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Hi all please keep me in your prayers tom. I am finally having the InterStim removed. Hopefully this time will be alot better than last time when I had the revision. I hurt really bad for days afterwards. Thanks everyone.
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God grant me the serinity to withstand the days ahead!!!
My myspace link...
www.myspace.com/patricia_luvs_matt
Patricia 
In Memory of My Father (Lawerence) 1/25/2007
Procedures:
Interstim Sept 2001
1st InterStim Removal May 2005
2nd Interstim Implanted May 2005
2nd InterStim Removed March 2007
Hysterectomy 1999
Tubes Tied 1997
C-Section 1996
Me and my kids
Taylor (my daughter) Me and my daughter My son Cody and Taylor -
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I hope and pray that everything will go smoothly for you and that if you have pain, that you will have meds to get you through!
Hugs,
T83Comment
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At last!!!!! You bet I will pray for you. And of course...you will let us know how you are doing when you feel up to it. 
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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Prayers for a speedy, painfree recovery!Comment
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wow that date crept up really fast... Got ya in my thoughts and prayers.. good luck tomorrow, and hope your butt don't hurt too long.'The will of God will never take you where the Grace of God will not protect you.'Comment
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Good luck.
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Good luck - we'll be thinking of you! Hope the surgery and recovery are all smooth sailing.
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
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“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
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Sending you well wishes, hugs, and prayers
Miss Bessie
Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.
Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.
Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of lifeComment
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I'll be thinking of you and sending well wishes your way.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Hope everything goes fine and you don't have a lot of pain.
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Thanks everyone...I finally am home. I had to spend the night with my Mom on surgery night because we did not get out of hospital until after 6:30. Infact there was talk of keeping me overnight because of my pain. OMG gosh I did not think it would be so bad. On top of my rear hurting when they put me out of course I had to have the tube put down my throat and that is still hurting me today. I had to call and get some stonger pain meds, but I am home now and hopefully will start to feel better soon.
Thanks for the prayers. At least right now believe it or not my bladder is behaving lolGod grant me the serinity to withstand the days ahead!!!
My myspace link...
www.myspace.com/patricia_luvs_matt
Patricia
In Memory of My Father (Lawerence) 1/25/2007
Procedures:
Interstim Sept 2001
1st InterStim Removal May 2005
2nd Interstim Implanted May 2005
2nd InterStim Removed March 2007
Hysterectomy 1999
Tubes Tied 1997
C-Section 1996
Me and my kids
Taylor (my daughter) Me and my daughter My son Cody and TaylorComment
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Glad it all went OK, but sorry it is hurting more than you expected. I hope rest and the stronger pain pills do the trick.
Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
*****************************
“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
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I'm glad it went well despite the unexpected pain. Glad to hear you're out of the hospital and on your way to recovery!!!****
Jen
*Diagnosed with severe IC in 2004
*Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
*Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
*Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).
**I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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