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  • #1

    Really Sick

    OMG! My neighbor and really good friend just came by my house. Her 2 year old son Hayden is in the hospital with a 106 degree fever! They said his white blood cell count is elevated and he has fluid in his abdomen. Her doctor is telling her it's not life threatening but a fever that high in a 2 year old scares the crap out of me. Their family is going through so much, Jess (my friend) her grandmother was just diagnoised with pancriotic (sp?) cancer last week, just got home from the hospital and now Hayden is in.
    I still can't get over this, esp since she took him to the dr on Monday because this 106 fever started Sunday and they told her that it seemed like he had an ear infection and if he wasn't better by friday they wanted to see him back. That sounds crazy to me. I really hope they are okay. Keep them in your thoughts.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus
    Tags: None
  • #2
    Poor little guy....Hope he gets to feeling better very soon!

    D
    (\__/)
    (o.O )
    (> < ) This is Bunny. He's on his way to world domination.

    Comment

    • #3
      Oooh that's scary! I babysat a little girl when I was 14 (would NEVER let a 14yr old ever babysit my future kids by the way)...... and the girl was 3yrs old and acting lethargic because she wasn't playing and just wanted to lay down and watch tv in the middle of the day, which was really out of character for her.... so I picked her up and took her temperature with an oral, digital thermometer.... well once it kept on slowly climbing above 100, I immediatly called my mom (who is a nurse and also the neighbor of the lady I was babysiting for, thankfully) and while I was on the phone with her, Taylor's temperature reached 105!!!!!!!!!!!!!! craziness, when I think about it now! I gave her tylenol, and put her in a luke warm bath and called her mom to come... memories... the sucky thing with Taylor was that she had some type of epilepsy that was induced by high fevers which made me even more paranoid but luckily she didn't have one that day because I caught it quick... (or as quick as you could, considering that Taylor was perky and healthy when her mom left like an hour earlier!)
      current meds:
      cytotec 200mcg twice daily
      toprol
      allegra

      ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

      dx: hashimoto's thyroiditis 1998
      dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
      dx: endometriosis 2003
      dx: innapropriate sinus tacchicardia 2005

      meds tried but failed:
      elavil (6months)- severe tachycardia
      elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
      a bunch of others



      Me and my best friend's baby (also my Godson!)

      Comment

      • #4
        A fever that high is very dangerous.. I dont know what her doctor is thinking!
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          Many prayers for this little boy. I hope it's nothing serious and that he is home soon. How scary for his mom.

          Comment

          • #6
            Children seem to be able to tolerate high fevers much easier than adults, but 106 is still too high to feel comfortable with it. I hope they're taking steps to reduce it.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              Thanks everybody. I still can't get over that dr, what an idiot, she said it wasn't her normal dr. I think with a fever that high I would have skipped the dr and gone right to the ER in the first place. I'm guessing she probably spent the night at the hospital so I have no idea when I'll get to hear what's going on. Hopefully tonight when I get home from work.
              Christine



              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
              I have tried every oral medication as well as rescue instills and DMSO.

              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
              Also proud mom to the best Bullmastiff on earth, Claus

              Comment

              • #8
                I agree with you guys! I would be so scared, I'd camping out with Collin at the ER until it came down, LITERALLY! I cant imagine his Dr. not being as alarmed as we are! Prayers for him and his mother. I hope it passes soon and he is okay.

                Comment

                • #9
                  I sure hope the baby starts feeling better soon. I remember how scary those high fevers are. My daughter (her name is Taylor to lol earlier post) any way she has problems with ear infections and when she would get one she would run a really high fever. I had her in the emerg. room one time for a 105 fever and they were not that concern. She would run them alot like that. They told me to undress her so that she would not be bundle up. When I was growing up I had the flu real bad once and I remember not being able to get it down so they dumped me in a bath tub with ice BURRR!!!! I dont think they do that anymore. I also had a seizure once with a high fever I cant spell the name..But I also remember when my dad was in the hospital this last time and he had a high fever and they packed ice around him to get it down.
                  God grant me the serinity to withstand the days ahead!!!

                  My myspace link...
                  www.myspace.com/patricia_luvs_matt

                  Patricia

                  In Memory of My Father (Lawerence) 1/25/2007

                  Procedures:
                  Interstim Sept 2001
                  1st InterStim Removal May 2005
                  2nd Interstim Implanted May 2005
                  2nd InterStim Removed March 2007
                  Hysterectomy 1999
                  Tubes Tied 1997
                  C-Section 1996

                  Me and my kids


                  Taylor (my daughter) Me and my daughter My son Cody and Taylor

                  Comment

                  • #10
                    sending out big hugs and lots of prayers.. please keep us posted.. did they say why he had fluid in his tummy?
                    'The will of God will never take you where the Grace of God will not protect you.'

                    Comment

                    • #11
                      No Cindy, they didn't, she had just taken him to the hospital sometime yesterday so they were running lots of test. Throat culture, blood work, they even had to cath him to get a urine sample, poor little guy, now he's in pain when he pees. Hopefully I'll hear something from her when I get home from work.
                      Christine



                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus

                      Comment

                      • #12
                        Please let us know when you find out anything about this very sick baby.

                        Sharon

                        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                        Where I can be found most days.



                        Link to the ICN Patient Handbook:
                        http://www.ic-network.com/handbook/

                        Link to the IC Diet:
                        http://www.ic-network.com/diet/


                        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment

                        • #13
                          Oh sure Sharon, I'll be sure to let everybody know how he's doing as soon as I hear anything.
                          Christine



                          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                          I have tried every oral medication as well as rescue instills and DMSO.

                          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                          Also proud mom to the best Bullmastiff on earth, Claus

                          Comment

                          • #14
                            still sendin good vibes, huga and prayers.
                            'The will of God will never take you where the Grace of God will not protect you.'

                            Comment

                            • #15
                              Oh, I hope he is okay!!!!
                              ****
                              Jen

                              *Diagnosed with severe IC in 2004
                              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                              Comment

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