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  • Amy.. A True Blessing

    I have noticed that there is a very special person on these boards that always tries to help all of us when we need a prayer or just a hug..

    But I have noticed when she is down or hurting she never comes to us and complains, she just tries to stay positive and keep her spirits up, even in her darkest moments..

    But I know at any given time. I could pm her or write her and shes always right there..She is a true blessing to this bored and whatever is happening in her life right now, I want her to know shes not alone and I am always here for her..And want her to know she is in my prayers..


    God Bless You Amy

    (ihurttoo)
    Last edited by leelee88; 03-06-2007, 09:44 AM.
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    Amy,

    I am right there with Ronda. Great post Ronda! You truly are a blessing Amy and you never complain or anything if something is wrong. I too am here if you need something.

    Lots of hugs,
    April

    Comment


    • #3
      Dear Ronda and April,

      Thank you both for your very thoughtful posts, both here and in the other thread. You have both always been there for me whenever I have needed you and neither of you will ever know how much that has meant to me. In fact, I saw both threads containing your posts a few minutes ago, but I was so overcome with emotion, that I had to look away for a few minutes and go read something else, so I could compose myself enough to write. You both moved me beyond words. Even now, I am struggling to get words to come out, because there just aren't any that encompass all that I am feeling. I am truly moved.

      Thank you both again for all that you do for me.



      Hugs,
      Amy

      Comment


      • #4
        Anytime Amy..

        When I first came to this site, you are the one who helped me through it, from getting dg with IC to loosing my dad.. You were there! and I will always be there for you, so please dont ever hesitate to ask if you need me..
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #5
          Amy,

          You have helped me many times and the chance to help you even a little is a blessing. Don't ever be afraid to ask - I can always listen.

          April

          Comment


          • #6
            Ronda, I am glad that I was able to comfort you some during that horrific time. I cant imagine dealing with everything you had to, one by one, let alone all at the same time! I am in awe of your strength!

            Comment


            • #7
              Amy, just wanted you to know that your posts often bring a smile to my face so I am one that agrees you are blessing
              Faith, Hope, and Love,
              Katrina


              I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              or find me on facebook http://www.facebook.com/kat671?ref=profile
              Be the Miracle! & Pay it Forward!

              [email protected] please contact me...I am here to help!

              Comment


              • #8
                Thank you, Katrina. I havent seen you around here much lately, and want you to know that we all miss you here. You have helped so many people here (both oldies and newbies). I still refer to several of your posts each time I flare, and can usually find something in your "bag of tricks" to help me get thru it. If that were your only contribution here, that alone would make you outstanding, but every day you have been here, you have helped someone in the same ways you have helped me, by either delivering critical information at a crucial time, or by posting support, comfort and hope at the exact right moment. I dont know if you realize how much you are needed here, but each day that you arent here, your absence is felt as strongly as your presence was. I hope you are okay. Please know that you are missed terribly.

                Hugs,
                Amy

                Comment


                • #9
                  Amy, you know how I feel about you!!!
                  *IC-- Summer 2004; PFD--October 2005
                  *Fibro--Fall 2000; CFS-- Fall 2000
                  *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                  Total Abdominal Hysterectomy--adenomyosis--9\08

                  04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                  Comment


                  • #10
                    Sandy and Octoberfarm,

                    Thank you both also for replying in the other thread. Just as when I read the others posts there, I was truly overcome with emotion. It made me cry to read what you guys wrote. I wanted to thank you over here instead of there, b/c I know that if I read it again, I will be torn up all over again. But, I want you both to know how much your posts meant to me. You have both always been there whenever I needed a kind word. Today was one of those days. That was the weird thing about seeing your posts, no one had any idea that I needed them today.

                    Thank you all again!

                    Hugs,
                    Amy

                    Comment


                    • #11
                      I agree Amy what you said about Katrina, she is truly missed.. She is another one here that has helped me and so many more..

                      Amy.. I know you are going to say im weird and im scaring you again..lol, but I had a strong feeling again you were needing a hug today, thats why I posted what I did, I just want you to know you are very needed around here and your prayers have touched so many of us..And I just wanted to give you something in return
                      Hugs
                      Ronda

                      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                      Link to Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Diet Reference Sheet:
                      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                      Meds I have Tried:
                      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                      Lexapro< Bad reaction to this med!
                      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                      Dx With IC in Nov 2006 with Hydro/Cysto
                      Hydro/Cysto Caused Bladder to Rupture.

                      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      Comment


                      • #12
                        Amy,
                        You are welcome.....I really meant what I said about you in the other post. You really fit this quote "Be kinder than neccessary because everyone is fighting their own kind of battle" Your kind words make such a difference to all of us here and we all appreciate you.

                        Sending you lots of thanks, gratitiude, and hugs
                        Miss Bessie

                        Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                        Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                        Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                        Comment


                        • #13
                          Since I have joined this site, I have thanked God for an Angel he sent to me named "Amy". Sweetie, you have done so much for each and every one of us that have joined up, what everbody else says about you is so very true and I just want to say thank you for always being there for me when I'm down. I will probably never meet you (in this lifetime, anyway) but feel that at some point I will know you for who you really are, and I believe you're an "Angel", Amy.
                          Lots of God's blessings on you, always, and you are in my prayers forever.
                          Curlette
                          Hugs,
                          Curlette

                          Drugs I use now:
                          HM Contin 12mg twice daily
                          2 mg Dilaudid for breakthrough pain
                          Temazepam for sleep
                          CES orally

                          Drugs I have used in the past:
                          Elmiron
                          Elavil
                          Gabapentin
                          Vagifem
                          Lomotil
                          Ativan
                          Buscopan
                          Demerol
                          Flexeril
                          Way too many to list!!!!!

                          Medical History:
                          Have had L4 laminectomy, L4,5 & S1 discectomies, cholecystectomy, appendectomy, gall bladder removed, nasal surgery for accute sinusitis, severe,endometriosis resulting in a total hysterectomy. Also diagnosed with IC, IBS, severe spinal stenosis, severe osteo-arthritis, I wear hearing aids in both ears due to an earlier "abusive marriage". I have Hepatitis C Type 1b, have had this for over 3 decades, this has affected my liver and immune system. Had a blood tranfusion when I was in the Middle East and we think that I got the Hep C at that time.They buy the "blood" there, and as it was so many years ago, they didn't even know the disease existed.I have lost over 60 lbs since my botched hysterectomy where they had to go in again and remove 4 feet of my colon where they had mistakenly stapled it through. I've shrunk from 5'9 to 5'6 because of the osteoporosis. When they first diagnosed me with IC, they found out that my bladder is only 40% the size of a normal bladder, which explains why I have to pee so often, even aside from the IC! I Have had two hydrodistentions, so far, but will need more on a regular basis. We all need to have faith that they will find a cure soon.
                          I believe that if we can reduce our stress, learn better ways to cope, we may have a better chance of dealing with this!!!

                          Comment


                          • #14
                            Thank you, Curlette. You are very sweet and kind. Thank you for the kind words. I am so glad you found this board and all of us. I know you have had a pretty rough time, yet, you always take time for others. That is a sign of a truly caring person. Thank you for all that you do!!! Hugs, Amy

                            Comment

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