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Guidelines For This Forum

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  • Guidelines For This Forum

    The IC Network has always embraced the concept of spirituality because, clearly, faith can give great comfort to those who are struggling with IC. On our site, we have nearly every religion represented including christians, muslims, jewish, hindu, buddhist, agnostic, atheist, wiccan, pagan and more.

    Unfortunately, 9/11 changed the religious support discussions in our message boards when, in the days after that tragedy, we had fundamentalist postings from several faiths blaming each other for the events of that sad day. This was completely unacceptable. Thus, we removed those religious discussions and created this one "spirituality" board where patients could embrace their faith but not cast aspersions on other religions.

    For those unclear on the purpose of this board, let me offer what we're looking for:

    - We welcome all postings which are encouraging and non-critical.
    - We welcome all religious faiths but ask that your comments be non judgmental in nature.
    - We welcome all postings that offer comfort to others.

    - - We will not tolerate any negative comments about other religions.
    - - We will not tolerate any statements which imply that IC is the result of sin and/or the lack of following any faith.
    - - We will not tolerate postings which criticize patients for following their religious paths.

    If you are looking for indepth religious discussion, you'll found a bounty of websites on the web that offer great support communities.

    Thank you for your patience and understanding.

    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.

  • #2
    Thanks for the reminder Jill!

    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control


    • #3
      Thanks for the reminder! I am thankful that we have this place to come to support each other in our respective paths. Hugs, Amy


      • #4
        Thanks Jill,
        We are all here to support each other no matter what we believe in....

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5

          Thanks for this message board.