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  • Tigger needs your prayers

    Just wanted to let Cindy> (tigger gal) know I am praying for her for tomorrow, She is going to court tomorrow...Please give her your blessings shes really going through a tough time right now
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    Cindy tons of and I know that everything will go fine and you'll go home to your son as you should.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

    Comment


    • #3
      Prayers headed your way Cindy.

      Hugs and love,
      Barb
      (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

      [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
      :angel: IC Angel Volunteer Coordinator :angel:
      :) Contact me via PM or e-mail if you would like to help
      I have learned all about life in 3 words: It goes on! :D--Robert Frost
      PCOS 7/85
      RSD 7/94 :headbang:
      Endometriosis 9/98 :toilet:
      Antiphospholipid antibody syndrome 9/99
      Kidney stones--too many to count
      Factor V Leiden mutation 10/02
      IC 6/03 :evilsmile
      Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
      "Spirit is an invisible force made visible in all of life"--Maya Angelou
      "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

      Comment


      • #4
        tiger gal, Wish you success in court tomorrow, and you are in my prayers. suebee

        Comment


        • #5

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          • #6
            Meds I take:
            Elmiron, Elavil, Vagifem- for IC
            Albuterol, Flovent, Atrovent- for Asthma and lung problems
            Paxil, Clonazepam- for depression and Anxiety
            Atenolol- for rapid heart rate
            Nexium- for Gerd
            Levothyroxin- for Hypothyroidism
            Lasix, Pottasium- for edema
            Lipitor- for High Cholesterol
            I coated aspirin
            02 at bedtime

            Comment


            • #7
              Thank you so very much. ((((((((((((hugs))))))))))))
              'The will of God will never take you where the Grace of God will not protect you.'

              Comment


              • #8
                I will be watching the time and looking forward to hearing very good news from you after the court is over.
                Sharon

                Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                Where I can be found most days.



                Link to the ICN Patient Handbook:
                http://www.ic-network.com/handbook/

                Link to the IC Diet:
                http://www.ic-network.com/diet/


                IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  I'll be thinking of you.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Hoping things go smoothly for you and your family tomorrow.


                    Diana
                    (\__/)
                    (o.O )
                    (> < ) This is Bunny. He's on his way to world domination.

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                    • #11

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                      • #12
                        Sending lots of prayers and positive thoughts your way today Tig! Let us know how it goes!!!!

                        XOXO
                        Hugs,
                        Tracey
                        How do you eat an elephant? One bite at a time...

                        Harry arrived 2/23/09!



                        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        IC Diet Cheat Sheet:
                        http://www.ic-network.com/diet/2009icdietlist.pdf



                        Dx's:
                        IC dx'd Nov 2004
                        Lymphocytic Colitis dx'd July 2005
                        Possible IBS
                        Current IC Meds
                        Vistaril 25mg in the evening
                        Previous IC Meds taken:
                        Cystoprotek - 2 caps 2x's a day
                        Elmiron, 100mg 3x's a day
                        Ditropan, 5 mg 3x's a day
                        Others:
                        Wellbutrin 150mg 2x's a day for Anxiety/IBS
                        Pepcid 40mg a day for GERD
                        Zytrec for Nasal Allergies
                        Align Probiotic daily for IBS

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                        • #13

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                          • #14
                            THANK YOU
                            Gosh I need to get ready, my bladder is on triple time, and I am so stressed out. I was up all night thinking. Then Jake decided to join me in the all nighter. Thank goodness my hubby took total care of him for me. well beter get off here, it would be consided rude to show in my nighty.. not to mention cold.. its snowing here... geesh..........
                            thanks girls I love ya all bunches
                            'The will of God will never take you where the Grace of God will not protect you.'

                            Comment


                            • #15
                              Tell us how it went when you get back! I have you on my mind and hope all is well.

                              Erika
                              IC diagnosed officially via cysto/urodynamics 1/26/07

                              Grade II Endometriosis diagnosed via lap 12/11/07

                              "Fall down seven times, Stand up eight."

                              "Life is a tragedy for those who feel and a comedy for those who think."

                              Current Treatments:
                              Interstim Since 5/25/07!
                              Birth Control

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