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I am a teacher. One of my former students, who i love like one of my own called today. His grandmother, who raised him and countless foster children, passed away. This woman was amazing. She loved this boy with everything she had. She raised him through her two bouts of leukemia and countless other sicknesses. 80+ raising two teenage boys. I heart breaks and aches my child. The pain I know he will soon feel is overwhelming. I wish i could take that pain away from him. Ironically, it is the anniversary of my own father's death. At the time of his death I was just meeting this young man. He came into my life and gave me a purpose and a reason to live again. Please for him and the rest of his family during this time.
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IC-diagnosed August 1998 with cystoscopy and hydro
IBS-diagnosed in 1998 probably had for majority of my life
Fibro-Diagnosed in 2010
Other conditions: Depression, High Cholesterol (irony)
Primary symptoms: PAIN, bloating, frequency, urgency, fatigue
Current Meds: Elavil 10mg at bedtime, Toviaz 4mg at bedtime, Lyrica 3x a day
Failed meds: Vesicare, Detrol LA, Celexa, Vioxx, Celebrex, Ditropan XL, Elmiron
"In the middle of difficulty lies opportunity." -
Oh, how this person must be in your life for a special reason.
Prayers indeed.......Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure.
I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
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That is so sad.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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This is so sad, I am sorry for you, this boy and what family he has.
I too believe god puts people into our lives for reason and purpoes, although we may never know why.
I hope this boy can deal with this okay.
You said he helpped you through your fathers death, now it is your turn to help him.
MG
My are with you all. May you all find a way to peace and joy in your lives.Comment
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My condolences, if you can get access to a book called (God Is For Real) it will soothe your hearts and soul.
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prayers please
I am so sorry to read this.
LaurieComment
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saying prayers for the young man. Such a sad time for himComment
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