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Please say a prayer for this young lady

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  • Please say a prayer for this young lady

    A friend's granddaughter, Katie, around 20 years old, was at a party this past weekend when she tripped and fell down a flight of stairs. I'm not sure about details, but she fell in a way that her head was trapped, twisting her neck and cutting off oxygen to her brain until they were able to release her. She's currently in the hospital, on life support, and it doesn't look good. Katie and her family appreciate all prayers.

    Thank you for thinking of her and for your prayers.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

  • #2
    Re: Please say a prayer for this young lady

    How sad- The family must be devastated. I will put her in my thoughts and prayers today.

    Comment


    • #3
      Re: Please say a prayer for this young lady

      Praying. How is she?
      Diagnosed Dec 2015 via cystoscopy

      Current treatments - Elmiron 100 mg. 3x daily (this is hard to manage on an empty stomach, but I'm trying), Amitryptiline 25mg, IC Diet

      Other medications - Imitrex (as needed for migraines), Levothyroxine (Hashimoto's)

      Comment


      • #4
        Re: Please say a prayer for this young lady

        Has there been an update at all?

        Comment


        • #5
          Re: Please say a prayer for this young lady

          I am praying for her!!!!
          Diagnosed via cysto/hydro 2/6/2015
          Symptoms: frequency, urgency. uretha discomfort, mild bladder pain (a raw sore type feeling.)
          CURRENT TREATMENTS:
          IC Diet (2/15) , Elmiron 100-300mg (3/15-5/16) insurance issues switched to PPS-DR (5/16-present) 2 150mg capsules daily (pentosan polysulfate sodium same formulation in Elmiron) DH Aloe 3-6 capsules daily (3/15), Schiff Digestive Advantage probiotics 1 pill daily (3/15), Amitriptyline 25mg- (5/15-8/16)attempting to wean down due to suspected weight gain side effect. Hydroxydine 25-50mg as needed at bedtime (5/15) Quercetin 2 pills daily to help immune system and body inflammation. Cystoprotek 4 capsules daily (8/15). Prelief as needed.
          USE DURING FLARES: Heating pad, ice packs for PFD, Vaginal Valium 10-20mg, Uribel, Pelvic floor stretches.
          PAST TREATMENTS: PFD physical therapy (6/15-10/15) & Counseling for stress mgt (9/15-12/15) both very helpful. GNC brand progesterone cream (not sure if this made a difference). Too many different diets and herbs to list.
          TRIGGERS: STRESS STRESS STRESS. BCP. Hormonal fluctuance (ovulation/period). Coffee, artificial preservatives and dyes.

          Comment


          • #6
            Re: Please say a prayer for this young lady

            How terrible. Any updates???

            Prayers,
            Jane
            Jane
            Diagnosed 1/7/14 via cysto/hydro

            Current Treatment:
            10 mg amitriptyline, DH Aloe Vera

            Used During Flares:
            Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

            Practicing bladder training and stress control (hot baths, pelvic stretching)
            Recently tried PT, do not appear to have PFD

            Things that have not helped in the past:
            Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

            Also have migraines and IBS

            Comment


            • #7
              Re: Please say a prayer for this young lady

              This beautiful young lady is with the angels now. It's very sad --- she had a wonderful smile and was a kind, gentle person.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Re: Please say a prayer for this young lady

                I am so sorry to hear this. My condolences to you and her family.
                Diagnosed via cysto/hydro 2/6/2015
                Symptoms: frequency, urgency. uretha discomfort, mild bladder pain (a raw sore type feeling.)
                CURRENT TREATMENTS:
                IC Diet (2/15) , Elmiron 100-300mg (3/15-5/16) insurance issues switched to PPS-DR (5/16-present) 2 150mg capsules daily (pentosan polysulfate sodium same formulation in Elmiron) DH Aloe 3-6 capsules daily (3/15), Schiff Digestive Advantage probiotics 1 pill daily (3/15), Amitriptyline 25mg- (5/15-8/16)attempting to wean down due to suspected weight gain side effect. Hydroxydine 25-50mg as needed at bedtime (5/15) Quercetin 2 pills daily to help immune system and body inflammation. Cystoprotek 4 capsules daily (8/15). Prelief as needed.
                USE DURING FLARES: Heating pad, ice packs for PFD, Vaginal Valium 10-20mg, Uribel, Pelvic floor stretches.
                PAST TREATMENTS: PFD physical therapy (6/15-10/15) & Counseling for stress mgt (9/15-12/15) both very helpful. GNC brand progesterone cream (not sure if this made a difference). Too many different diets and herbs to list.
                TRIGGERS: STRESS STRESS STRESS. BCP. Hormonal fluctuance (ovulation/period). Coffee, artificial preservatives and dyes.

                Comment

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