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  • #1

    Little Sister needs prayer

    My little sister (she's 18) really needs as much prayer as she can get. She has been battling mental illness and a personality disorder for several years and it is getting very bad. She is such a beautiful and sweet girl and it is breaking my heart to see how bad she is getting. She self harms and is covered with scars and is now getting agressive towards others. She has spent the majority of the past year and a half in hopsitals and has been in a group home for over 4 months now. She has gone through the ringer when it comes to meds and treatments. What she has dealt with as far as side affects from medications and treatments makes any of my IC problems pale in comparison.
    Last week was very bad for her she, was in and out of the hospital 4 times (which is why I haven't been around for a few days) Unfortunately they are now talking about transferring her to another home over three hours away from her family because she is not making alot of progress. While this may take months to happen we are all dreading it and very scared. Please pray for her and my family as well. My Mom is also mentally ill and this is rough on her, she feels so guilty. My Dad is raising my two youngest siblings on his own and is so tired and stressed out. I too am hurting and scared and feel so helpless. There are six of us children all together and we are all very worried about her. We just keep trying to talk to her and do little things as much as possible to let her know we care. In the mean time we are trying to get as many people as possible to keep praying for her. I myself work with mentally ill children and I know there is hope with therapy and medication, but I believe she really needs prayer too.
    Thank you all so much.
    There just aren't words to express how much all the support and love I have found here means to me!
    Rachel
    DX's:
    IC; PFD; possible Fibromyalgia; IBS;

    Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

    I've Tried:
    three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
    Currently using:
    Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
    Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
    I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

    Tags: None
    • #2


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          I will certainly be praying for your sister, you and your family too. I know it seems overwhelming now, but God is right there with you all and I pray He will comfort you and give you peace. Sometimes I feel overwhelmed too. I ask God to give me His peace and comfort and He does. Also, He can speak to you through the Bible. I know God will help you so keep taking your concerns to Him in prayer and may God bless and keep your sister in His care. Tam
          Optimistic

            Comment

            • #4
              sending you big hugs and lots of prayers to you and your family.
              'The will of God will never take you where the Grace of God will not protect you.'

                Comment

                • #5
                  "Never Give Up."

                  To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

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                    • #6
                      and to your sister.
                      Meds I take:
                      Elmiron, Elavil, Vagifem- for IC
                      Albuterol, Flovent, Atrovent- for Asthma and lung problems
                      Paxil, Clonazepam- for depression and Anxiety
                      Atenolol- for rapid heart rate
                      Nexium- for Gerd
                      Levothyroxin- for Hypothyroidism
                      Lasix, Pottasium- for edema
                      Lipitor- for High Cholesterol
                      I coated aspirin
                      02 at bedtime

                        Comment

                        • #7
                          Thanks everyone. I haven't talked to her in a few days, it's hard to get through to the group home sometimes! But I haven't gotten any frantic calls from my dad or older sister, so that means things are at leadt not getting any worse. I'll keep you updated! Please keep praying!
                          Rachel
                          DX's:
                          IC; PFD; possible Fibromyalgia; IBS;

                          Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                          I've Tried:
                          three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                          Currently using:
                          Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                          Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                          I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                            Comment

                            • #8
                              you got it, I'll certianlly keep you and your sister in my thoughts and prayers
                              'The will of God will never take you where the Grace of God will not protect you.'

                                Comment

                                • #9
                                  Oh Dear I am so sorry.. I will keep her and your family in my prayers
                                  Hugs
                                  Ronda

                                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                                  Link to Patient Handbook:
                                  http://www.ic-network.com/handbook/

                                  Diet Reference Sheet:
                                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                                  Meds I have Tried:
                                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                                  Lexapro< Bad reaction to this med!
                                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                                  Dx With IC in Nov 2006 with Hydro/Cysto
                                  Hydro/Cysto Caused Bladder to Rupture.

                                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                    Comment

                                    • #10
                                      Prayers for all of you coming from Florida. Kathi
                                      One Day At A Time
                                      Kathi

                                        Comment

                                        • #11

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                                            • #12
                                              Rachel,

                                              I'm thinking of You and Your little Sister. I hope she is getting the help that she needs and is resting more comfortably.




                                              Kara
                                              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                                              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                                              I also have some journals of my journeys, past and some present at:
                                              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                                              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                                                Comment

                                                • #13
                                                  Update

                                                  I got back from our trip on the 16th to find we had no internet (didn't get fixed until yesterday) and that my sis had a rough time. She was violent and ended up getting arrested, but it was mainly to get her to the hospital. She did spend a night in jail and I think it was an experience that really got her thinking. She went to court and it looks like there will be no charges.
                                                  I haven't been able to get her on the phone (no internet meant no phone for us as well) but my older sister said she has had a quieter week. She is not going to be able to graduate with her class now and that has been a big blow for her. So I hope she will be able to deal with that without going back to the hospital.
                                                  My girls and I are putting a package together with pictures, letters, and photos to send to her on Tuesday, so that will probably cheer her up a little.
                                                  Please continue to keep her in you prayers.
                                                  Thanks!
                                                  Last edited by RAS6; 05-26-2007, 04:38 PM. Reason: spelling :)
                                                  Rachel
                                                  DX's:
                                                  IC; PFD; possible Fibromyalgia; IBS;

                                                  Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                                                  I've Tried:
                                                  three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                                                  Currently using:
                                                  Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                                                  Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                                                  I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                                                    Comment

                                                    • #14
                                                      'The will of God will never take you where the Grace of God will not protect you.'

                                                        Comment

                                                        • #15
                                                          Prayers headed toward you, your sister, and your family. Big hugs.

                                                          Hugs,
                                                          Barb
                                                          (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                                                          [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
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                                                          :) Contact me via PM or e-mail if you would like to help
                                                          I have learned all about life in 3 words: It goes on! :D--Robert Frost
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