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  • #16
    Sandy,

    That was a great explanation about the difference between addiction and tolarence. I also love what Dr. Brookoff said in one of the transcipts on the ICN regarding this issue. He states that no Dr. can turn someone into an addict. It is either in them or it isnt. But, if they are taking the med for the purpose it was intended, to relieve pain, then there is no way to become addicted. Tolerant, yes. But addicted, no.

    April, So glad you are out of the hospital. Hope you feel better and better with each passing day.


    Hugs,
    Amy

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    • #17
      Sandy,

      I COMPLETELY agree with you. I, like most on here, have probably been accused of being an addict. My husband and I were infuriated one night because we went to the ER when NOTHING ELSE would help (before I was diagnosed with IC) and my complaint was severe pelvic/bladder pain and the inability to urinate. The doctor stood right there and told my husband that, "people like me NEVER get better.....that they are addicts and always will be addicts..." All this because there was nothing on the lab work to show a clinical problem. However, as we all know there are no "lab" tests to diagnose or prove IC. My Urologist told me that after a cysto and bladder distention that IC was a diagnosis of exclusion when nothing else is present such as bladder cancer. I was not writing what I said earlier because I thought we're addicts. I am the first to defend people with chronic pain. My stance is that pain should be treated as the fifth vital sign and if someone is in pain and their blood pressure shows it or they act as if they are in pain, then it should be treated like you would treat someone with an obstructed airway (with the seriousness). Thanks for your thoughts.

      Originally posted by SandyRN
      I almost cruised right by this post, but I had to say that addiction is NOT tolerance, and tolerance is NOT addiction, not even close. They are two very different things and really, are not even related. Addiction is needing more and more drugs to acheive a HIGH, tolerance is needing more and more drugs to alleviate pain. The difference is that we NEED the pain meds to get through our daily lives, not to take them for the high. In fact, I do not even get a high from my meds. After changing meds, yes, I have felt loopy and out of it for a day or so, but it goes away.

      If you are addicted to pain medicines, then you like the high and are not taking it for the right reasons. If you are TOLERANT to pain medications, then you are in pain and your body is acting the way it is supposed to act.

      BTW, I loved the story and didnt come here to start this discussion. We hear enough about "addiction" from uncaring doctors. We CAN'T do this here. People with IC and other chronic illnesses suffer every day in pain because of this misguided information.
      Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

      Comment


      • #18
        Originally posted by ihurttoo
        Sandy,

        That was a great explanation about the difference between addiction and tolarence. I also love what Dr. Brookoff said in one of the transcipts on the ICN regarding this issue. He states that no Dr. can turn someone into an addict. It is either in them or it isnt. But, if they are taking the med for the purpose it was intended, to relieve pain, then there is no way to become addicted. Tolerant, yes. But addicted, no.

        April, So glad you are out of the hospital. Hope you feel better and better with each passing day.


        Hugs,
        Amy

        Thank you, Amy. I am SO glad to be home and in my own bed. However, I am wondering what to do about something and I am glad this situation/post came up. When I was in the hospital, I was getting Demerol-50mg/Phenergan 25mg I.V. every four hours and two Percocet 10mg by mouth every 3-4 hours with that. Now that I am at home, I am finding that my Percocet 7.5 two to three times a day is NOT helping me. Should I call the pain specialist or report this when I have my next appt. on the 28th? I am concerned because the last few days I have had to take more and I'm concerned about that because of the contracts you sign with pain management about use of narcotics.

        Maybe because I was getting SO MUCH MORE in the hospital because the infection (which is not well yet) I am still in pain moreso with the dose of Percocet I was on.

        What do you guys think? My pain specialist is usually really good about answering after hours calls when you need authorization to take more than usual. I could take more and wait until Monday to call his office...because I have enough...but it would mean taking more than I am prescribed right now to remain comfortable.

        My Primary care doctor wrote me plenty of Phenergan and I notice when I take 50mg with my Percocet, I get better relief but am still in pain enough to need more pain medication.

        I need some thoughts on this from more experienced patients....please.

        Thanks and God Bless.
        Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

        Comment


        • #19
          April,

          I would definately call your Pain Mgmt Dr. and tell them that you just got out of the hospital and that your reg pain meds are not adequate at controlling your pain right now. I am sure you already know this, but I would not say anything about your taking additional meds to get the pain controlled, because, as you are aware, it is a violation of your pain contract, and the Dr. could drop you if he/she gets wind of it. It is unfortunate that we cant just talk to our Drs like we would a friend and say, "Hey, the amount of meds you gave me didnt work, so I took a little extra and it helped alot, so will you write me a script for the amount that actually works?" But, as we all know, we would get dropped so fast it would make our heads spin, if we said something like that!!

