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Really Sick

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  • #16


    • #17
      Not much of an update

      Well I saw my friend's van was outside when I got home so I called her and she had run home for a couple of minutes. She said they still have no idea why he has the fever. They can get it to go down with meds but when they wear off it's back up to at least 104. She said they are still waiting on a culture to come back. I'm guessing it might be the urine but she couldn't remember. It doesn't sound like he's getting worse though so that's good.

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #18
        Thank you for the update. I have been worried about that little guy all day. I have been watching this thread every time I come online, waiting to hear about him. I am such a basket case when Collin gets sick with anything, (even a cold), so I can only imagine how torn up his mother must be! I have such a soft spot for children, it kills me to even hear about stranger's kids being sick. (I could NEVER work in Pediatrics! I wouldnt be able to be a calm presence, b/c I'd be such a mess, I'd sit down and cry with the parents and kids!)

        I hope and pray that they figure this out and get him better soon. It truly tears me up.

        Obviously, it goes without saying, but PLEASE post just as soon as you hear any more news! (EVen if it is the middle of the night), since I will be checking every time I wake up, (which will be alot, since I am still hurting too much from the fall to sleep.)

        Big hugs for him, his Mommy, and all who love him,


        • #19
          hope he starts to feel better soon
          'The will of God will never take you where the Grace of God will not protect you.'