Announcement

Collapse
No announcement yet.

Going to a Spine Center...unbearable pain!

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    Going to a Spine Center...unbearable pain!

    Hi ladies,
    please say a prayer for me. I have a herniated disc at L5 and I've been in so much pain for months now! My primary care doc is hesitant to give me a script for pain meds and told me that I'm too young to have this sort of pain(47)! I was very discouraged when she told me that! I could tell that she wasn't going to help me and that I would just suffer with this horrible pain! I have done physical therapy...and did not get any good results from it.

    Tuesday I got a call from my insurance company explaining a service called "Complex Care". I signed up for it because it gives me access to a nurse 24/7. This service is supposed to be in addition to my normal care with my primary doc. The nurse that I'm assigned to was upset that I got no further help after the pt did not help. She urged me to contact a neurologist on my own. Instead I called my primary doc and told her that it is unacceptable for me to lay in pain day after day and she not help me! Finally she gave me a rushed referral to a spine center. I don't know what's going to happen from here but I'm desperate to get some help!

    Thanks Aleet7
    DX'd with IC 5/08
    other Dx's~SVT: had Catheter
    Catheter Ablation Aug 19,2010
    Migraines, PFD, Hypertension,
    Prolapsed Pelvic
    Organs and Degenerative Disc
    Disease, Kidney stones, Insomnia
    Two bulging discs w/tears and osteo
    arthritis in multiple joints in the spine



    Current Meds:Elmiron 400 mg per day
    Benicar Hct 40-25mg for Hypertension
    Norvasc 2.5
    Vicoden as needed for pain
    Cymbalta 30 mg
    Prelief
    CystaQ
    Prosed
    Lidoderm Patch

    Psalm 121
    I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

    "Be Kinder than necessary because everyone you meet is fighting some kind of battle"
    Tags: None
  • #2
    I'll keep my fingers crossed that you will get the help you need.

    Sending gentle hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    • #3
      How awful that must be. We use our back in darn near everything we do so I would imagine having pain there would be quite limiting!

      Hopefully the spine center will have something more to offer you towards finding relief, Teela.
      My primary care doc is hesitant to give me a script for pain meds and told me that I'm too young to have this sort of pain(47)!
      What can you say to that? Too young? Sheesh!

      I'm sorry both you and Briza are having to deal with these additional painful conditions. One would think IC would be enough for any one person!

      Vicki
      "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

      Comment

      • #4
        Thanks Vicki and Donna! Bri... I did the physical therapy and I tried to stay positive but lately I've been laying down all day with lower back pain and pain in both legs! I feel like it is inhumane to just suffer and hurt with only tylenol to take! I'm starting to get angry because my doc feels like since we are the same age that I should not be in this much pain! Like you...I've had MRI's that say I have a bulging disc...narrowing and possible spurs! I thought that explained my pain but obviously not! I'm afraid that I'm going to live in this kind of pain forever....it's depressing at times! I was very hopeful about therapy but I'm still having the same issues after months of therapy.

        Bri I hope that your therapy is successful! As if having IC isn't enough....
        DX'd with IC 5/08
        other Dx's~SVT: had Catheter
        Catheter Ablation Aug 19,2010
        Migraines, PFD, Hypertension,
        Prolapsed Pelvic
        Organs and Degenerative Disc
        Disease, Kidney stones, Insomnia
        Two bulging discs w/tears and osteo
        arthritis in multiple joints in the spine



        Current Meds:Elmiron 400 mg per day
        Benicar Hct 40-25mg for Hypertension
        Norvasc 2.5
        Vicoden as needed for pain
        Cymbalta 30 mg
        Prelief
        CystaQ
        Prosed
        Lidoderm Patch

        Psalm 121
        I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

        "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

        Comment

        • #5
          I know exactly what you mean...I walk slow, sometimes I limp and sometimes I'm dragging a leg because of the weakness! I feel very old and I'm not happy about that! My father had arthritis in his back and he was on a cane at my age! It can be very depressing at times!

          I am praying that the Spine Center will be of some help! I'm praying that pt gives you some relief!

          Best Wishes,
          Teela
          DX'd with IC 5/08
          other Dx's~SVT: had Catheter
          Catheter Ablation Aug 19,2010
          Migraines, PFD, Hypertension,
          Prolapsed Pelvic
          Organs and Degenerative Disc
          Disease, Kidney stones, Insomnia
          Two bulging discs w/tears and osteo
          arthritis in multiple joints in the spine



          Current Meds:Elmiron 400 mg per day
          Benicar Hct 40-25mg for Hypertension
          Norvasc 2.5
          Vicoden as needed for pain
          Cymbalta 30 mg
          Prelief
          CystaQ
          Prosed
          Lidoderm Patch

          Psalm 121
          I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

          "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

          Comment

          • #6
            I hope the spine center can help you.
            TheresaMae

            Dx'd with IC May3,2010
            Dx'd with MS in 2002 and declared Disabled due to it in 2006.
            Severely Incontinent Due to MS and IC Flares make it even worse.

