am praying for you and I hope things calm down for you real soon
          Miss Bessie

          Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

          Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

          Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

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            • #4
              Im so sorry for your loss,Hugs Sandra
              "Never Give Up."

              To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

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                • #5
                  thank you..
                  'The will of God will never take you where the Grace of God will not protect you.'

                    Comment

                    • #6
                      Oh no Cindy! That is so horrible, and you're already so stressed out. I'm so sorry.
                      Christine



                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus

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                        • #7
                          ****
                          Jen

                          *Diagnosed with severe IC in 2004
                          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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                            • #8
                              Cindy,

                              I am so sorry for you loss. You are having one heck of a week right now. Please remember we are all here for you and behind you 100%. Sending you lots of prayers.

                              Hugs,
                              April

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                                • #9
                                  Sending you HUGE hugs - I am so sorry to hear about her passing!

                                  Do let us know how it goes today, eh?? Will be thinking about you and your family...

                                  BIG HUGS
                                  XOXOX
                                  Hugs,
                                  Tracey
                                  How do you eat an elephant? One bite at a time...

                                  Harry arrived 2/23/09!



                                  *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                  IC Diet Cheat Sheet:
                                  http://www.ic-network.com/diet/2009icdietlist.pdf


                                  Dx's:
                                  IC dx'd Nov 2004
                                  Lymphocytic Colitis dx'd July 2005
                                  Possible IBS
                                  Current IC Meds
                                  Vistaril 25mg in the evening
                                  Previous IC Meds taken:
                                  Cystoprotek - 2 caps 2x's a day
                                  Elmiron, 100mg 3x's a day
                                  Ditropan, 5 mg 3x's a day
                                  Others:
                                  Wellbutrin 150mg 2x's a day for Anxiety/IBS
                                  Pepcid 40mg a day for GERD
                                  Zytrec for Nasal Allergies
                                  Align Probiotic daily for IBS

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                                    • #10
                                      I am so sorry about your loss. Sending you hugs.

                                      Hugs, Trishann

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                                        • #11
                                          I hope your day goes well. I'm waiting to hear what you find out.

                                          Donna
                                          Stay safe


                                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                                          Have you checked the ICN Shop?
                                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                                          Patient Help: http://www.ic-network.com/patientlinks.html

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                                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                                           [3MG]

                                          Anyone who says something is foolproof hasn't met a determined fool

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                                            • #12
                                              thank you ... so much.. I am posting todays court hearing in my odesperate for prayers post.
                                              'The will of God will never take you where the Grace of God will not protect you.'

                                                Comment

                                                • #13
                                                  So sorry...sending hugs and prayers to you and your family


                                                  Minds are like parachutes-they ony function when they are open.
                                                  -Thomas DeWar-


                                                  ICN Newbie Volunteer


                                                  *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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                                                    • #14
                                                      Take care. I'll be thinking of you tomorrow!

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                                                        • #15
                                                          I'm sorry about your God mother. I'm also sorry so much is going on in your life right now. You do deserve a break real soon. I think that there is hope that this whole mess will be over soon just by what happened in court today. You're a tough lady...you'll get through it all! Get some rest and take care of yourself!!!

                                                          Hugs, Sandy
                                                          *IC-- Summer 2004; PFD--October 2005
                                                          *Fibro--Fall 2000; CFS-- Fall 2000
                                                          *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                                                          Total Abdominal Hysterectomy--adenomyosis--9\08

                                                          04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

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