Announcement

Collapse
No announcement yet.

Chrissy Sunshine needs your prayers....

Collapse
X
Collapse
 
  • Page of 3
  • Filter
  • Time
  • Show
Clear All
new posts
Previous 1 2 3 template Next
  • #1

    Chrissy Sunshine needs your prayers....

    Please keep Chrissy Sunshine in your prayers. She has been thru such a unimaginably difficult time lately and desparately needs our prayers. She just got out of the hospital, (where she had to stay for 2 weeks), and found an eviction notice on her door. She had 8 days to get out and find a new place. She also recently broke up with her longtime boyfriend. They had lived together for quite a while. She had to leave her job because she was too sick to work any longer. She hasnt been approved for Disability yet, so things are very tight. She has been understandably, very distraught over everything. She just moved out of her home, and had to move in with her ex.

    Please, please pray for her and send her words of support and encouragment. She desparately needs support, prayers and friendship right now. Also, if anyone lives in Florida and knows of any programs that she would qualify for to help her out, please post to let her know or pm her with the information.

    Thank you all for taking the time to read this and thank you to everyone who responds.

    Hugs,
    Amy
    Tags: None
  • #2

    Comment

    • #3


      Dear Chrissy,

      You know how to reach me when you need to talk.
      I love you girl! You are a HUGE inspiration to me and I've thought about everything we discussed.

      Love,

      Kara
      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

      I also have some journals of my journeys, past and some present at:
      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

      Comment

      • #4
        I am so sorry she is having to go through this..
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment

        • #5
          (((hugs)))
          Leah

          Comment

          • #6
            Chrissy,
            I am so sorry that you are feeling so down and having a rough time. Please know we are here for you. Feel better soon.
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment

            • #7

              Comment

              • #8
                I pray for you chrissy.
                not yet dx with ic-diagnosing myself as of aug 2006
                diagnosed ic-october 5 2006(huh just what I thought)

                Charcoal
                cod liver oil (for vitamins a and d)
                bladder is not getting worse but maybe better
                diagnosed ibs-september 27, 2006
                don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
                all this even though I eat.
                Mercury toxicity with Candida Albicans
                Realy toxic and sick
                Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
                had catscan, ultrasound, colonoscopy
                Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."

                I eat to live, not live to eat.

                Comment

                • #9
                  Hugs,
                  Tracey
                  How do you eat an elephant? One bite at a time...

                  Harry arrived 2/23/09!



                  *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  IC Diet Cheat Sheet:
                  http://www.ic-network.com/diet/2009icdietlist.pdf


                  Dx's:
                  IC dx'd Nov 2004
                  Lymphocytic Colitis dx'd July 2005
                  Possible IBS
                  Current IC Meds
                  Vistaril 25mg in the evening
                  Previous IC Meds taken:
                  Cystoprotek - 2 caps 2x's a day
                  Elmiron, 100mg 3x's a day
                  Ditropan, 5 mg 3x's a day
                  Others:
                  Wellbutrin 150mg 2x's a day for Anxiety/IBS
                  Pepcid 40mg a day for GERD
                  Zytrec for Nasal Allergies
                  Align Probiotic daily for IBS

                  Comment

                  • #10
                    She is in my thoughts. Is there anyway to help her financially? I don't have much, but would be willing to send something. Do we have an account set up some where as a nonprofit to help our members out when such happens, kind of like the redcross. If there is an address for her pm I would love to send a note of encouragement and a monetary gift to help.

                    Comment

                    • #11
                      I encourage her to apply for public assistance. When I worked with a social services agency many years ago, it was called "general assistance" and administered by the various states. It's a meager amount, but just might see her through this rough spot.

                      Donna

                      P.S. littlemyrn, we don't have such a fund. It would be impossibly difficult to administer with the large number of members we have, plus the fact that we have members from all over the world.
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                       [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment

                      • #12
                        Thanks Donna for the info. regarding the fund. It is that when I hear stories like hers, I feel so fortunate to have a home and would like to help with what I can, which isn't much after I pay all my bills.

                        Comment

                        • #13
                          "Never Give Up."

                          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                          My Photobucket Link:
                          http://s237.photobucket.com/albums/f...ramack_photos/

                          Comment

                          • #14
                            Thank you all so much..

                            for all your thoughts, prayers, suggestions and words of encouragement.

                            I'm maintaining (barely....but I AM). Greg has said his place can be a "safe haven" for me right now as I try to recuperate and deal with all these messes that my health problems have brought on.

                            As far as monetary help, I don't expect it, what I really need right now is your prayers and support....that is worth waaaay more than any financial help.....now that says ALOT about how the support you all have shown can/is helping me.

                            As far as public assistance programs, there is NOTHING here in Florida. There is no "welfare" or "general public assistance" here AT ALL! I've been told by many state workers that I should just go back home to the north (I'm from RI). At least they have better public programs there. I'm working on getting back there, but it's gonna be slow. The criteria to be met to even obtain Medicaid here is 3 things....you have to have kids under the age of 18 (nope, they're grown), be over the age of 65 (nope, not yet, tho I FEEL like I'm 90!), and/or already be deemed disabled by Social Security (nope, not yet tho working on it).

                            Again what really, really matters to me is your prayers and support, I Thank You all from the bottom of my heart & always keep you all in my prayers as well. This is a h****** disease to have to deal with it, and you guys are really the only people that truly understand. THANK YOU ALL OF YOU AGAIN, it means more to me than you can possibly know!

                            ~ Chris
                            Thank You all so much to everyone here for all your sharing, caring and support!
                            < My "Bear"
                            CurrentTreatments:
                            Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
                            IC Diet
                            Hydroxyzine 50 or 100mg at night (Is restarted)
                            Zoloft 100mg 4/8/07 (Is restarted)
                            Klonopin 1/2 mg 4 X Day (started 3/17/07)
                            Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)

                            Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
                            Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention

                            My Myspace page - http://www.myspace.com/42620225

                            Comment

                            • #15
                              I am so sorry you are going through so much right now. Please know that I am sending you many and lots of (((hugs))).
                              Sharon

                              Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                              Where I can be found most days.



                              Link to the ICN Patient Handbook:
                              http://www.ic-network.com/handbook/

                              Link to the IC Diet:
                              http://www.ic-network.com/diet/


                              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                              Comment

                              Previous 1 2 3 template Next
                              Working...
                              X