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  • Prayer Request

    To my IC family, I asked that you pray that my laprascopy and bladder hydrodistension tommorow goes well and a safe recovery. Im very afraid of doctors and hospitals. I hate being put to sleep also. I guess Im a lil paranoid. Im worried about the recovery pain. There arent too many prescription pain killers that I can take without it disturbing my gastritis and IBS causing me stomach cramps, naseau and profuse sweating. I also had a really bad day at school.(Im a graduate student btw). The professor embarrased me in front of the whole class. It was unecessary and I feel unethical. Its a long story but Im crying as Im typing this. I walked out of the class even though I wasnt suppose to because I was angry and I wanted to show him that Im not going to sit through class after he degreaded me. and now my grade could be on the line and possibly I might be dropped out of the program. This was one of the most embarassing experiences of my life and Im finding it hard to cope with that and the anxiety that I have about tommorow. thanks so much ur prayers are appreciated
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy

  • #2
    Wishing you an uneventful surgery and recovery.
    (\__/)
    (o.O )
    (> < ) This is Bunny. He's on his way to world domination.

    Comment


    • #3
      Link to the patient information, everything from What is IC? to Disability
      http://www.ic-network.com/patientlinks.html

      American Urological Association Clinical Guideline
      Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
      http://www.auanet.org/content/guidel...ent_ic-bps.pdf

      Comment


      • #4
        I'll be thinking of you today.

        And please do report the comments made by that professor!


        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5

          I pray all goes well for you today. So sorry your professor put you through that. Shame on him!

          Vicki
          "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

          Comment


          • #6
            Hope you made it through okay, please let us know how you are doing. Shame on that professor, what a jerk. Had one like that in college as well. I pulled him aside one day and read him the riot act. He never bothered me again and I aced the course (deservedly so). Sometimes you need to speak up. He has no regards for your feelings, so don't worry about his. Maybe you will save future students some misery. Save the world girl!!! Hope you are okay and getting through your recovery. Take it easy for a while if you can. Jill, wife of Bob
            Last edited by ICNDonna; 03-19-2011, 07:55 AM.

            Comment


            • #7
              thanks everyone

              The professor did apologize. He was stressed out he states. I believe in forgiveness so I moved on. The lap and cysto went well. but my IC is now severe. I also may have endo of the bowels. The removed tissue has been sent to the lab for testing. Im flaring a bit now I think from the hydrodistension. I hope it helps though. It looks like I will be doing rescue instillations for a while.
              Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

              I have moderate-severe IC

              Currently stopped taking all medications due to pregnancy

              Comment


              • #8
                <center>
                <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
                </center>

                Comment


                • #9
                  I pray that the rescue instills help you!

                  Best Wishes,
                  Aleet7
                  DX'd with IC 5/08
                  other Dx's~SVT: had Catheter
                  Catheter Ablation Aug 19,2010
                  Migraines, PFD, Hypertension,
                  Prolapsed Pelvic
                  Organs and Degenerative Disc
                  Disease, Kidney stones, Insomnia
                  Two bulging discs w/tears and osteo
                  arthritis in multiple joints in the spine



                  Current Meds:Elmiron 400 mg per day
                  Benicar Hct 40-25mg for Hypertension
                  Norvasc 2.5
                  Vicoden as needed for pain
                  Cymbalta 30 mg
                  Prelief
                  CystaQ
                  Prosed
                  Lidoderm Patch


                  Psalm 121
                  I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.


                  "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

                  Comment


                  • #10
                    thanks, I may not be able to get them. I find out tommorow. Insurance may not cover the indregients. its always something.....
                    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

                    I have moderate-severe IC

                    Currently stopped taking all medications due to pregnancy

                    Comment


                    • #11
                      I'm praying that your insurance covers the instill supplies. Please let us know if it does.

                      Hugs,
                      Aleet7
                      DX'd with IC 5/08
                      other Dx's~SVT: had Catheter
                      Catheter Ablation Aug 19,2010
                      Migraines, PFD, Hypertension,
                      Prolapsed Pelvic
                      Organs and Degenerative Disc
                      Disease, Kidney stones, Insomnia
                      Two bulging discs w/tears and osteo
                      arthritis in multiple joints in the spine



                      Current Meds:Elmiron 400 mg per day
                      Benicar Hct 40-25mg for Hypertension
                      Norvasc 2.5
                      Vicoden as needed for pain
                      Cymbalta 30 mg
                      Prelief
                      CystaQ
                      Prosed
                      Lidoderm Patch


                      Psalm 121
                      I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.


                      "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

                      Comment


                      • #12
                        prayer request

                        Good luck.

                        Comment


                        • #13
                          Insurance Denied

                          My insurance company will not cover the compounding for the ingredients of the instills. The only thing that they will cover is elmiron. . I have an appointment with a new doct I found on the IC network. He is suppose to be up to date with treatments. Im traveling 2 hours to see him. Hopefully there are other options out there. The uros out here dont know much about IC and quite frankly dont seem to care. thanks guys for the prayers. I really need them right now. The hydrodistension I just had didnt seem to help and I also have BV again
                          Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

                          I have moderate-severe IC

                          Currently stopped taking all medications due to pregnancy

                          Comment


                          • #14
                            I'm sorry that your insurance will not cover everything for your instills! Right now I'm doing instills with 1 Elmiron capsule and sterile water. It helps a lot. I pray that this other doc has some other solutions for you!

                            Best wishes,
                            Aleet7
                            DX'd with IC 5/08
                            other Dx's~SVT: had Catheter
                            Catheter Ablation Aug 19,2010
                            Migraines, PFD, Hypertension,
                            Prolapsed Pelvic
                            Organs and Degenerative Disc
                            Disease, Kidney stones, Insomnia
                            Two bulging discs w/tears and osteo
                            arthritis in multiple joints in the spine



                            Current Meds:Elmiron 400 mg per day
                            Benicar Hct 40-25mg for Hypertension
                            Norvasc 2.5
                            Vicoden as needed for pain
                            Cymbalta 30 mg
                            Prelief
                            CystaQ
                            Prosed
                            Lidoderm Patch


                            Psalm 121
                            I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.


                            "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

                            Comment


                            • #15
                              I hope things get better for you real soon.

                              Keep the Faith
                              Rebekah - Diagnosed with IC and Hunner's Ulcers in March 2009

                              Two Hunner's Ulcers were removed by laser surgery surgery Jan 15 , 2010

                              Proud Mother of Jeremy Jr. Born on Wed May 4, 2011

                              "For every door that is closed a new one is opened"

                              The Lord's Prayer

                              Our Father, who art in heaven,
                              Hallowed be thy Name.
                              Thy kingdom come.
                              Thy will be done,
                              On earth as it is in heaven.
                              Give us this day our daily bread.
                              And forgive us our trespasses,
                              As we forgive those who trespass against us.
                              And lead us not into temptation,
                              But deliver us from evil.
                              [For thine is the kingdom,
                              and the power, and the glory,
                              for ever and ever.]
                              Amen.

                              Comment

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