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  • Most Spiritual Experience

    I think the most spiritual experience I have had this year happened in Albuquerque, NM, where my family and I, who live in NJ, were visiting my favorite cousin Bobby. Bobby is in his mid-50's. He has a son Mark who is 30 (also a daughter Dana who is 26 and has a baby daughter, but she does not figure into the story).

    Anyway, we took a tram ride up to Sandia Peak, a beautiful mountain ridge, where you can hike right along the ridge line. The first miracle was that I felt well enough, that day, to even attempt a (verrrry slow) hike.

    So we got on the trail, and after a while the five of us split into groups. My husband Jack (46 at the time) was a few yards ahead of me, talking with Mark, and my daughter Susannah (11) was behind me, deeply engaged in conversation with Bobby. And I was just walking along alone, in the middle, and marveling at the way all these people who belonged to me, who have been separated so much by age and distance, were bonding so easily and naturally. And as I walked, breathing the open dry Southwestern air, I felt this great sense of peace settle over me. A sense of being connected to my family, immediate and extended, and a sense of being connected to the Universe. Just in that one moment, I felt perfectly content and relaxed.

    It's a memory that I treasure, and that I think about now and then when I'm alone. I don't know if it means anything, or if it would make sense to anyone else. I only know that it was deeply spiritual and beautiful to me, and I felt completely at home, up on the mountain ridge in New Mexico.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn
    ___________________________________________________

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


    On the Beach with IC

  • #2
    It makes perfect sense...

    I dont know what it is about the mountains, but they have that affect on me..
    When we evacuated to Tenn, because of hurriane Katrina, We ended up in the Cherokee Mountains in a cabin that was just beautiful.. It was the most peaceful and spirtual place I had ever been, so even though I knew I had nothing to come home to, because my house was distroyed..

    We had no cable tv and our cell phones would not work way up there...I had two weeks of pure serenity.. I think it really prepared me for what was to come....




    Ronda
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    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


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    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      What a beautiful experiance! That must have been incredibly moving. Thank you for sharing that with us here. You have just perfectly described spirituality. It is about the union of mind, body, and spirit and the feeling of connection and harmony with your surroundings. Your experiance fits that perfectly! Thanks again for posting it for us to appreciate!

      Hugs,
      Amy

      Comment


      • #4
        That is wonderful Carolyn that you had a great time being with family and able to enjoy it. No wonder you were so relax being out and able to view all the creation and the beauty it behold, it is breath taking. That is a memory for a life time.

        Sending hugs, Trishann

        Comment


        • #5
          It makes perfect sense. This is how I feel when I spend time with my family on the beaches of the National Seashore on the Cape... early mornings or evenings, when no one is around but the seagulls, the waves, and me. I always say that I leave what I guess I'd describe as my "soul" there... and when I go back each time I find it again. Then, I get that peace when it settles back into me, if only for a while...
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            I also have that experience when I go to Amelia Island, FL. We stay at the same Condo on the top floor when we go. The very first thing I do is rush to the sliding glass doors, throw them open and walk out onto the balcony. There, I see the ocean view before me, breathe in the ocean air, hear the waves crashing onto the shore, and drink in the whole experience. That wonderful, spiritual feeling I get stays with me until I am able to go back. Even now, I can close my eyes and experience the ocean.
            Sharon

            Shopping??? Did someone mention shopping? I'll get my hat... ;-)

            Where I can be found most days.



            Link to the ICN Patient Handbook:
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            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              Carolyn,
              Thanks for sharing that with us
              Miss Bessie

              Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

              Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

              Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

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              • #8
                You know, it's funny, Jen, because I grew up near the ocean and I have always considered the seashore, and one particular spot on a barrier island off the coast of New Jersey, to be my real "spiritual home." But then, there is just something about the mountains... it kind of took me by surprise.
                Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                Wishing you happiness and good health, and all the best out of life.

