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  • #1

    Please, Please Pray For Me

    The custody hearing for Lindsey is this Friday afternoon. He is bringing Lindsey but is now saying I can't see her unless they are under his conditions. He is also going to try and find me unfit because of the IC. Right, that is why I work full time as a director of nursing. Please just pray for my strength and that the best for Lindsey is reached with this hearing. I love her soooo much. She is my everything.

    Love,
    Barb
    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]
    Tags: None
  • #2
    I hope everything turns out good for you.

    Comment

    • #3
      Oh Barb, I can only begin to imagine how hard this must be for you. I will keep you in my thoughts and prayers. I hope that the judge will see what is in her best interest and give custody to you.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment

      • #4
        Barb,

        I will pray for your strength and for you and Lindsey. My heart is with you as you face this.

        Love and Hugs

        Kara
        Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

        "One hour at a time, this was NOT my American Dream but it has to work out somehow."

        I also have some journals of my journeys, past and some present at:
        http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

        Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

        Comment

        • #5
          Barb my thoughts and prayers are with you and Lindsey.

          Sending many hugs,
          Trishann

          Comment

          • #6
            Sending lots of positive energy, strength and prayers your way!
            Hugs,
            Tracey
            How do you eat an elephant? One bite at a time...

            Harry arrived 2/23/09!



            *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            IC Diet Cheat Sheet:
            http://www.ic-network.com/diet/2009icdietlist.pdf


            Dx's:
            IC dx'd Nov 2004
            Lymphocytic Colitis dx'd July 2005
            Possible IBS
            Current IC Meds
            Vistaril 25mg in the evening
            Previous IC Meds taken:
            Cystoprotek - 2 caps 2x's a day
            Elmiron, 100mg 3x's a day
            Ditropan, 5 mg 3x's a day
            Others:
            Wellbutrin 150mg 2x's a day for Anxiety/IBS
            Pepcid 40mg a day for GERD
            Zytrec for Nasal Allergies
            Align Probiotic daily for IBS

            Comment

            • #7
              You are in my prayers.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment

              • #8
                You got it. I know what a great person and mommy you are. Keep yopur head high and walk in there an kick butt Friday.

                Comment

                • #9
                  ((((((((hugs))))))))) I will keep you in my prayers and thoughts
                  Hugs
                  Ronda

                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                  Link to Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Diet Reference Sheet:
                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                  Meds I have Tried:
                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                  Lexapro< Bad reaction to this med!
                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                  Dx With IC in Nov 2006 with Hydro/Cysto
                  Hydro/Cysto Caused Bladder to Rupture.

                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment

                  • #10
                    I can't imagine what you are going through. I will only say you have great support hear and hopefully with all of us praying for you, it will turn out well.

                    Comment

                    • #11
                      Will be praying for you!
                      Cali

                      Comment

                      • #12
                        Thanks all, more stuff went down after I posted this that is even worse. I can't comment quite yet(until after the hearing)but is so devious and disgusting that I want to barf. Why does my number always come up with these character builders?HMMM...God, I am looking for a position in angel resource management...Honestly, I am warm and fuzzy with the love and feel from all of you.

                        Hugs,
                        Barb
                        (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                        [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                        :angel: IC Angel Volunteer Coordinator :angel:
                        :) Contact me via PM or e-mail if you would like to help
                        I have learned all about life in 3 words: It goes on! :D--Robert Frost
                        PCOS 7/85
                        RSD 7/94 :headbang:
                        Endometriosis 9/98 :toilet:
                        Antiphospholipid antibody syndrome 9/99
                        Kidney stones--too many to count
                        Factor V Leiden mutation 10/02
                        IC 6/03 :evilsmile
                        Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
                        "Spirit is an invisible force made visible in all of life"--Maya Angelou
                        "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

                        Comment

                        • #13
                          you can do this with out batting an eye, I know you can.. I did it all for Jake, and I know you can for Lindsey. Sending great big hugs and lots of prayers.
                          'The will of God will never take you where the Grace of God will not protect you.'

                          Comment

                          • #14
                            Sending prayers & a hug.
                            Kadi

                            -------------------------------------------------------------
                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                            ------------------------------------------------------


                            New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                            Source - Pinterest
                            "

                            Current treatments:
                            -IC diet
                            -Elavil 50mg at night
                            -Continuous use birth control pills (4-5 periods/year)
                            -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                            -Pyridium if needed,
                            -Pain medicine at bedtime daily, as needed during the day several times per week
                            -Antibiotic when doing an instillation to prevent UTI
                            -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                            -Dye Free Benadryl 50 mg at bedtime
                            -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                            -Managing stress= VERY important!
                            -Fur therapy: Hugging the cat!

                            Comment

                            • #15
                              Barb...Stay strong for that sweet daughter of yours and be gentle with yourself. Saying many, many prayers for the two of you. Praying that you will find favor with the court. What time is the hearing on Friday? I want to be in prayer for you while you are meeting. (((hugs)))
                              Sharon

                              Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                              Where I can be found most days.



                              Link to the ICN Patient Handbook:
                              http://www.ic-network.com/handbook/

                              Link to the IC Diet:
                              http://www.ic-network.com/diet/


                              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                              Comment

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