          If your Dr. cant help you this weekend, and the pain becomes intolerable, please dont hesitate to go to the ER. You have to stay on top of it or it none of the meds are going to work.

          I hope your Dr. will help you so you will get to feeling better soon!

          Many hugs,
          Amy

          Comment


          • #20
            Originally posted by ihurttoo
            April,

            I would definately call your Pain Mgmt Dr. and tell them that you just got out of the hospital and that your reg pain meds are not adequate at controlling your pain right now. I am sure you already know this, but I would not say anything about your taking additional meds to get the pain controlled, because, as you are aware, it is a violation of your pain contract, and the Dr. could drop you if he/she gets wind of it. It is unfortunate that we cant just talk to our Drs like we would a friend and say, "Hey, the amount of meds you gave me didnt work, so I took a little extra and it helped alot, so will you write me a script for the amount that actually works?" But, as we all know, we would get dropped so fast it would make our heads spin, if we said something like that!!



            If your Dr. cant help you this weekend, and the pain becomes intolerable, please dont hesitate to go to the ER. You have to stay on top of it or it none of the meds are going to work.

            I hope your Dr. will help you so you will get to feeling better soon!

            Many hugs,
            Amy

            Thanks Amy. I think I will wait til the office is open Monday morning and try to make it until then. I am limiting my activities and laying around a lot in hopes that doing so will make it easier. Also, I have PLENTY of Phenergan and I have been taking 50mg with my pain medication so that it makes it work a little longer. It was explained to me once that Phenergan (whether you're nauseous or not) will help the pain medicine last longer. My pain specialist is great, so I think he will not have any objection to adding or changing the strength. His mantra is that he does not want anyone to be in pain. And, yes, I know NOT to ever mention that I took more than prescribed (which I only did today). It's just that as I mentioned before I was getting pain meds every two to three hours at the hospital and I came home only able to take the Percocet two to three times in 24 hours, which roughly equates to every eight hours. It DOES NOT last that long. I also have some Ultracet, so I have been using that during the day as not to deplete my supply of Percocet. Also, I have a few Lortab left from once before he changed my meds. I might resort to that if nothing else. Wow! I NEVER in all my mind thought having a catheter in for a week could make IC so much worse.

            God Bless.
            Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

            Comment


            • #21
              Sandy,

              I second your post and say thank you! You expressed the point so appropriately. This message board should be a kind place of understanding even when those around us don't understand. Many of us having to take pain medications just to survive have probably heard disconcerting and hurtful statements regarding this subject during family gatherings, social events and church. I appreciate your comments.

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              Originally posted by SandyRN
              ...BTW, I loved the story and didnt come here to start this discussion. We hear enough about "addiction" from uncaring doctors. We CAN'T do this here. People with IC and other chronic illnesses suffer every day in pain because of this misguided information.

              Comment


              • #22
                I agree with Amy that you should speak with your doctor before adjusting your dosage.

                Warm hugs,
                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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                • #23
                  The secret- this may help

                  I was diagnosed with I.C. may of 2007 after several years of bladder, urethra and bowel problems and pain. I have been to six doctors and have had three exploratory surgeries in the past year and on half. Im on a fentanyl 75 mg patch, take elmiron, hydromorphone. cymbalta, and temazepam to sleep. I have different degrees of pain everyday. I need to stay close to home because rideing in the car, sitting or walking makes my pain worse. I have a tens machine that does,nt help. I often lay on the couch with a heating pad between my legs for some releif. What I,m writing about most is a book I read three weeks ago. IT,S THE SECRET BY RHONDA BYRNE. I feel it could change our life in many ways. IT,s so inspirational and hopeful. I loved it so much I bought the cd and dvd. I study it almost every day or listen to the cd.
                  I believe it could change are life if we follow what they say. The book is small so it does,nt take long to read. I bought it at borders and sent for the cd and dvd. It has given me a feeling of hope, that theres another way to solve my many problems. also I wanted to ask if anyone has tryed cystistate (sodium hyaluronate) instillations. I go to my urologist again in two weeks and I,m thinking of
                  trying it. Please let me know what you think. Thanks for your help and GOD BLESS YOU ALL. BUDDIE-MARLENE
                  ICNDonna
                  ICN Staff
                  Last edited by ICNDonna; 08-20-2008, 03:04 AM. Reason: Removed sales sites.

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