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  • #1

    mom is in kidney failure

    My mom went to the kidney specialist today, she is in the end stage 3 of kidney failure. Her kidneys are only working at less then 30 percent. He is going to do all kinds of blood work and is talking dyalisis.
    He told her, with having IC, high blood pressure and diabities that what happens is the bladder has become so small that the urine backs up, back into the kidneys and causes them to shut down.
    my mom is so upset, and I am too.. please keep her in your prayers.
    'The will of God will never take you where the Grace of God will not protect you.'
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  • #2
    Oh no Cindy. I'm so sorry. I will keep both of you in my thoughts
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

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    • #3
      It sounds like she'll be on dialysis soon. Thankfully, it can be very successful these days. I know about one guy who farms and is able to do all of his farm work in spite of having to spend one half day a week on a dialysis machine. And some people can even do it at home if they have a good support system.

      I know it's serious, but I just wanted to let you know there is hope.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Hi Tig.
        Sorry about you mom. My Aunt also had diabetes and her kidney stopped working well (she was born with only 1 kidney). She did well on dialysis for a long time. I know this is rough for your mom and for you to watch her going through this. You are both in my prayers.
        Jen

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        • #5
          I'm so sorry Cindy, She will be in my prayers!
          Hugs Sandra
          "Never Give Up."

          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

          My Photobucket Link:
          http://s237.photobucket.com/albums/f...ramack_photos/

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          • #6
            Cindy,

            My heart goes out to you, When you called I could tell in your voice you are heart broken..
            But please! If you need anything just give me a call..(((((((((((((hugs)))))))))) and give your mom one from me to

            Hugs
            Ronda

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


            Link to Patient Handbook:
            http://www.ic-network.com/handbook/

            Diet Reference Sheet:
            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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            • #7

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              • #8
                I will be thinking of you and your mother.

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                • #9
                  Thank you so much girls
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment

                  • #10
                    Miss Bessie

                    Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                    Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                    Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

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                    • #11
                      Oh gosh Tig, I totally know what you are going through - we just got my mom back up and running. I am sending HUGE prayers her way! Just know - it will be ok!

                      XOXO
                      Hugs,
                      Tracey
                      How do you eat an elephant? One bite at a time...

                      Harry arrived 2/23/09!



                      *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      IC Diet Cheat Sheet:
                      http://www.ic-network.com/diet/2009icdietlist.pdf


                      Dx's:
                      IC dx'd Nov 2004
                      Lymphocytic Colitis dx'd July 2005
                      Possible IBS
                      Current IC Meds
                      Vistaril 25mg in the evening
                      Previous IC Meds taken:
                      Cystoprotek - 2 caps 2x's a day
                      Elmiron, 100mg 3x's a day
                      Ditropan, 5 mg 3x's a day
                      Others:
                      Wellbutrin 150mg 2x's a day for Anxiety/IBS
                      Pepcid 40mg a day for GERD
                      Zytrec for Nasal Allergies
                      Align Probiotic daily for IBS

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                      • #12
                        thank you
                        'The will of God will never take you where the Grace of God will not protect you.'

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                        • #13

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                          • #14
                            God grant me the serinity to withstand the days ahead!!!

                            My myspace link...
                            www.myspace.com/patricia_luvs_matt

                            Patricia

                            In Memory of My Father (Lawerence) 1/25/2007

                            Procedures:
                            Interstim Sept 2001
                            1st InterStim Removal May 2005
                            2nd Interstim Implanted May 2005
                            2nd InterStim Removed March 2007
                            Hysterectomy 1999
                            Tubes Tied 1997
                            C-Section 1996

                            Me and my kids


                            Taylor (my daughter) Me and my daughter My son Cody and Taylor

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                            • #15
                              Praying for You and your Mom! I am hoping that what Donna said is true for your Mom. Tracey's Mom being on the mend is so encouraging as well. Let's pray that your Mom will get treated appropriately and turn around.

                              HUGS! and Prayers

                              Kara
                              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                              I also have some journals of my journeys, past and some present at:
                              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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