            Comment

            • #7
              I too had pain in the same area that you are having right now, so I really feel for you. I went from doctor to doctor (primary care kept sending me to either PT or neuro but nothing help. Around that time, my insurance change carriers and I had to find me a new doctor....he at the time gave me a scrpt for pain meds and told me if that didn't help he would find a neuro who did. I finally went to this neuro and after having tests done (more of the same) and telling me that everything was ok, but that he can see that I was in terrible pain he did surgery on me. I was 38 at the time. Good luck hoping you can find a doctor who will help you.

              Comment

              • #8
                HI, Aleet ~

                I don't have back pain but my oldest daughter does (herniated discs since 16 and she's now 41) and it can be totally debilitating to where she looks like the letter "S".

                Prayers that you'll soon get some relief. That mental anguish is terrible also.
                Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

                11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
                8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
                8/2010 Surg gallbladder
                TREATMENTS (updated 4/15)
                IC Diet since 8/2009 (Able to vary 4/15)
                Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
                Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
                Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
                *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
                Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
                PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

                Comment

                • #9
                  Mary how are you since your back surgery? Today I gave the Spine center all of my info. I'm waiting for my appointment date. I'm praying that this doc will help me.

                  Thank you!
                  Aleet7
                  DX'd with IC 5/08
                  other Dx's~SVT: had Catheter
                  Catheter Ablation Aug 19,2010
                  Migraines, PFD, Hypertension,
                  Prolapsed Pelvic
                  Organs and Degenerative Disc
                  Disease, Kidney stones, Insomnia
                  Two bulging discs w/tears and osteo
                  arthritis in multiple joints in the spine



                  Current Meds:Elmiron 400 mg per day
                  Benicar Hct 40-25mg for Hypertension
                  Norvasc 2.5
                  Vicoden as needed for pain
                  Cymbalta 30 mg
                  Prelief
                  CystaQ
                  Prosed
                  Lidoderm Patch

                  Psalm 121
                  I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

                  "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

                  Comment

                  • #10
                    Hi Ginger! What treatment did your daughter get for her herniated disc? I have been laying down for days...There isn't much I can do without being in so much pain! Thank you so much for your well wishes!

                    Thank You,
                    Aleet7
                    DX'd with IC 5/08
                    other Dx's~SVT: had Catheter
                    Catheter Ablation Aug 19,2010
                    Migraines, PFD, Hypertension,
                    Prolapsed Pelvic
                    Organs and Degenerative Disc
                    Disease, Kidney stones, Insomnia
                    Two bulging discs w/tears and osteo
                    arthritis in multiple joints in the spine



                    Current Meds:Elmiron 400 mg per day
                    Benicar Hct 40-25mg for Hypertension
                    Norvasc 2.5
                    Vicoden as needed for pain
                    Cymbalta 30 mg
                    Prelief
                    CystaQ
                    Prosed
                    Lidoderm Patch

                    Psalm 121
                    I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

                    "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

                    Comment

                    • #11
                      Hi Bri! I went to the Spine center Friday. I found out the details of my MRI...my primary doc never told me the details! I have two bulging discs with tears in both of them! I also have arthritis in 3 joints in my spine! The doc said either of these conditions can cause lots of pain! I was prescribed Cymbalta(now approved for lower back pain and osteoarthritis)! I haven't taken any yet because I read some horrible stories about Cymbalta being addictive and having withdrawal side affects compared to Heroine withdrawal! If someone reads this that has taken Cymbalta please inform me on your experience taking this med! I'm in a lot of pain but afraid that I'll have some of the awful side affects like in all the stories I've read on the internet!

                      I did get prescribed Vicoden...it helps some but I'm afraid that I need to take a chance with the Cymbalta...maybe my low dose won't be as bad as what the others are talking about.....


                      Best Wishes,
                      Aleet7
                      DX'd with IC 5/08
                      other Dx's~SVT: had Catheter
                      Catheter Ablation Aug 19,2010
                      Migraines, PFD, Hypertension,
                      Prolapsed Pelvic
                      Organs and Degenerative Disc
                      Disease, Kidney stones, Insomnia
                      Two bulging discs w/tears and osteo
                      arthritis in multiple joints in the spine



                      Current Meds:Elmiron 400 mg per day
                      Benicar Hct 40-25mg for Hypertension
                      Norvasc 2.5
                      Vicoden as needed for pain
                      Cymbalta 30 mg
                      Prelief
                      CystaQ
                      Prosed
                      Lidoderm Patch

                      Psalm 121
                      I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

                      "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

                      Comment

                      Previous template Next
                      Working...
                      X