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  • prayers needed

    Prayers needed. Son-ln-law on the way to hospital to have x-rays. turned riding mower over and landed on his back. Please pray. they have children and I am in a flare and my husband is also disabled and daughter is angry at me because I could not keep the babies. I feel like a dog for not being able too. All I could do is pray, but still hurts. Also I have been on brand name oxycontin for a long and now my insurance will only pay for generics, which do not seem to be helping. Was wondering if anyone else is having this problem. Thanks


  • #2

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      Hi wow you got alot on your plate I will pray your son in law is fine I know what pain your in with the I C Im in a bad fare right now the 5 days its been bad ,I have dmso treatment every 3 month at the hosp Im on Elmiron that seems like the drug people use you take care try to rest hard to with all you got take care


      • #4
        I pray things get better for you

        When life hands you lemons make lemonade. But when life hands you a load of crap, don't make anything. Trust me on this one.

        Diagnosed in 2001
        Elmiron, Elavil, Atarax, Ditropan, Prosed DS, Hydracodone when needed


        • #5

          thanks for the prayers and the feedback. I am also praying for you all too. I know we pretty much all have a plate full. Hugs and May God Bless all of you.



          • #6
            sending big hugs and good vibes to your daughter and her husband. how old are her little angels?
            It is hard having little ones with IC, fibro, sacralititis, some days worse then others. I am totally exhausted when my 22 month old goes to bed. its extra hard like days I had today, he is sick and crabby, and wants up and down up and down, you are hurting so bad you want to cry.
            'The will of God will never take you where the Grace of God will not protect you.'


            • #7

              I understand about the generic meds working differently sometimes. I have multiple chemical sensitivities so often times I have to stay with the Brand Name.

              I hope your Son-in-law is ok. How scary.

              Well Wishes and for a better day tomorrow.

              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.


              • #8
                Well if there is a hell its right here on this planet now.
                Hope your son in law is ok
                54 year old male
                Diagnosed with IC in 1994
                Had symptoms since 1992
                Three cystoscopies.One biopsy with hydrodistention.
                This is what I have tried,Dmso cocktail,Elavil,Atarax,Hytrin,Detrol,Pyridium,Elmiron,Allegra,Augmenti n,Flomax,Ditrapan,Vesacare.
                Sent urine samples about 10 years ago to the famous Dr Fugguzatto.Went through plenty of Dr's which took about 2 years for an IC diagnosis.I am considered having one of the worst IC conditions known to my doctors.
                Thanks to reading the great info on this board I am presentally trying 3 more natural remedies.Msm,Glucosamine,and Quercetin


                • #9
                  "Never Give Up."

                  To view pictures of my creative interests and Maine Coon kittens click here:

                  My Photobucket Link:


                  • #10


                    • #11
                      It's really, really hard to have this illness and deal with family crises. I am as well, and you have my prayers and good wishes.
                      Diagnosed 6/4/07, also IBS, migraines, allergies,
                      hysterectomy, previous fibroids, cysts.

                      Help measures in process -- hope to start PT, etc. Main pain meds: HEAT, Tylenol, Alleve, Working on diet!

                      Cold infusion of Marshmallow Root tea 2x day, Citrus free Quercetin 2x day

                      I am not my illness -- it's just a facet, I aim to enjoy life and pursue my dreams! I hope it makes me a more compassionate human being.


                      • #12
                        Hi yes I know what family can be hang in there so glad I have you and others we can talk to that know how we feel even if you could just cry take care


                        • #13

                          Hope your son-n-law is doing o.k. Hope all is better today.