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  • :) you know you have ic when...

    Post something funny or ironic about having ic.

    You know you have ic when there are 3 different brands of chamomile tea in your cupboard, and you could give a 5 minute discourse on the subtle and not so subtle differences in flavor.
    Elinor

    I would have lost heart, unless I had believed
    That I would see the goodness of the Lord
    In the land of the living.
    Wait on the Lord;
    Be of good courage,
    And He shall strengthen your heart;
    Wait, I say, on the Lord!
    ***Psalm 27:13-14***


    http://facinglif.blogspot.com/

  • #2
    you know you have IC when

    You know you have IC when you could give a 20 minute speech on the contents of seventeen different brands of toilet paper.

    Comment


    • #3
      .... when you buy the 36-roll pack of toilet tissue .... every month!

      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        The entire pharmacy staff at the local drug store greets you by your first name.(Even though you're urban)

        Comment


        • #5
          ....when you know the location of every available public restroom.
          "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

          Comment


          • #6
            I've always said I would make my fortune writing a restroom directory for our state.


            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              You're at a bar with your friends and your drinking WATER!!!!!
              My IC is under control with DIET.
              Tried Cystoprotek but gave me terrible heartburn.

              Current Strategy:
              IC Diet (most helpful)
              Quercetin 500mg
              D-Mannose (when flaring)

              Comment


              • #8
                ... And you wish you had their bladder and they had yours. But not really.

                Comment


                • #9
                  When the sight of a toilet is a blessed event!!
                  MARY


                  Serenity isn't freedom from the storm.....it's peace within the storm.....I had my sick bladder removed Jan 7th 2010.....Even though I had many complications.......I would do it again in a moment.....I have no regrets......Sunflowers in memory of my sister who passed March 14th 2010......they were her favorite....

                  Comment


                  • #10
                    When you realize you're envious of the lady in the next door restroom stall who pees with ease then sighs in relief upon completion.

                    Pee envy
                    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

                    Comment


                    • #11
                      when you seriously consider putting a T.V. in your bathroom as that is where you spend most of your time!

                      Comment


                      • #12
                        ............when you have no modesty left.

                        (From getting a video urodynamics test, many pelvic exams, the cysto, internal pelvic floor PT.......ever see the Marx Brother's movie, Night At The Opera? The stateroom scene on the ship where everyone is trying to fit in the tiny room? That's my vagina!!)

                        Comment


                        • #13
                          Oh Karen, that is a good one!
                          Julie Beyer, MA, RDN
                          IC Dietitian, Patient Advocate, Speaker, & Author


                          Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

                          Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

                          You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

                          ........ ........


                          Other IC Diet Resources:

                          IC Diet Webinar
                          IC Diet Website
                          For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
                          Free IC Diet Booklet: What Can I Eat?
                          Confident Choices IC Diet Blog
                          IC Diet Newsletter


                          *Let's Connect!*

                          Comment


                          • #14
                            When your with a group of people and your daughter asks to use a public restroom and you volunteer to take her pretending its for her instead of having to admit you have to go yet AGAIN and she has become the perfect excuse!
                            Cindi


                            Gelnique for frequency/urgency - works great
                            Macrobid after sex
                            Prilosec, continuous birth control pills
                            synthroid .088mg, mucinex-d, restasis

                            Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                            Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                            IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                            AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                            AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                            Great treatment flowchart on page 19 of the pdf

                            Comment


                            • #15
                              When you make your small child go to the bathroom with you at church because you have already been to the bathroom a few times during the 30 min you've been there and want people to think that the child needs to go instead of you! That way, no one will know that you actually had to pee 3 times in 30 min!
                              I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

                              D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

                              Meds: Estrogel (due to total Hyster)
                              The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)


                              (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


                              John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

                              Comment

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