                Peace, Carolyn
                ___________________________________________________

                Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                On the Beach with IC

                Comment


                • #9
                  I love being lost in the moment. It is the best, especially if your thinking about god and jesus. I like the scripture also that says drink my water and you will never thirst. eat my body and you will never be hungry. to never worry about eating and drinking stuff that would hurt you. that will be great.
                  not yet dx with ic-diagnosing myself as of aug 2006
                  diagnosed ic-october 5 2006(huh just what I thought)

                  Charcoal
                  cod liver oil (for vitamins a and d)
                  bladder is not getting worse but maybe better
                  diagnosed ibs-september 27, 2006
                  don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
                  all this even though I eat.
                  Mercury toxicity with Candida Albicans
                  Realy toxic and sick
                  Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
                  had catscan, ultrasound, colonoscopy
                  Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."

                  I eat to live, not live to eat.

                  Comment


                  • #10
                    I think the times I feel most at peace with myself and my world are when I'm with my family --- I have step-daughters, as well as children of my own (all are adults now), grandchildren, and one great-grandchild. When I see how all these young people: step sisters and brothers, their spouses and see how well they have melded into one very close family it totally amazes and pleases me. I feel truly blessed.

                    Thank you, Carolyn, for sharing your experience.

                    Warm hugs,
                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Originally posted by ICNDonna
                      I think the times I feel most at peace with myself and my world are when I'm with my family --- I have step-daughters, as well as children of my own (all are adults now), grandchildren, and one great-grandchild. When I see how all these young people: step sisters and brothers, their spouses and see how well they have melded into one very close family it totally amazes and pleases me. I feel truly blessed.

                      Thank you, Carolyn, for sharing your experience.

                      Warm hugs,
                      Donna
                      Same here, Donna! For me, it is watching Collin sleep at nite. There is something so beautiful, just watching the rhythm of his breathing, with his little mouth hanging open. He looks so peacful. Lots of times, I put my head down to hear his heartbeat too. I know that is corny as all get out, but for me, he is part of my soul.

                      Steve kids me all the time and asks me if I am going to go over to his house when he grows up, and sneak in his room at nite so I can still do that! He even got me a book to read to Collin called "I'll love you forever". It is about a Mom who does that. It is a children's book, but it is more my favorite than Collin's. I dont think he will ever really get what it means until he watches his own child when he sleeps.

                      Along the same lines, I guess the most spiritual experiance of all, was holding him for the very first time. Seeing this tiny person, totally dependant on me, trusting me to do everything for him. I was in awe of it all. It was very moving, to finally be holding him in my arms, after feeling his movements inside me for so long, wondering what he would look like, and there he was!

                      ***sniffle**sniffle** I am such a softie!!! So, tell me, Donna. You have grown children....Do you ever get the urge to drive to their houses in the middle of the nite to watch them sleep? Or does the urge go away one day?

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                      • #12
                        Originally posted by tabasco32
                        I love being lost in the moment. It is the best, especially if your thinking about god and jesus. I like the scripture also that says drink my water and you will never thirst. eat my body and you will never be hungry. to never worry about eating and drinking stuff that would hurt you. that will be great.
                        Your not alone in this scripture I believe in it very much myself. No matter what religion it is how life works. THanks for sharing your thoughts.Just wanted to tell you I agree with this one

                        Comment


                        • #13
                          I did get over watching my children sleep about the time they opened their eyes and said something like "Mom, what are you doing." :::::giggle:::::

                          Now those little babies who were so dependent have become very independent and I have some wonderful, loving, adults, who are my best friends.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment


                          • #14
                            Amy,
                            I bought the same book for my son when he was little
                            I LOVE that book......I use to try and read it to him and would always cry before I could finish it. My son is now grown and I so want to go over and check on him. They never quit being your babies.
                            Miss Bessie

                            Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                            Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                            Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                            Comment


                            • #15
                              I am closing this thread. It seems to be leading to divisive comments, rather than comments looking for the good and what we have in common among our different faith groups.
                              Kim

                              Diagnosed August 2001

                              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                              *****************************

                              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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