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I am asking for prayer. Having a real hard time dealing with this. My family is really sick of seeing me cry all the time.I see my 3rd Uro next week. I am also praying God will give him the knowledge needed to help. Thanks so much.
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Diagnosed December 2010
Philippians 4:13- I can do all things through Christ which strengtheneth me.
John 3:16 -For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.
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"Let not your hearts be troubled; believe in God, believe also in me. John 14:1 Trust in the Lord with all your heart, and do not rely on your own insight. Proverbs 3:5 Amen! -
I saw four other uros, (two of them just once), before finding luck with my fifth. Hang in there! I am sure that your family is just frustrated & worried for you. Best of luck with your appt. next week.Comment
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Link to the patient information, everything from What is IC? to Disability
http://www.ic-network.com/patientlinks.html
American Urological Association Clinical Guideline
Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
http://www.auanet.org/content/guidel...ent_ic-bps.pdfComment
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I will definitely be praying for you!
"Praise be to the God and Father of our Lord Jesus Christ, the Father of all compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God... We were under great pressure, far beyond our ability to endure, so that we despaired of life itself. Indeed, we felt we had received the sentence of death. But this happened that we might not rely on ourselves but on God, who raises the dead."
-2 Corinthians 1:3-4 and 8-9Emily Anne
Had abdominal pain since I was 12 that started getting much more severe when I entered college. I just got diagnosed in February 2011.
Medications:
Elmiron (100mg) 3x/day
Prelief
Diagnosis:
Severe IC, Bladder which holds 300 mg rather than the normal 600 mg, Pelvic Floor Myalgia, Imperforate Hymen (surgery in 2008), Ovarian Cysts
Treatments:
Heating pad/rice sock, laying down when in pain, rescue IC diet
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Joining with others in prayer for you to find the right doctor and get relief from your symptoms soon. I know it's hard on the family, but they're probably just hurting because they don't know how to help.
Blessings,Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
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i hope you find a dr to help you soon.Comment
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In need of prayer
Things will get better.
LaurieComment
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Thanks EVERYONE for the prayers and continued support. I don't know what I would do without this support!
Diagnosed December 2010
Philippians 4:13- I can do all things through Christ which strengtheneth me.
John 3:16 -For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.Comment
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Praying for some answers and much needed relief.
I really understand the 'family' aspect of this. My husband is beside himself with taking care of the 3 little ones when I have to lay down with "Oscar" aka my heating pad.
I will continue to pray for you hon
Canadian daisy
Current Medications: doses go up and down..
Dilaudid, Elmiron, Neurontin ,Flexeril ,Pariet, Ibuprofen, Ativan, Valtrex, Vitamin D, Caltrate, Premarin Vag Cream, Triamcinolone Injections in Perineum, Depo-Medrol for Trigger Point Injections, Biscodyl, Citromag, Milk of Magnesia, Xylocaine JellyComment
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