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My best friend in the world who I have been friends with since I was in elementary school husband was in a car accident and his vehicle burst into flames and he was unable to get out and died in the fire. Please be thinking of her and her family right now. Here is the news link.
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Omg. Thats so sad... I will certainly be praying for her and her family
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I am so sorry, Leslie. That is horrible. Please know that I am sending prayers to you and to his family.Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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Sending angels and prayers
I only wish I had the right words to say. Well this prayer sure knows what to say, from a book by Sylvia Browne called Prayers (page 81). Hopefully I am allowed to share this, because it is in fact meant solely for this purpose, to bring comfort and love to all whom believe.
Prayer for funerals or graduations (going from one life to the next)
"Dear Mother and Father God, we ask for this soul to transcend. We ask for this soul to be bathed in your Holy Light. We ask for the tunnel to open wide, and for our loving Mother Azna to embrace the person who is graduating from this life to be embraced to find their peace, their loved ones, and all people who have been in other lives.
We ask for blessings to be upon all of those gathered who are left behind, but we know, with the grace of God and with all assuredness, that we will all be together soon. We ask for peace to descend on all whom are left grieving today so they can be embraced by the mantle of our Holy Mother, Azna. May the Christ-consciousness attend them in their grief, and may the Holy Spirit surround them. Amen."Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa
Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.
Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.
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That is so horrible Leslie, I'm so sorry.
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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I'm so sorry. Many prayers for your friend and her family. And for you, too. What a tragedy.
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What a horrible thing.
Sending prayers,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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Im so sorry for your loss.
How horrible.
Hugs Sandra
"Never Give Up."
To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/
My Photobucket Link:
http://s237.photobucket.com/albums/f...ramack_photos/Comment
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I am so sorry for her loss. How terrible this year is turning out.not yet dx with ic-diagnosing myself as of aug 2006
diagnosed ic-october 5 2006(huh just what I thought)
Charcoal
cod liver oil (for vitamins a and d)
bladder is not getting worse but maybe better
diagnosed ibs-september 27, 2006
don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
all this even though I eat.
Mercury toxicity with Candida Albicans
Realy toxic and sick
Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
had catscan, ultrasound, colonoscopy
Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."
I eat to live, not live to eat.Comment
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This is so awful, I couldn't believe it this morning when you told me. Sending out big hugs and lots of prayers.'The will of God will never take you where the Grace of God will not protect you.'
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I am so sorry to hear this about your best friend husband...
I sending thoughts and prayers to your friend...
DebbieThinking positive has got me through to another day!!Comment
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I am so sorry. Thought and prayers are for the family and you
Sending many hugs, TrishannComment
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I am so sorry....Sending Prayers your way. Please tell your friend that with God's help and great family and friend support she will get through this. It will be very hard. My 23 year old daughter lost her husband 2 years ago in a car accident, and I know how hard this will be. Just be there for her and let her know she has lots of people praying for her. 
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Leslie,
That is so horrible. I really feel terrible. Thankfully she has a good friend like you to help her get through this horrible time. We'll all be praying for her.
Kari Kari 
I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!Comment
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Oh my dear!! How sad! I certainly will be praying for your friend and their family.
Meds I take:
Elmiron, Elavil, Vagifem- for IC
Albuterol, Flovent, Atrovent- for Asthma and lung problems
Paxil, Clonazepam- for depression and Anxiety
Atenolol- for rapid heart rate
Nexium- for Gerd
Levothyroxin- for Hypothyroidism
Lasix, Pottasium- for edema
Lipitor- for High Cholesterol
I coated aspirin
02 at bedtimeComment
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