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  • My Grandmother died yesterday at 4 am

    Please pray for me and my family. We lost my Granny at 4 am yesterday. She was 89. She was in a nursing home for the past couple of years due to severe Alzheimers, so it wasnt a shock or anything, but of course, it still hurts. No matter when you lose someone, you are never ready when you love them and it is never easy. So, for those of you who dont mind, please say a prayer for her and all of us.

    Thank you,
    Amaranthe
    I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

    D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

    Meds: Estrogel (due to total Hyster)
    The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)


    (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


    John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

  • #2
    Sorry for your loss.
    (\__/)
    (o.O )
    (> < ) This is Bunny. He's on his way to world domination.

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    • #3
      I am very sorry for your loss. Alzheimers is devastating for any family. It may have not been a shock but when that door shuts no matter what the persons age or condition, the hurt runs deep into our souls. I nursed a pair of twin Aunts from the begining to the end. Both had Alzheimers and died 10 days apart. My heart was shattered. My Prayers are with your whole family. Love, Ziggy

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      • #4
        I'm so sorry. It's never easy to lost a loved one.

        Warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          I am so sorry to hear this, it is never an easy thing to deal with.

          My prayers and thoughts are with you and your family.

          MG
          My are with you all. May you all find a way to peace and joy in your lives.

          Comment


          • #6

            I'm so sorry for your loss!

            Vicki
            "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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            • #7
              Hi Amaranthe,

              Saying a prayer for your grandmother and you Sorry:-(

              Jill
              "Where there is hope there can be faith. Where there is faith, miracles can occur."

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              • #8
                Hugs to you...I know what you are going thru...lost my grandma & granpa just a few months ago & my dad only this last Sunday. Hold strong to your faith & family...
                Karen
                Currently Taking:
                20 mg Celexa
                fentanyl patch 12.5 mcg chgd every 3 days
                morphine IR 15 MG, up to 3x daily
                Xanax 1mg as needed (not taken daily)
                900 MG Oxycarbizine (mood disorder)
                300 MG Welbutrin
                Tizanidine 4 mg up to 20 mg daily as need
                Prevacid 30 mg
                Ambien as needed

                my heating pad is my best friend, use daily on my lower back & pelvic area
                blessed to be able to receive massage & Amma , along with Avazzia therapy 3x weekly

                Been diagnosed for 10 years now, consider myself pretty well versed in this disease & would love to help out with new IC sisters or brothers, feel free to message me.

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                • #9
                  I'm so sorry. I know the grief of losing a grandmother. My grandma had Alzheimer's and no matter what I knew about her health and condition. I was not prepared. I don't think that's possible. I'm thinking of you and your family and sending my best thoughts and wishes.

                  K
                  Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                  Lexapro-20 mg
                  Aciphex
                  Ambien-as needed
                  Percocet-7.5 up to 3 per day as needed
                  Valium-10 mg x2 per day
                  Phenergan-1 at night
                  Prelief w/everything
                  Now recovering from acute pancreatitis

                  Currents treatments that help somewhat:
                  Heating pad
                  Hot baths
                  Ice
                  Being VERY still while lying down with legs elevated

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                  • #10
                    SueC
                    [email protected]

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                    • #11
                      Sending prayers, yes it is very hard.
                      Jolene

                      "Life is what happens when you are making other plans" John Lennon

                      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                      Information for Patients can be found here.
                      http://www.ic-network.com/patientlinks.html


                      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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                      • #12
                        Oh, Amaranthe, this still is very heart-wrenching. My prayers for you and your family.

                        And, Floridamom , I'm sorry you've recently lost your father. My prayers for you and your family also.
                        Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

                        11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
                        8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
                        8/2010 Surg gallbladder
                        TREATMENTS (updated 4/15)
                        IC Diet since 8/2009 (Able to vary 4/15)
                        Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
                        Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
                        Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
                        *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
                        Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
                        PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

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                        • #13
                          Hugs and prayers to you and your family.

                          No loss is ever easy, regardless of age.
                          Frances

                          Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                          Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                          Other conditions: Migraines, allergies, mild IBS.


                          "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

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                          • #14
                            I am so very sorry dear. Sending big hugs and lots of prayers. you know how to get a hold of me.
                            'The will of God will never take you where the Grace of God will not protect you.'

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                            • #15
                              I am so sorry for your loss. (((Hugs)))
                              Sharon

                              Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                              Where I can be found most days.



                              Link to the ICN Patient Handbook:
                              http://www.ic-network.com/handbook/

                              Link to the IC Diet:
                              http://www.ic-network.com/diet/


                              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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