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Time for the big change....

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  • #1

    Time for the big change....

    Well, I did make it in to see Angel's uro. Yup, I for sure have IC.
    I know I am going to have to give up a lot of what I love. Like spaghetti. I love that stuff! I eat it at least twice a week. And, the more spaghetti sauce, the better. More sauce than noodles! That's going to be real hard. The same with diet coke and mochas. And, potted meat and mayo sandwiches. (I don't know of many people who will actually eat potted meat...lol... but I love the stuff!)
    But, I not only need to change my diet for IC, but I have to change it to lose weight too. I also need to stop smoking... totally. That's going to be so hard! I know some of the foods that work for me and Angel. And, I have always known that some of my favorite stuff is what caused my bladder to flare up, but I was just hoping that I was wrong. I was hoping nothing was wrong.
    Now I have to make the decision to lead a healthier life. I am so nervous! It was easy to help my daughter to eat better, but for myself, it's much, much harder!
    Now, if only I could find some friends around where I live to help me stick to my healthier life! I guess it's time to get motivated.
    Thank you all for being there.

    Heather
    The things kids say!
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  • #2
    Hi Heather, sorry to read you have IC, but you know we are here to give you any support we can, and maybe answer some questions you might have. I know it is hard at first to give up things you love, it does take a time to find out exactly what you can and cannot eat. It all takes a while to sort through. Take care and you know where you can find IC help, right here on the boards, and a great support system. Hugs Iris. hi grouphug
    Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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    • #3
      Now you know. And you can work with your little girl to help both of you feel better. You have an opportunity to provide an example for her and I know you can live up to it.

      I do suggest you use some stop smoking aids to help you with that --- they are a little expensive, but compared to the cost of cigarettes, not that bad. And when you quit smoking you won't be exposing your children to smoke, which may help your little IC girl too.

      You can do it!

      Sending encouraging hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Hi there! Sorry to hear that you have IC. I just wanted to let you know that some people can eat spaghetti without any significant problems. It may be a trigger for you, and it may not be. I myself don't have a huge problem with it and I know of someone who has had IC for a long time who also doesn't have a problem. Now, that doesn't mean you should run out and eat a ton of it, but don't lose hope. It still might be something you can enjoy.

        It's different for everyone, so take the time you need to explore what works for you. I've heard people talk about how once their IC is under control that they can eat some of the "no no foods" with some prelief.

        I hope things get better for you.

        take care -
        Jennifer
        I speak of my personal experience only to provide support to others who have IC. I am not offering professional advice in any way. All patients are different and may respond differently to various remedies and medical treatments. These posts are based on my personal experience and are not meant to be viewed as medical advice nor do they replace the proper evaluation and treatment by a medical professional or healthcare provider. Please seek out treatment and medical advice from your doctor and medical team.

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        • #5
          Hi Heather,

          Sorry to hear that you have IC but welcome to the family. Believe me when I say that the idea of giving up your favorite foods seems hard now but when you associate the food with your pain and pressure you won't want to eat that stuff anymore.
          Think of it as not giving it up because of IC but instead for your health and well being. You deserve the best you you can be. You will have lots of support here.

          Good luck,
          Laura

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          • #6
            Hi Heather,

            Sorry to hear that you have IC but welcome to the family. Believe me when I say that the idea of giving up your favorite foods seems hard now but when you associate the food with your pain and pressure you won't want to eat that stuff anymore.
            Think of it as not giving it up because of IC but instead for your health and well being. You deserve the best you you can be. You will have lots of support here.

            Good luck,
            Laura

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            • #7
              I'm glad you finally know what is going on. That diet is a big pain and it always left me feeling very sad. I tried to turn it around to be a positive. I would think, "Thank God I have a cost free, simple (not easy) way to help ease this discomfort." I would try to re-frame it and that made it a little easier. I also tried to think of "fun" foods I COULD eat and treated myself to those.

              You'll make it and your bladder will be happier. Second hand cigarette was a big trigger for me so I bet your bladder will be happy about that, too.
              Kim

              Diagnosed August 2001

              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

              *****************************

              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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              • #8
                The other girls said it all...but this is the place to complain about having to change your diet! Lots of understanding here!

                I also agree with one of the other girls that little by little your tastes change. And there are still things that you CAN enjoy - like vanilla pudding and vanilla ice cream (at least for me)

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