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For Ashley and her friends and families

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  • #1

    For Ashley and her friends and families

    Last Wednesday (I think) Ashley went to the High School to pick up some paper work that she needed for College. While she was in the office, she over heard the secretary tell the consoler she had to go and get Tiffany, (Ashley's friend a senior this year) her mother had died. This girls mother was fine when she left for school. She laid on the couch to take a nap before noon and she passed away. They had her Funeral Saturday.
    Friday, she was talking to a friend and found out one of her friends at the bible college, 19 year old boy had died.
    Ashley has really been down this weekend.
    'The will of God will never take you where the Grace of God will not protect you.'
    Tags: None
  • #2
    I will definately keep Asheley and her friend in my prayers.

    Comment

    • #3
      That's so sad Cindy, I will keep her and her friends in my thoughts and prayers
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment

      • #4
        thanks girls, I also forgot to add that her friend Lisa has a shunt, she had a seziure she is in the hospital her right side is paralized and partial left side. she is getting some therapy and having success with getting some movemnet back. They ran a bunch of tests and she has a hole in her heart that is repairable, but was told it would just cmoe back eventually. I don't know the details.
        'The will of God will never take you where the Grace of God will not protect you.'

        Comment

        • #5
          Oh Tig thats awful.. You know I will keep her in my prayers..
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #6
            That's a pretty heavy load for such a young person to carry. Give Ashley a hug for me.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              thanks girls.. just got done talking to my nephew and his friens was seriously hurt in a motorcycle accident. here is my yahoo converstation with him.. please keep his family in your prayers, they need them desperately.

              Richie Olson: u hear what happened to my friend?
              space_mouse2004: its terrible gary drives out here from elizabeth and grossbeck to pick jake up and she don't show up
              space_mouse2004: no what?
              Richie Olson: my buddy is in ICU and might not live
              Richie Olson: got in a wreck on his bike Sat night
              space_mouse2004: omg who and what happened
              Richie Olson: an 80-year-old pedestrian was struck and killed at County Road 419, south of Big Oak Bend, the FHP said.

              Segunda Sarabasa, the FHP report states, "stepped into the road" in front of a Kawasaki motorcycle driven by Christopher William Payne, 20, of Chuluota.

              The impact threw Sarabasa several feet across the road, into the northbound lane, the FHP said. She was killed instantly.

              space_mouse2004: omg
              Richie Olson: hes messed up real bad and it dont look good
              space_mouse2004: oh no poor guy
              Richie Olson: if he lives hes not gonna walk again
              space_mouse2004: what the hell was an 80 year old women thinking walking out in front of him
              space_mouse2004: you don't need a bkie
              Richie Olson: hes 20 years old and is ****ed up for the rest of his life now
              Richie Olson: his 21st bday is in 2 weeks
              Richie Olson: and now he gets to spend it in the hospital
              Richie Olson: he got his head split open from front 2 back
              Richie Olson: bunch of broken ribs
              space_mouse2004: omg.......
              Richie Olson: had to remove his spllen
              space_mouse2004: no helment?
              Richie Olson: spleen**
              Richie Olson: had 1 on
              space_mouse2004: geesh.. don't you dare get a bike
              Richie Olson: parts of his spine are broken and movin around in his back
              Richie Olson: his shoulder is messed up real bad
              Richie Olson: they had to medically induce him into a coma
              space_mouse2004: omg did you go see him
              Richie Olson: he lost 5 pints of blood on the scene
              space_mouse2004: holy ****
              Richie Olson: cant hes in ICU
              Richie Olson: doc said it dont look good
              Richie Olson: hes been in and out of surgery for 2 days
              space_mouse2004: omg........
              Richie Olson: i guess it broke his neck 2
              Richie Olson: spun his head almost all the way around
              space_mouse2004: sending out a bunch of prayers that he is ok.. gosh rich I am so sorry
              Richie Olson: thats 1 of my best friends here
              space_mouse2004: ((((((((((hugs))))))))))))
              space_mouse2004: hows his parents doing
              Richie Olson: havent talked to them
              space_mouse2004: wow.. maybe you should call and let them know if they need you to call
              Richie Olson: dont have a #
              space_mouse2004: you know where they live?
              Richie Olson: nope
              space_mouse2004: damn.. maybe pop in the hospital and see if there is anything you can do
              Richie Olson: nobody but family can be in ICU
              space_mouse2004: geesh... not good at all hun
              space_mouse2004: can't you go to the hospital and ssay you were family, and talk to his family?
              Richie Olson: they are gonna try to take him out of ICU tonight by what i hear
              space_mouse2004: ok good
              'The will of God will never take you where the Grace of God will not protect you.'

              Comment

              • #8
                Awwww Ashley...I am so sorry you are having so much tragedy in such a short time. That would be tough for anyone. I hope you can find some peace in the middle of all this turmoil. I am praying for you.
                Sharon

                Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                Where I can be found most days.



                Link to the ICN Patient Handbook:
                http://www.ic-network.com/handbook/

                Link to the IC Diet:
                http://www.ic-network.com/diet/


                IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment

                • #9
                  oh man very tough week for ashley and now for your nephew, sending prayers to all

                  Comment

                  • #10
                    thanks so much girls..
                    'The will of God will never take you where the Grace of God will not protect you.'

                    Comment

                    • #11
                      I have no idea how I posted about richies friend 2 times.. my puter is haunted..
                      thank you for your prayers
                      'The will of God will never take you where the Grace of God will not protect you.'

                      Comment

                      • #12
                        prayers

                        may 's guide the way
                        may our ers be heard this day
                        For comfort sent your way
                        For dreams of a better day
                        Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

                        Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

                        Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.

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