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  • Dancemoms son

    Hi all,
    I just got off the phone with Leslie and she is taking Colten to the hospital. She had taken him to the doctor the other day a with his tummy hurting and they said to watch him it could be the beginning of appendicitis.
    Please keep Colten and Leslie's Family in your prayers.
    'The will of God will never take you where the Grace of God will not protect you.'

  • #2
    My thoughts and prayers are being sent thier way....
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      Isn't he pretty young for appendicitis? I remember my oldest had his removed when he was 15. I hope Colton is okay and just has a tummy ache.

      I'm sending healing vibes their way.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        I just talked to her as well(as Grandma and Grandpa were bringing him back early from a dinner out)and Leslie said the last few days have been rough on him but today he had been doing a little better. My prayers are definitely with them.

        Hang in there!

        Hugs and love,
        Barb
        (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

        [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
        :angel: IC Angel Volunteer Coordinator :angel:
        :) Contact me via PM or e-mail if you would like to help
        I have learned all about life in 3 words: It goes on! :D--Robert Frost
        PCOS 7/85
        RSD 7/94 :headbang:
        Endometriosis 9/98 :toilet:
        Antiphospholipid antibody syndrome 9/99
        Kidney stones--too many to count
        Factor V Leiden mutation 10/02
        IC 6/03 :evilsmile
        Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
        "Spirit is an invisible force made visible in all of life"--Maya Angelou
        "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

        Comment


        • #5
          Thanks girls, he has a bladder infection. A little constipation but nothing major since I had already given him a glycerin suppositiory earlier. The pain is from the bladder spasms and 2 year old just don't understand them. I told the ER neither do I He didn't get it.

          Comment


          • #6
            Awww, poor little guy. No wonder he's hurting. I hope he starts to feel better soon.
            Christine



            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus

            Comment


            • #7
              HI! Luckily it wasn't appendicitis! A boy in my class was only 11 when his appendix burst in 2 places. He was a very sick little boy! He has Autism and couldn't express the pain he'd been in and we were worried sick about him! Luckily he had a great dr. at Houston's Children's Hospital and they pulled him through!
              Kids can sure worry you sick! Roxie

              Double Spinal Cord Stimulator surgery 8/09
              Unsuccessful MiniArc sling surgery 12/07
              Dx'd Hypothyroid
              Dx'd Chronic Axonal Neuropathy & Myopathy
              June 2007
              Dx'd IC May 2006 (after suffering for 25+ yrs!)
              First Cysto 1979
              First Hydro 1981 (Many treatments since then!)
              Collagin"Durasphere" injections for urethra
              Gall bladder surgery Aug. 2004
              Gastric Bypass Dec. 2004
              Dx'd: Barrett's Esphogus July 2004
              Dx'd: Vaginal Atrophy 2005
              Bladder surgery 2000
              Dx'd: IBS 2000
              Hysterectomy (fibroids) 1999
              Laminectomy 1989
              Dx'd: Degerative Disk Disorder 1989

              For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
              I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

              Comment


              • #8
                I hope he's on the mend by now! It's so hard to have a sick kid! Scary too!
                *IC-- Summer 2004; PFD--October 2005
                *Fibro--Fall 2000; CFS-- Fall 2000
                *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                Total Abdominal Hysterectomy--adenomyosis--9\08

                04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                Comment


                • #9
                  Poor little guy. Bladder infections are so misrable. At least they usually clear up quick.

                  Erika
                  IC diagnosed officially via cysto/urodynamics 1/26/07

                  Grade II Endometriosis diagnosed via lap 12/11/07

                  "Fall down seven times, Stand up eight."

                  "Life is a tragedy for those who feel and a comedy for those who think."

                  Current Treatments:
                  Interstim Since 5/25/07!
                  Birth Control

                  Comment


                  • #10
                    Leslie...I sure hope Colten is doing better, today.
                    Sharon

                    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                    Where I can be found most days.



                    Link to the ICN Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Link to the IC Diet:
                    http://www.ic-network.com/diet/


                    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment


                    • #11
                      I'm with the rest, I hope he's feeling much better now!!
                      Hugs,
                      Tracey
                      How do you eat an elephant? One bite at a time...

                      Harry arrived 2/23/09!



                      *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      IC Diet Cheat Sheet:
                      http://www.ic-network.com/diet/2009icdietlist.pdf



                      Dx's:
                      IC dx'd Nov 2004
                      Lymphocytic Colitis dx'd July 2005
                      Possible IBS
                      Current IC Meds
                      Vistaril 25mg in the evening
                      Previous IC Meds taken:
                      Cystoprotek - 2 caps 2x's a day
                      Elmiron, 100mg 3x's a day
                      Ditropan, 5 mg 3x's a day
                      Others:
                      Wellbutrin 150mg 2x's a day for Anxiety/IBS
                      Pepcid 40mg a day for GERD
                      Zytrec for Nasal Allergies
                      Align Probiotic daily for IBS

                      Comment


                      • #12
                        sending hugs your way. hope Colten is feeling better, and you too of course.
                        'The will of God will never take you where the Grace of God will not protect you.'

                        Comment


                        • #13
                          OH He is feeling better and terrorizing everything again. Thank goodness for antibiotics

                          Comment


                          • #14
                            Glad he is back to normal.
                            Sharon

                            Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                            Where I can be found most days.



                            Link to the ICN Patient Handbook:
                            http://www.ic-network.com/handbook/

                            Link to the IC Diet:
                            http://www.ic-network.com/diet/


                            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                            Comment


                            • #15
                              glad to hear (literately) he is back to himself.
                              'The will of God will never take you where the Grace of God will not protect you.'

                              Comment

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