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  • Need some "ME" prayers

    Same old song and dance...UTI, UTI, UTI. 18 months now and this is by far the worse. Guess my body is getting so use to them that I have to literally be peeing puss before I have a clue I've got one, even tho I am cultured monthly now. This time we are trying a months worth of leviquin to see if we can get any results. Cauterizing the bladder neck didn't help for longer than a month. Maintence antibiotics isn't helping. Sometimes just feels like such a waste. I know that I should be in the ER right now trying to get some pain relief but I just phyically can not cope. AND, the hospital that I'd have to go to happens to have the uro who destroyed my life as chief of uro now and NO WAY am I putting my life in that man's hands again, not even for a minute.
    So, if you could remember me in your bedtime prayers I'd appreciate it....I need to get better. Too many things need taken care of~
    teri
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

  • #2
    {{{{{{{{{{TERI********************

    [email protected]

    wish i could do more...!~!~!~!~!

    Prayers , hugs , gentley.......

    Breathe,, in and out slowly. laugh at yourself............just laugh!
    were here for you anytime teri..........lol, i tried to spell your name tire....lol...lol
    at least i had the right letters!~!~!~!~!~!~!~!
    SORRY.
    Sue C.~
    [email protected]

    Comment


    • #3
      Oh, Teri.... Prayers, prayers and more prayers... UTIs suck.
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

      Comment


      • #4
        I was never more miserable than with the one UTI I had with my IC. Sending all kinds of prayers your way.
        Jolene kissing
        Jolene

        "Life is what happens when you are making other plans" John Lennon

        IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

        Information for Patients can be found here.
        http://www.ic-network.com/patientlinks.html


        Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




        Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

        "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

        Comment


        • #5
          If your uro admits you to the hospital, no other doctor has anything to say about your care. The only exception would be if your uro is out of town, his partners would care for you.

          And if you're worried you can specifically request that your old doctor not have anything to do with your care.

          Hugs and prayers headed your way,
          Donna
          Stay safe

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            {{{{{{{{{{{{Teri****************** prayers for you. Utis are hard and painful with ic. Donna is right, you can ask not to have your old doctor take care of you. Get some help and some pain relief my friend. You deserve it. I am doing better each day but am sore but I know I can handle it sometimes. Hang in there. There is always hope. angel grouphug
            Hang in there , There is hope.
            There is hope. Prayer works.

            Love, Debbie

            Comment


            • #7
              Hi Teri,
              I'm sorry you are having more trouble. Yes, I will say a prayer for you, in fact I was thinking about you this morning, wondering how your sister is doing???
              HUGS AND PRAYERS,
              GOD BLESS!
              SUSAN
              Susan
              People may not remember exactly what "you did, or what you said, but- they will always remember how you made them feel"

              Comment


              • #8
                Teri...

                You will be in my prayers. kissing ...Sharon
                Sharon

                Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                Where I can be found most days.



                Link to the ICN Patient Handbook:
                http://www.ic-network.com/handbook/

                Link to the IC Diet:
                http://www.ic-network.com/diet/


                IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  Dear Teri -

                  ((((((TERI)))))))

                  ......sending MANY MANY PRAYERS........

                  Lauren

                  grouphug angel grouphug angel grouphug
                  Lauren


                  "May the road rise up to meet you,
                  may the wind be at your back.....
                  and may God hold you in the palm
                  of His hand."

                  A Gaelic Blessing

                  Comment


                  • #10
                    Dear Teri,
                    I will be praying for you. I am newly diagnosed and so frightened. I would really appreciate your prayers, too. I feel like I might know how you are feeling. IC is so overwhelming at times. But God will see each of us through it with His strength.
                    Lots of prayers going your way...
                    Barbe
                    Barbe

                    Comment


                    • #11
                      I will keep you in my prayers Teri, you are a special person and I am sure God will look down upon you and make things a little easier for you. Just do as other say and request that the old doc don't have anything to do with you while you are in the hospital, they don't have to know the reason. It is confidential to you.
                      Good Luck, I will be praying for you.
                      Sue
                      Sue

                      Comment


                      • #12
                        This is the first time I've been here. I've had IC for 20 years, and am in the middle of an episode as I type. The feeling that I have to "go" is so strong and seems to just overwhelm me...I can't stand it. At 48 years old, I've had totaly sleepless nights-due to the discomfort.
                        I'm so sorry any of you have this too. I've learned (on my own) how to deal with most episodes.........with a plethora of self help ideas/ etc... some are peculiar, some typical.
                        It's past my bedtime. Will look tomorrow on this board. I'm not that used to computers, but will try. I wish all of you the best. -Amber

                        Comment


                        • #13
                          Amber and to the ICN family I'm sure after having IC for twenty years you know about the IC diet but for some reason you may need to look over it again or new treatments you may find this at www.ic-network.com/handbook
                          if this flare your having it due to something you ate or drank you may find some relief with a tums, or if you don't have high blood pressure maybe one tsp of baking soda to an eight oz of water may help settle that painful bladder down. prelief is also good to use before you eat or drink something your not to sure about.
                          heating pads, or an ice pack helps me also
                          do you think you may have a UTI going on?? Oh those sucker are so painful. If this is a new systom i really believe you should call your doctor that treats you for IC
                          if you can't get in touch with him/her you may want to go in to the e.r for pain control No one should suffer with pain!!
                          you will get more replys if you post a new thread for your self to let the others here know your a newbie on the boards.
                          We are glad you found us and we will be here for you anytime. I do pray you get some rest tonight bless your heart.
                          the best thing about this site is we do understand each other. we are not doctor but we are here for you.
                          please check out the link i gave you when you have the time.
                          sending you hugs and prayers
                          Rhonda
                          Medicine taken daily or as needed:
                          1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                          2. MS.Cotin 100mg 3x daily
                          3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                          4. Fentanyl 100 mg Change every 48hrs.
                          5. Gentamicin 80mg install after each rescue treatment
                          5 Leviquin 500mg self start as needed.
                          6. Klonopin 1 or 2 daily as needed.
                          7. Prosed/DS as 1 every 6hrs as needed.





                          I have IC, but IC doesn't have me anymore!

                          Comment


                          • #14
                            sending you prayers and hugs.

                            Take care
                            Kim

                            Comment


                            • #15
                              I have reposted the last 3 posts into a new thread under share my story so that they might be seen better. This is a very old thread and I think Amber will have more people see it under the new thread.
                              Jolene

                              "Life is what happens when you are making other plans" John Lennon

                              IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                              Information for Patients can be found here.
                              http://www.ic-network.com/patientlinks.html


                              Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                              Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                              "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

                              Comment

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