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mom is in kidney failure

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  • #16



    Erika
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

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    • #17
      thank you so very much
      'The will of God will never take you where the Grace of God will not protect you.'

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      • #18
        More (((((((((hugs)))))))))) coming your way. Pass some of them on to your mother.
        Sharon

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.



        Link to the ICN Patient Handbook:
        http://www.ic-network.com/handbook/

        Link to the IC Diet:
        http://www.ic-network.com/diet/


        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #19
          You and you mom are in my thoughts. ((hugs))
          Leah

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          • #20
            So sorry to hear about your mom. I will keep her in my prayers.
            Kim

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            • #21
              thank you girls.
              'The will of God will never take you where the Grace of God will not protect you.'

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              • #22
                Cindy, I'm so very sorry. (((HUGS))) Prayers too.

                I hope so much it will be a very long time (hopefully will never happen) until your Mom needs dialysis. She still has a fair amount of her kidneys working, we can actually do pretty well on a small percent of our kidneys working, so hopefully she won't need to face this any time soon.

                When I went in last time to give blood to monitor my kidneys, there was a lady there talking about how they made a fistula in her arm - I think it was her left forearm. That's the operation they do to make a person ready for dialysis. I asked her if the fistula hurt, and she said she couldn't feel it at all, wasn't bad or anything. She said she was kind of sore right after the surgery, which makes sense because surgery does make a person sore, but they gave her pain meds and everything was fine. So that part of it didn't sound so bad to me. And I've read up a lot on dialysis and it seems like the worst part is mostly how much time it takes, but people bring books and read, or they do things like that. Sometimes people even nap. Some people get these really cool machines to use at home where it does the dialysis overnight and they just sleep through it! There is an alarm that goes off if the line gets tangled or a problem happens like that so there is no worries. I learned about this stuff because I joined a yahoo group and read people's stories. All in all, once you kind of get used to the whole routine (it is an adjustment, it's true, just like any illness is an adjustment) it doesn't sound as bad as IC does (to me anyway.) And remember how they always say, our quality of life is worse than dialysis patients? I think it might be true, honestly. What I'm thinking is that if your Mom has been living with IC, this thing won't seem so bad in comparison.

                Also, I'm wondering, if she's already at the point where urine is refluxing into the kidneys, are her doctors saying it might be time to have the bladder out and a pouch made or a bag installed maybe? Would that save what is left of her kidney function, if they were to do that? (Might very well end the IC pain, there's about a 50% chance of it ending the pain, wouldn't that be a good thing, to get rid of that pain?) Now, the high blood pressure, that for sure can also harm kidneys. That's one of the biggest things that causes kidney failure, after diabetes. BUT - I have always heard that high blood pressure can be managed? I'm hoping that her doctors can get her high blood pressure under control very soon.

                Anyway, I'm so sorry she is facing this. I know that her doctors are doing everything they can, I'm just thinking out loud here I guess. I'm sure you have already talked about all of this with her.

                I hope that things will work out okay and that it won't be nearly as bad as it sounds.

                Blessings,
                Lori
                P.S. My kidneys seems stable at 1.8 or 1.9, which gives me a GFR of 30 (kidneys functioning at 30%, the bad part of Stage 3 just like your Mom.) The Nephrologist doesn't hold out much hope of my kidneys getting better at this point, although we will continue to test them now and then. So I might be going down the same road as your Mom pretty soon, too. I think things will be okay, for your Mom and for me too. I think we will get through it.

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                • #23
                  {{{{Tig}}}}
                  I'm so sorry too.........many hugs and prayers for you and your {{{Mom}}}.
                  Tons of support,
                  Jaime

                  IC angel helping families in need for the holidays. [email protected]

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