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Need a prayer

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  • Need a prayer

    Ok...I'm breaking down and asking for a prayer. My current flare started at the end of December (after a late miscarriage and the death of both my grandfather and my mother-in-law...all within just a few months) and I haven't been able to get a handle on it. In fact, it's gotten significantly worse and I'm back to the type of pain I had when this all began four years ago.

    I've tried elavil but can't take it because it makes me insanely depressed ...odd for an antidepressant, huh? I took elmiron for a month and a half but then began getting worse...not I took a break from that for a bit until I get this all sorted out. My usual tricks aren't working at all.

    I called the nurse at the Uro's office and she's going to talk to the Uro today and see if he can talk to me over the phone or get me in sooner than my scheduled appointment next week. I'm really feeling at my wit's end. I've been tracking my pain levels on a google calendar (highly recommended) and discovered that I've only had one good day in the last four weeks. I'm getting fried. To top it off, I'm starting to get retention, which hasn't happened in nearly four years!

    Please pray that my uro will have some new ideas and that even if I don't get back to remission this summer, I can at least be comfortable and manage the pain.

  • #2
    I'm sorry that you're having such a tough time. I really hope that your uro has some ideas of how to get this horrible flare under control.

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      I am so sorry. Sending prayers.

      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

      Where I can be found most days.

      Link to the ICN Patient Handbook:

      Link to the IC Diet:

      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4
        I am sorry
        'The will of God will never take you where the Grace of God will not protect you.'


        • #5
          I'm sorry this is very late but how are you feeling now?



          • #6
            I'm sending some prayers your way, too. I pray that God will surround you with his peace and comfort and give your uro the wisdom to treat you. Please keep us posted.
            ~ Stacey


            • #7
              Sending prayers your way. It is so discouraging to be in pain all the time, and not knowing when it will end. But it will end. I am praying hard that it will be soon!