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I'm in Desperate Need

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  • I'm in Desperate Need

    I just got out of the hospital with my 2nd bought of pancreatitis in less than 5 months and so far, everything I've read with the attacks being so close has NOT been good.

    I am so afraid for my life. I don't know how I can possibly deal with the ICflares knocking me down for the count at any given moment, now I have to worry about the pancreatitis too. For years I've been breaking family plans because of IC issues and now this The day before I was admitted thru the ER was actually a good day and I felt that I'd found an antibiotic that was going to work for me.....well, within hours I was in the ER. With pain so bad that I was getting 100 mg's of demmerol every 2 1/2 to 3 hours.....and, then, of course, because of the strees that was goin' on, I am also in a full blown flare.

    I needed to stay in the hospital longer but what good would it have done? I've got to learn another new way to pick "normal" for me and staying stoned in the hospital isn't going to help.

    I don't even feel like grabbing for the knot anymore banghead banghead banghead
    Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

  • #2
    Teri, I'll say an extra prayer for you.

    Gentle hugs,
    Stay safe

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3
      grouphug grouphug grouphug grouphug Teri I will be praying for you. I have been thinking about you and wondering how you have been doing. Iam so sorry that you are going through so much. You just hang in there. There is hope.
      Hang in there , There is hope.
      There is hope. Prayer works.

      Love, Debbie


      • #4

        Lots of extra hugs and love coming your way. kissing grouphug kissing grouphug
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


        • #5
          {{{Teri}}} I am feeling so frustrated that I can't think of the right words to say.... But do grab that knot. You are special and your presence is needed. Especially here. kissing

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


          • #6
            Will keep you in my prayers. Doesn't seem fair to have to deal with another painful disease. Hang in there.


            • #7
              poor teri grouphug grouphug grouphug I will say a ex prayer for you no problem at all.
              i'm so sorry you are having to go threw this please keep us updated on how you are. kissing
              Medicine taken daily or as needed:
              1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
              2. MS.Cotin 100mg 3x daily
              3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
              4. Fentanyl 100 mg Change every 48hrs.
              5. Gentamicin 80mg install after each rescue treatment
              5 Leviquin 500mg self start as needed.
              6. Klonopin 1 or 2 daily as needed.
              7. Prosed/DS as 1 every 6hrs as needed.

              I have IC, but IC doesn't have me anymore!


              • #8
                Teri, grouphug grouphug
                I feel so bad for you. That has got to be painful. I sure do wish they would figure this out for you. Saying lots of extra prayers for you.


                "Life is what happens when you are making other plans" John Lennon

                IC diet cheat sheet....

                Information for Patients can be found here.

                Jen's tips for great IC sex..[/url]

                Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."


                • #9
                  (((((((((teri))))))))))) Good thoughts and prayers your way.......
                  Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn


                  • #10
                    sending prayers and hugs your way
                    'The will of God will never take you where the Grace of God will not protect you.'


                    • #11
                      I am so sorry. I hope you find relief and a number of good days soon. grouphug grouphug grouphug

                      May the Lord help you and heal you.
                      Faith, Hope, and Love,

                      I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

                      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      or find me on facebook
                      Be the Miracle! & Pay it Forward!

                      [email protected] please contact me...I am here to help!


                      • #12
                        Hi Teri,

                        I read your post and just HAD to respond. You touched my heart and soul with this post. I have been through an awful lot lately and understand exactly how you feel.

                        That knot you mention seems so high and hard to reach sometimes, most of the time, doesnt it?

                        I too was in the hospital, once just in the ER and sent home saying I'd been passing kidney stones, then a couple days later with a high fever and a severe E. Coli infection, and I too think I could have used another day or two in the hospital.

                        Honey, I just want you to know you are not alone. I understand health issues, life issues, everything that goes along with having chronic illnesses. I'd love to talk to you some time in detail.

                        I'm not sure if we've 'talked' before, but please, please believe me when I say I have been and am where you are now.

                        Email me at [email protected] or pm me. Anytime. I think we could help each other a lot, and I want you to know you are not alone, lots of us understand exactly where you are.

                        Hugs, Sandy


                        • #13
                          Hi Teri, I'm so sorry to hear about your illness. I hope that the love and support from the boards helps a little. We're all in your corner. Sending you loads of gentle hugs and good wishes, little bear